INFORMATION EXCHANGEPublished monthly by the Developmental Disabilities Program of the Metropolitan Health Planning BoardMetropolitan Council 300 Metro Square BuildingSt. Paul, Minnesota 53101 Toni Lippert: 291-6364 Tom Chapel: 291-6357METRO DD PROGRAM NOTESTraining Workshops BeginThe State Developmental Disabilities DD Program will hold its first set of training workshops in the Metropo itan Area on Jan. 31, Feb. 1, and March 10, 1983. The management training series is made possible through a grant from the McKnight Foundation. See the December issue of this newsletter for more information.Participation is limited to 30 people.For registration information, call Kay Zwernik (012) 292-7409.
McKnight Foundation Announces Changes in Developmental Disabilities Grant Program
At the December meeting of the state 00 task force, there was a presentation on the current status of the three developmental disabilities projects funded by the McKnight Foundation. Changes in the projects are described below in the following "article prepared by the state developmental disabilities program office.
On Dec. 6, 1982, the directors of the McKnignt Foundation announced changes in the funding and implementation of the foundation's comprehensive program in developmental disabilities. As originally established in December 1981 (see Information Exchange, state supplement, January 1982), the four-year program totaled $3.5 rnillion to support a wide range of activities designed to meet needs of Minnesota residents with developmental disabilities. The revised program will total 52,957,872 and include changes in two of four program components described below:
Vol. 8. No. 1. January 1983
McKnight (Continued)
Systems Change Program. The purpose of tnis program is to develop more effective
ways of meeting needs of clients who live in community-based residences and those
who are participating in day and employment programs. In May, 1982, the foundation awarded planning grants of $25,000 each to three organizations to change the system in activities regarding residential, day and employment services. The grants were awarded to the Association of Residences for the Retarded in Minnesota (ARRM), the Minnesota Developmental Achievement Center Association (tvINOACA), and the Association
for Retarded Citizens Minneapolis (MARC). The foundation had intended to award three year implementation grants of $600,000 to each organization if its plan warranted continued support.
Because of unanticipated difficulties in developing plans for change in the
system, two revisions have been made in the original program design. First, MARC withdrew from further participation in the t project.The foundation regretfully
accepted the withdrawal and decided to continue to work in the employment area on
a reduced scale through two projects to De operated by the Minnesota Association of Rehabilitation Facilities (MARF). The foundation has awarded $32,130 to MARF for the months of December 1982 through February 1983, to conduct detailed planning for two projects. One project is the redesign of existing services, and the other is business development in rehabilitation facilities. If plans submitted at the conclusion of the three months are satisfactory, the foundation will award IvIARF up to $2b8,870 for 33
months of implementation activities.
The foundation has also awarded three month grants of $52,126 to NINOACA and $51,321 to ARRM to enable them to carry out additional detailed planning
McKnight (Continued)
Curriculum activities relating to projects each organization had proposed in the initial planning period. If plans submitted at the conclusion of this period are satisfactory, the foundation will award each organization up to $547,874 for MNDACA and $548,679 for ARRM for 33 months of implementation activities.
Support to the Office of the Court Monitor. The foundation offered a three year grant of $150,000 to support the work of the office of the court monitor in the Welsch vs. Noot Consent decree. This grant was contingent on securing a determination from the Federal District Court that the court monitor's office was able to receive outside private funding under the decree. The court subsequently ruled that outside funding could not be granted. Consequently, the foundation has withdrawn this portion of its program.
The directors of the PlcKnight Foundation noted with satisfaction the work done in 1982 by the two other organizations funded under the blcKnight developmental disabilities program. They are the Minnesota Developmental Disabilities Planning Program, which has contracted with Government Training Services to conduct personnel training throughout the state and Legal Advocacy for the Developmentally Disabled in Minnesota, a project of the Legal Aid Society of Minneapolis. The foundation intends to continue the planned activities and fundings for these components of the program.
Addition to Curriculum Library
The Metropolitan Developmental Disabilities program has added a new book to its curriculum library. It may be borrowed by bletropolitan Area residents for three weeks.
Communication Programing for the Severely Handicapped
Caroline R. Musselwhite and Karen W. St. Louis, Colleae Hill Press. San Dieqo. 1982.$29.50 plus $3 for postage and handling.
This book covers both vocal and non-vocal communication strategies as well as related topics such as preliminary skills and support systems. It provides information on principles covering all types of communication programs, an overview of selected vocal and non-vocal programs and issues in language training.
The authors have provided detailed descriptions of each support system and the inherent skills needed for readers to make informed decisions about which program is best suited for a particular individual.
The book also focuses on a variety of impairments that lead to communication disorders. It recognizes that a primary impairment may often be accompanied by secondary conditions such as autism or cerebral palsy plus mental retardation, or mental retardation plus deafness or blindness.While the book is intended primarily for conmnication professionals, other major direct-care professionals, (occupational, physical and developmental therapists) may find this material useful in individual program planning.
EMPLOYMENT OPPORTUNITIES
The Phoenix Residence seeks a part-time registered occupational therapist to oversee implementation of an cc:d: :tional therapy program for 48 develop% :.lly disabled adults residing in an intermediate care facility. Duties include supervising two full-time certified occupational therapy assistants, developing adaptive equipment and working with wheelchair positioning aids and splinting. A basic knowledge of sewing is also required.
For further information, contact the personnel coordinator at the Phoenix
Residence, 135 E. Colorado St., St. Paul, Minn. 55107. Tel. (612) 227-7655.
PUBLICATIONS
--Employment Services Concept is a new publication from United Cerebral Palsy
Association that describes programs that may lead to employment opportunities for disabled persons. Programs range from a food production and distribution operation employing disabledworkers to a program that starts with the initial evaluation of capability for work and goes through the training process to employment. The 75 page book costs $2.25 and may be ordered from:Professional Services Program Department, UCPA, Inc.,
66 E. 34th St., New York, NY 10016.
-- The Directory of Living Aids for the Disabled is a 304-page catalog that lists living aids by type such as alarm clocks for people who are blind and typewriter control systems that can be activated by suck, blow, or sensitive microswitches. Catalog information includes a brand name of a product, a description of its function and name and address of the manufacturer.It is available from the Superintendent of Documents, U.S. Government Printing Office, Washington, D.C. 20402.Stock number is 051-000-00158
3. The cost is $7.50.
-- Fire Safety and You: A Guide for Handicapped People is a booklet including information for disabled persons on how to escape from fires, home fire prevention, fire-fighting, and burns. Available for $.35 from: National Fire Protection Assoc., Publications Dept., Battery March Park, Quincy, Mass. 02269. Order stock number G-121.
-- The Handbook of Job Analysis for Reasonable Accommodation focuses on a job analysis process that can be used to plan easier and more convenient working conditions for people who are handicapped. It also includes a sample job analysis form and suggestions for accomnv?dating people with specific handicaps. The booklet is available for $3 from the Superintendent of Documents, U.S. Government Printing Office, Washington, D.C. 20402. Stock number: Oob000-1285-0.
FOR YOUR INFORMATION
New Proqram for Deaf, Retarded Children
The HELP Deaf Program for Retarded Children will soon be formed. It will be funded by a local foundation in Ohio and will focus on evaluation and training. HELP will initially explore techniques for evaluating previously undiagnosed hearing loss. The project will also develop a variety of training instruments to assist individuals to acquire communication skills.Goals will include research to confirm tnat 15 to 20 percent of people who are mentally retarded have a significant hearing loss and are misdiagnosed as autistic; and to demonstrate that stimulation of other senses,using sensory and electric equipment, will assist in learning new skills. For further information, contact: Walter Zborowsky, Executive Director HELP, 13032 Euclid Av., East Cleveland, Ohio 44112.
Pen Pal Program
The publishers of Exceptional Parent magazine are developing a pen pal program for parents who wish to correspond with parents with similar experiences and to enable children with disabilities to exchange letters.Parents who wish to participate or whose children would' like a pen pal, should send a letter giving aqe, sex and disability of their child to: Pen-Pals, The Exceptional Parent, 296 Boylston St., Boston, Mass. O2211O.
Study Documents Shift in Residential Care
A substantial increase in the number of community-based residential facilities serving persons who are severely disabled, together with a dramatic drop in the disabled population of large puDlic institutions, are among the recent changes in residential care for developmentally disabled people documented in a five-year research project by the Center for Residential and Conxnunity Services (CRCS), University of Minnesota.
Residential Care Study (Continued)
The CRCS Developmental Disabilities Project on Residential Services and
Comnunity Adjustment, conducted under a grant from the Administration on Developmental Disabilities, involved 13 separate surveys of conmnity and public residential facilities and residents. One of the findings shows that a significant number of severely handicapped persons are being served in conmwnity-based facilities, and newly admitted residents are as likely to come from their natural homes as from a state institution.
The overall implication of these findings, center researchers conclude, is that there will have to be a reallocation of funds to comnunity-based alternatives.
"Conmnity-based facilities must accommodate the release from public facilities of an ever more seriously handicapped population and provide the required level of staffing and services necessary to meet individual needs," they state.
Additional information may be obtained from the Center for Residential and
Arts Programs for the Handicapped to be Coordinated
The National Cormnictee, Arts for the Handicapped (NCAH), an educational
affiliate of the John F. Kennedy Center for the Performing Arts in Washington,
D.C. has announced that Minnesota Alliance for Arts in Education (MA/K) will receive funding to coordinate arts programs in Minnesota involving disabled persons.
The Very Special Arts Festival (VSAF) program provides handicapped children
youth ana adults with opportunities to increase learning and enhance their
quality of life through participation in visual arts, drama, dance and music.
Arts Program (Continued)
All VSAF programs depend upon the assistance of volunteers. For more information, contact: Lori Ann Lee, Program Coordinator,MAAE, P.O. 60X 13039, Minneapolis, Minn. 55414. Tel. (612) 376-1197.
Courage Center Classes
Courage Center is offering daytime and evening courses to physically disabled adults from Jan. 17 to March 24. Classes include clay works, ceramics, art, trichem embroidery, painting, photography, radio drama, chorus, music and literary writing. Class schedules, fees and requirements vary, and students are urged to register early.
For more information, contact: Cindy Raynor, Life Enrichment Program, Courage Center, 3915 Golden Valley Rd., Golden Valley, Minn. 55422. Tel. (612) 588-0811.
FUTURE EVENTS
March 10-12
The Council for Exceptional Children will sponsor a National Topical Conference on the Use of Microcomputers in Speclal Education in Hartford, Corm. The conference will focus on the use of microcomputers in special education programs and on adaptations and creation of software programs for specific disabilities.
More information may be ootained from John Grossi, Conference Manager, The Council for Exceptional Children, Department of Field Services, 1920 Association Dr., Reston, Va. 22091-1589. Tel. (703) b20-3660.
INFORMATION EXCHANGE State Supplement
Developmental Disabilities ProgramMinnesota Department of Energy,
201 Capitol Square BuildingPlanning and Development
550 Cedar StreetUlocl.om
St. Paul, Minnesota 55101
Roger Strand612/296-4018
Editor
REVIEW FOR POLICYMAKERS PUBLISHED
The Minnesota Developmental Disabilities (DD) Program Office and the Governor is Planning Council on DD will release a new publication this month. entitled
Developmental Disabili~ies and Public Policy: A Review for Policymakers.This
publication was written in cooperation with the Center for Educational Policy Studies, College of Education, University of Minnesota.
It provides current information about persons with developmental disabilities, illustrates trends in community services and identifies policy issues and alternatives for the 1980s. Conclusions and reconunendations are based on evidence presented in public forums, data and policy analysis studies and literature review.
"Much is right about Minnesota's services to people with disabilities," the publication states. However, it says the challenge for the 1980s is to preserve gains made during the last decade by reshaping and providing services in an efficient and coordinated way.
Premised on the broad policy goal that home life and day activity of people with handicaps be as close to normal patterns as their disabilities allow, the report recommends an alternative approach in addressing this goal. Rather than fitting the person into the services available, a flexible array of services should be designed to meet the identified needs of the person with a disability. This is referred to as a support model, which is a consumer powered system that starts with the client's needs and strengths, identifies the resources needed, and evaluates the system according to the client's progress. Funds could be directed toward services rather than facilities and clients would not be forced to move as they become more independent and as their needs change.
January 1983
Review for Policymakers (Continued)
Current practice is based upon a resourcepowered system where clients choose from
among services available and spend time on waiting lists. Policy is contradicted by
disincentives that encourage counties to place people in more restrictive settings. Reallocation of funds could solve such disincentives.Two side effects arehig
dollar investments in bricks and mortar and difficult evaluations because of inappropriate placements.
Future policy choices depend on how basic issues are viewed and responded to. For example:
- A trend exists toward decentralization of governmental responsibilities, putting greater pressure on state and local governments to continue services viewed as necessary.
- Issues exist concerning funding disincentives and deficits in open entitlement programs, reexamining the use of the Title XIX waiver to allow Medicaid payments for home and
conununity care, and exploring more cost effective alternatives to long-term care.
- What is the value of placing greater emphasis on prevention and early intervention for long-term cost ,savings?
- What is the practicality of funding two service systems--a network of state hospitals and one of community services?
Copies of this publication will be sent to those on the Policy Analysis Series mailing list. Others may request a copy by contacting the Developmental Disabilities Program Office, 201 Capitol Sq. Bldg., 550 Cedar St., St. Paul, Minn. 55101. Tel. (612) 296-4018.
McKNIGHT FOUNDATION ANNOUNCES $3.35 MILLION PROGRAM FOR MENTAL HEALTH SERVICES IN MINNESOTAThe McKnight Foundation has announced the establishment of a four-year, $3.35million comprehensive program to make certain types of mental health services more widely available throughout Minnesota. The program is the result of an eight-month review of the needs of people who are mentally ill and their families.
Approximately 15 percent of the state's population, about 600,000 Minnesotans, experience mental health problems at any giwen time. The foundation's program is
intended to encourage provision of needed services by concentrating efforts in the following areas:
- Community Support Programs. A Comnunity Support Program (CSP) is a
comnunity-based, syst&natic approach to providing services for people who have experienced mental illness and have recurring life adjustment problems. The
foundation will offer financial aid totalling $2 million between 1983 and 1986 to encourage the establishment of new CSPS and further development of existing CSPs.
- Community Coalition Building Project. The foundation will provide $244,200
between 1983 and 1986 to the Mental Health Advocate's Coalition, Inc., to establish consumer-dominated, communitybased coalitions of mental health advocates across the state.
Advocacy Programs. The foundation will irovide S1,008,776 between 1983 and
1986 to the Mental Health Association Minnesota, Inc., to operate three advocacy programs:
- Support for families of mentally ill persons;
- Legal representation to clients (through a subcontract with Legal Aid Society of Minneapolis); and
- Trained lay advocates to assist individual consumers of mental health services,
McKnight Foundation (Continued)
American Indian Mental Health Programs. The foundation will provide $83,000 in 1983 and 1984 to match a state-mandated set-aside of federal block grant funds to assist the development and expansion of mental health services for American Indian clients living on a reservation or in urban communities. An additional $20,000 will be provided for the twoyear period to continue the activities of the American Indian Mental Health Advisory Committee, an official unit of the Minnesota Indian Affairs Intertribal Board.
For more information, contact: Russell V. Ewald, Executive Vice-President, The McKnight Foundation, Suite 410 Peavey Bldg., Minneapolis, Minn. 55402. Tel. (612) 333-4220.
VINLAND NATIONAL CENTER RECEIVES FEDERAL DD SPECIAL SIGNIFICANCE GRANT
The Administration on Developmental Disabilities, Department of Health and Human Services in Washington, D.C., recently announced its discretionary grant awards-"Projects of Special Significance"--for fiscal year 1982. lknong 17 projects funded throughout the nation was the Vinland National Center in Loretto, Minn.
The purpose of the one-year grant of $125,000 to Vinland is to develop and provide a national resource for rehabilitation organizations interested in providing health sports and recreation services as part of the rehabilitation process. Vinland will prepare and disseminate materials nationally and, train disabled persons and professionals in the field of health sports.
For additional information, contact: Joan Saari, Vinland National Center, 3675 Ihduhapi Rd.,Loretto, Minn. 55357. Tel.
(612) 479-3555.
NEW FILM ASKS "WHAT'S YOUR HANDICAP?"
Produced by a North St. Paul family physician, Dr. Joe Norquist, a new film "What's your Handicap?" takes a fresh look at how people with handicaps are living as normally as possible. The film reminds its viewers that all people have handicaps of one sort or another. The film captures the meaning of disability as seen from the eyes of people with primarily physical , handicaps. For information on purchase or rental,
call (612) 777-8393.
PUBLICATIONS
Guide to Minnesota Foundations and Corporate Givinq Programs (1583 Update). This directory will be published this winter from the University of Minnesota Press. It has been expanded to include information on corporate giving programs as well as foundations. Introductory chapters provide, information about grant making in Minnesota, types of grant makers and where to seek additional resource materials.
The directory may be ordered from the University of Minnesota Press, 2037 University Avenue, SE., Minneapolis, Minn. 55414, for $14.95 per copy (plus tax or tax-exempt number). 8166-1219-6.
1983 Minnesota Pocket Pata Book. Packed with statistics. ma~hs and charts. this is a helpful reference for planner-s, executives, government officials, students and others who need current data about Minnesota. It includes data on manufacturing, marketing, population trends, human and natural resources, government revenues and expenditures, education and transportation.For price and more information, contact: Blue Sky Marketing, Inc., Publications Division, 2935 Humboldt Av. N., Minneapolis, Minn. 55411.Tel. (612) 774-2920.
Publications (Continued)
Minnesota Guidebook to State Aqency Services is a 750-page resource book that details grants, licenses, materials and services from every state agency, including history, vital statistics and facts about Minnesota. Cost is $9 plus $1.45 for tax, postage and handling. Order from: Minnesota State Documents Center, 117 University Av., St. Paul, Minn. 55159.Tel. (612) 297-3000 or, toll free, 1-(800) 652-9747.
NEWSLETTER HIGHLIGHTS COMPUTER TECHNOLOGY FOR PEOPLE WITH HANDICAPS
Closing the Gap: Computers for the Handicapped is a publication that pays specialized attention to the growing industry of computer hardware and software technology for people with handicaps. A one-year subscription for this bimonthly publication costs $15. Contact, Closing the Gap, Route 2, Box 39, Henderson, Minn. 56044.
EVENTS
Jan. 20, 1983
"Treatment of Traumas for Male Victims of Sexual Abuse" is a one-day seminar to be held at Central Lutheran Church in Minneapolis. This seminar will explore clinical issues involving male victims, abusive parents, family reconstruction and handicapped victims. Fee: S22. Handicapped participants should alert seminar staff of about special needs. For registration, contact: Treatment Program for Male Victims of Sexual Abuse Inc., 1111 W. 2nd St. Minneapolis, Minn 55405 Tel . (b12) 888-3324.
Jan. 23
The Nationwide Telethon for Cerebral Palsy will be aired by the ABC network (WTCN-TV Channel 11 in the Metropolitan Area) from midnight to 6 p.m. Volunteers are needed. Call Mary Kaszynski, United Cerebral Palsy of Minnesota (612) 646-7568).
YEARNING FOR LEARNING
The state Developmental Disabilities Program Office has acquired several education, training and resource materials. They may be borrowed from each of the regional Developmental Disabilities offices and from the state program office in St. Paul. Each month, this section of DD Information Exchanqe highlights selections from these resources to provide information to potential buyers. The following selections may be borrowed from the State DD Program Office only.
Attitudes and Disability: An Annotated Bibliography, 1975-1982, E. Makas. This is a comprehensive coverage of articles and books that address at~itudes related to disability. It is organized by categories that include: specific disabilities (e.g. mental retardation, hearing impairment, etc.); attitudes of employers, law enforcement, medical and mental health professionals; and intervention strategies and theories related to attitudinal development and change. It also includes a section on instrumentation for measuring attitudes.
Prevocational and Vocational Education for Special Needs Youth: A Blueprint for the 1980's. K.P. Lynch, W.E. Kiernan and J.A. Stark (eds.).Besides providing strong policy stathents on the overall design of vocational training programs, this book offers detailed reconnendations for curriculum development and instructional methods based on careful evaluation. Strongly emphasized by the 21 contributing authors is the belief that if students fail entire programs, it is necessary to review and improve the procedures used rather than to draw premature conclusions about their limitations.
Metropolitan Council DD Program
300 Metro Square Building
7th and Robert Sts.
St. Paul, MN 55101
Bulk Rate U.S. Postage
PAID Mpls. Minn.
permit NO. 1610
INFORMATION EXCHANGE
Published monthly by the Developmentai Disabilities Program of the Metropolitan Health Planning Board
Metropolitan Council
300 Metro Square Building
St. PauI, Minnesota 55101
Toni Lippert: 291-4364
Tom Chapel: 291-6357
METRO DD PROGRAM NOTES
Book on DD Public Policy Needs Distribution.
The Governor's Planning Office on Developmental Disabilities has published an informative guide titled Developmental Disabilities and Public Policy: A Review for Policymakers.
The book is intended to provide elected officials with basic information on developmental disabilities and service system trends in community services. It also identifies policy issues for the 1980s .The Metropolitan Developmental Disabilities Program is assisting the Governor's Council in distributing the book to Metropolitan Area state and county legislators.
Volunteers are needed who are willing to personally deliver copies to their state senators, representatives and county commissioners. A brief orientation on how to present the book will be held on Tuesday, Feb. 8, at the Metropolitan Council. If you would like to attend the meeting and receive copies for your legislators, please call (612) 291-6363 for information. Legislative maps will be available to help you identify your legislators.
Traininq Workshop Set for March 10
I
For information on the organization and management training workshop sponsored by the State Developmental Disabilities Program, contact Kay Zwernik at (612) 222-7409. See the December issue of this newsletter for more information.
Vol. 8. No. 2.
February 1983
Proposal Funding Workshop Set for March 25
The Metropolitan Developmental Disabilities Program will sponsor a workshop, 'The Art of Getting Proposals: Trade Information You Should Know.m It will be held at Inver Grove Comnunity College, Friday; March 25, from 9 a.m. to 2:30 p.m. Registration will be limited to 60 participants, with a maximum registration fee of $15 each.
The workshop is a follow-up to a 1982 proposal-writing workshop. "Evaluation forms from the earlier workshop indicate a keen interest in influencing strategies applicants might pursue, both during the proposal development phase and after the proposal is submitted. Presenters will represent both corporate and foundation grantors.
A brochure and registration form will be sent to all Metropolitan Area recipients of the DD Information Exchange in the next few weeks.
Additions to Curriculum Library
--The Directory of Living Aids for the Disabled is a 304-page catalog that
lists adaptive equipment and devices for use by people with various handicaps. Aids include scissors, alarm clocks, clothing, kitchen utensils, conmmnication aids, switches using many types of controls, typewriter aids and many other aids.Listed in alphabetical order,aid descriptions include the type of . limitation the aid isdesigned to assist
and include the manufacturers' names and addresses.No prices are listed.
.
Books (Continued)
-Quallty Education for the Severely Handicapped. This collection of information is the work of many professionals affiliated with The Association for the Severely Handicapped. Topics include a critique of special education technology, service delivery issues, assessment, evaluation support services and training of professionals. The chapter on family involvement in the education process should be read by parents as well as professionals. While the book has a heavy educational orientation, professionals who work with severely handicapped persons will find useful information in many chapters.
These new books are now available in the Metro DD curriculum library and may be borrowed for a period of three weeks. To obtain a book, please apply in person to the developmental dlsabllitles secretary at the Metropolitm Council, (612) 291-6363.
l
NcKnight Applications
.
Please be sure to read the news item on the availability of DD-McKnlght Regional Problem-Solving grants from the State DD Program Office. See the first page of the state supplement (blue section) to this newsletter.
Maps Available
The Metropolitan Council has maps of the 1983 Twin Ctties Metropolitan Area legislative districts available free of charge. For a copy, call the Council P&ic Information Office at (612) 291
.
MISCELLANEOUS
Supreme Court Rules on DAC Services
.-
The Minnesota Supreme Court has made a decision in the Kitlxon County Developmental Achievement Center (DAC) appeal. The appeal was brought on behalf
Supreme Court (Continued)
of seven mentally retarded adults from Kittson County whose 5AC services had been cut from five to three days because of fiscal constraints on the county's budget.
The court found that county boards do not have the authority to reduce funding for welfare programs mandated by state rule. The high court said such funding can be reduced only by changing the rule mandating the program.
The Supreme Court reversed earlier decisions made by the Consnissioner of Public Welfare and a three-judge district court panel. The Supreme Court said the county had received adequate funds to make the mandated services available but chose to reallocate those funds to other non-mandated programs. The Department of Public Welfare is sending a directive to the counties on how to proceed.
New Jobs Bill Offers Greater Opportunity for Handicamad Persons
The new Job Trafning Partnership Act (JTPA) signed" into law by President Reagan on Oct. 14, includes the eligibility of handicapped persons. It also offers more opportunity for their participation in job training programs than the CanPrehensive ~loyment and Training Act (C~A) it replaces.
The new program-is designed to encourage businesses and state and local governments to work together to train and place dislocated and economically disadvantaged workers in permanent private sector jobs. ~A provides for basic job training and related training and supPort services. Unlike CE'TA, the new law does not provide for wages, stipends or public service jobs.
Of particular interest to handicapped persons, JTPA specifically defines eligibility as "any individual who has a physical or mental disability which for such individual constitutes or results in a substantial handicap to employment."
Job Training(Continued )
Persons who are handicapped are also included in the definition of "economically disadvantaged" meet income requirements. Requirements are based on the income of the individual rather than family income, as was the case under CETA. This prov~sion opens the door to greater participation by handicapped persons.
'Waiver' Program for Medicaid Coverage Becomes Permanent
Former Secretary of Health and Human Services (HHS) Richard S. Schweiker recently urged the nation's governors to act quickly to let disabled persons leave medical institutions and be treated at home while still retaining Medicaid coverage. At the same time, Schweiker unveiled a streamlined 'waiver" program that will make it easier for the states to take action.
The new waiver procedures are meant to permanently replace interim arrangement instituted by Schweiker in 1982. Acting on a request by President Reagan, Schweiker then issued a novel regulation allowing Medicaid eligibility for less expensive home care. The regulation allows disabled persons to go home from an institution without losing Medicaid eligibility. The states must apply to HHS for authority to cover disabled persons. The new procedures make it easier for HHS to grant the authority quickly.
Schweiker said, "The new procedure means more home care and less red tape with savings for the Medicaid program as well. I urge governors to move quickly and take advantage of this new flexibility.They can benefit disabled patients as well as their own state taxpayers and the Medicaid program, too."
Disabled Student Network Project Begun
A disabled student leadership network project has been initiated as a joint effort of the National Student Education Fund and the United States Student Association. The goal of the project is to build organizations for disabled students on campuses around the country. This will include disabled students in the higher education decision-making process through involvement in student government associations as well as state and national student organizations.
The project produces a bimonthly newsletter, News Aids. that focuses on events and issues affecting students with disabilities, with emphasis on legislative and regulatory developments in Section 504 of the 1973 Rehabilitation Act. Disabled students may contact:
National Student Educational NH. P St., Suite 305, Washington, D.C. 20036.
SERVICES
Modal Residential Application Form Available
The Iowa Private Residential Facilities for the Mentally Retarded have developed a uniform residential application form based on one developed by Developmental Services Organization Inc. (DS0).
If you know residents of other states interested in using DSO'S admission and application form as a model, or of Minnesota residential facilities that do not have a copy of this form, please contact Jane Birks, 0S0 Inc., 666 Pelham Blvd., St. Paul, Minn. 55114. Tel. (612)
646-2711.
Behavior Management Proqram Offered
Gillette Children's Hospital is offering a new behavior management program that focuses attention on behavior problems of young people with disabilities. The program is designed to assist families, physicians, school personnel, human service providers and others who provide ongoing care in the child's home conmwnity.
Gillette Program (Continued)The program offers a one-day behavioral, medical and learning assessment. Problem behaviorsare identified, causes identified, recommendations for treatment made and follow-up management provided if requested.
The cost varies according to the extent of professional services required. For more information, contact: Katy knundson, Behavior Management Program, Gillette Chlldrenis Hospital, 200 E. University Av., St. Pault Minn. 55101. Tel. (612) 291-2848.
.
Information on Aids and Equipment Available
ABLEDATA a data bank containing information on rehabilitation products, has been expanded to include descriptions of 5,000 cannercially available aids and equipment. It includes information In the following areas: personal care, home maria ement (food preparation, furniture, etc.), vocational and educational aids, mobility, cushions and other types of seats, transportation, ConanJnication (including environnmntal control systems), recreat~on, orthot~cs, prosthetics and therapeutic aids.
ABLEDATA system may be used by anyone. Information brokers throughout the country perform searches of the file to meet users' specific information needs. A list of brokers may be obtained from MarIan Hall, ABLEDATA System Manager, National Rehabilitation Information Center, 4407 NE. 8th St., The Catholic University of Iknerlca, Washington, D.C. 20017-2299. Tel. (202) 635-6090.
BOOKS, PUBLICATIONS
Catalog of Aids for the Disabled omers fJescrlptlons of aids In the areas of personal care, meal preparation and other household activities, mobility, ctxununication and recreation, with photographs or illustrations of many items. The catalog is available from local"bookstores, or from: Mc6raw-Hill, 1221 Avenue of the Americas, New York, N.Y. 1002O. The price is $24.95.
Publications (Continued)
Sometimes I'm Mad, Sometimes I'm Glad-
On Being a Prader-Willi Family, by Janalee, is a children's book written in simple language for brothers and sisters of Prader-Willi children. It describes conflicting emotions a sister has about her brother who has Prader-Willi Syndrome.
The book is available for $2.50, including postage and handling, from: Prader-Willi Syndrome Association 5515 Malibu Dr., Edina, Minn. 55436.
Tel. (612) 933-0113.
Responding to Disability: A Question of Attitude is a questionnaire designed to stimulate thinking and dialogue about persons who are disabled. Writien in question-and-answer form, the booklet illustrates sltuatfons that could be uncomfortable or awkward. It allows the reader an opportunity to think about the situation, to respond and then to consider the various responses more carefully. The first five copies are free. A donation of $2 each to cover printing and postage is requested for each additional copy.
Order from: The Minnesota State Council for the Handicapped, Metro Square Bldg., Suite 208, 7th and Robert Sts., St. Paul, Minn. 55101. Tel. (612) 296-67B5 or, toll-free 1 (800) 6552-9747.
Handbook for the Disabled: Ideas and Inventions for Easier Living presents hundreds of devices and ideas to make life easier for persons who are disabled. Instructions are given on how to make simple aids such as lapboards. Sources of commercial equipment are also included. The handbook is available from local bookstores or from: Scribners, 597 5th Ave., New York, NY 10017. The price is $17.95.
For the Disabled Traveler--
The following five booklets may be helpful to travelers who are disabled:
--Access Amtrak, a guide to Amtrak services, includes information on discount fares, boarding ac~:s:;bility and railcar arrangements. " available at no cost from:National
Railroad Passenger Corp. 400 N. Capitol St. NH.,Washington, D.C. 20001.
--Access Travel: Airports lists design features, facilities and services at
472 airport terminals in 46 countries. It includes information on walkway widths, ramp slopes and location of elevators. A single copy is available free from the Consumer Information Center, Dept. 632K, Pueblo, Colo. 81009.
--Highway Rest Areas for Handicapped Travelers lists over BUO ccessible rest
areas along major highways in 48 states. It is available at nii cost from The Presidentts Comnittee on Employment of the Handicapped, 1111 NH. 20th St. NW., Washington, D.C. 20036..
-1981/1982 International Directory of Access Guides lists guides to information on accesslbifity in cities, towns, parks and transportation systems around the world. Individual copies are free, with additional copies $1 each. Available from Rehabilitation International U.S.A., 1123 Broadway, New York, N.Y. 10010.
--Access National Parks: A Guide for Handicapped Visitors is a 100-page guide
that gives detailed information about acces~ibility of facilities, services and interpretive programs in almost 300 historic sites, monuments and parks. It includes trail surface and length, -door widths and rest room accessibility. Also included are addresses, telephone numbers and brief descriptions of each park area. The cost is $6.50. Order by number SN 024-005-00591-5 from the U.S. Government Printing Office, Washington, O.c. 20402.
EMPLOYMENT OPPORTUNITIES
Camp Friendship, serving mentally retarded persons of all ages, is now accepting staff applications for the 1983 camping season. A total of 125-150 persons are hired for the 15 weeks camp is in session. Depending on each employee's surmner schedule, contracts are written for each individual staff member. Term of employment ran es from 2 to 15 weeks. Positions available are: counselors, nurses, nutritionist, dining hall workers, store keeper, camp crafter, receptionist, boat mechanic and other maintenance. Also needed are persons
skilled in arts and crafts, nature, recreation, music and water safety.
For more information, contact: Camp Friendship, Rt. 3, Box 162, Annandale, Minn. 55302. (612) 274-8376.
RECREATIONAL ACTIVITIES
For Sumner Camp Information...The Association for Retarded Citizens (ARC) of St. Paul is holding a free, informational forum at which representatives from residential and day sutuner programs will present information on servtces for children and adults who are mentally retarded, learning disabled or autistic. Groups represented will include Camp Friendship, Camp Confidence, Camp New Hope, Camp Indian Chief, St. Paul Adaptive Recreation Dept., Wilder Forest, Camp Hand-in-Hand, Camp Courage, Camp Buckskin, Camp Winnebago, Search Beyond Adventures and Day Camp for the National Society for Autistic People.
The forum will be held in the auditorium of the St. Paul Schools administration building at 360 Colborne St. (near W. 7th and Jefferson Sts.) on Wednesday, March 9 at 7 p.m.
Information on financial assistance for sunmer camp will also be available.For
more information call, (612) 224-3301.
Recreational Programs (Continued)
Dakota County Programs
The Association for Retarded Citizens in Dakota County has many recreational programs planned from January through May.For information, call Gail Colton at (612) 457-2588.
CONFERENCES, WORKSHOPS
March 9 and 12
Two identical workshops sponsored by Parent Advocacy Coalitlon for Educational Rights (PACER) wIII be held at the Park Bldg., McRae Park, E. 47th St. and Elliot Av. S., Minneapolis. Tha March 9 workshop will be from 7-10 p.m. and the March 12 workshop will be from 9:15 a.m. to 2:30 p.m. Registration will take place 15mlnutes prior to each workshop.
Topics will include an overview of special education laws and regulations, and an update on what's happening on the . federal and state leveTs with funding for special education programs.
The workshops are free, but preregistration is encouraged. For more information, call Betty Binkard at (612) 827-2966.
March 23
The Minnesota Interreligious Comnittee for Bio-Nedical Ethics will present a workshop, "To Save or Let Die: Dileasnas Concerning Defective Newborns,m at the Beth El Synagogue, 5224 H. 26th St., Minneapolis, from 8:15 a.m. to 4:15 p.m.
Registration is $18 and must be ptipaid. It includes the workshop, lunch, bibliography, position papers, contin;;;g education accreditation and coffee. For more information or for a registration blank, contact: Trudy Rogness Jensen, Chairperson, 4420 Philbrook Lane, Minneapolis, Minn. 55424. Tel. (612) 922-3537
.
FUTURE EVENTS
April 29 and 30
A Developmental Achievement Center (DAC) information fair will be held at the Louise Whitbeck Fraser School, 2400 U. 64th .St., Richfield, Minn.
The event takes place from 7 to 9 p.m., April 29 and 9 a.m. to 1 p.m. Saturday, April 30. It will feature entertainment, refreshments, information booths, panel discussions and slide/tape presentations explaining the work of DACS and exploring the challenges of today's uncertain economy.
For more information, contact: Diane Cross at Courage Center. Tel. (612)588-0811
May 15-20
Camnunication Training for the Nonverbal or Seriously Language-Deficient Child: A Transactional Approachn is an intensive, six-day in-service workshop that will take place in Kansas City, Mo. The training is funded through Special Education Programs, U.S. Department of Education. The workshop is designed for special education and speech and language clinicians at the leadership level. It is aimed at clinicians who serve severely handicapped children and youth who are nonverbal or who exhibit serious language and communication difficulties.The application deadline is March 1.FW more information, contact: Language Intervention: Leadership Training Program, University of Kansas, Bureau of Child Research, Parsons Research Center, Parsons, Kan. 67357. Tel. (317) 421-6550, ext. 395.
The Department of Educational Psychology
at New York University is sponsoring a special education sumner abroad program
in Denmark. Participants can work toward a M.A. degree in special education or study as nonmatriculated students in July and August. Twelve credits at $116 per credit are required. Inexpensive accommodations are available. For information, contact: Helen Kelly, New York University, 64 Press Annex, New York, N.Y. 10003. Tel. (212) 598-2126 or 2153.
The developmental disabilities program of Minnesota Department of Energy,
Planning and Development recently annouced that application for regional problem-solving grants will be accepted until April 15, 1983.This is the second year
that funds up to $1OO,OOO are being made available under a grant from the McKnight Foundation.
The grant program is designed to offer Fications or solutions to problems affect the quality and quantity of ices to persons with developmental bilities.Grants are for a period of
year and are generally less than 10,000.Purchase of equipment, land or dings is not permitted. Local match 25 percent of the total project cost required.
Grant information and application forms may be obtained from: Ron Kaliszewski, Devolopmental Disabilities Program, Room 201 Capitol Square Bldg., 550 Cedar St., ' St. Paul, Minn. 55101. Tel. (612) 296
.
COURAGE CENTER OFFERS SIX-WEEK COURSE PARENTS
A six-week course on how parents can become more effective in helping their
children reach their potential learning skill, will be held on Mondays, from 7-9 p.m., starting Feb. 28. The course title is "Managing Your Child's Behavior: Improving Learning Skills." Fee is $2 per session or $12 total. Make check payable to Margot Laird, instructor, and send with name, address and phone number.
Annette Pantel, Courgage Center, 3915 Golden Valley Rd., Golden Valley, Minn. 55433.
SOCIAL SECURITY BENEFITS REINSTATED
Last December, Federal District Court Judge Earl Larson ordered the Social Security Administration (SSA) to restore supplemental security and disability insurance benefits to over 800 t!innesotans whose benefits had been denied or terminated. The precedent
setting decision was the result of a class action suit filed against the Department of Health and Human Serv" by the Mental Health Association of Minnesota (MHAM) and four individua" with mental illness.
The suit charged the SSA with changing its evaluation processes for determining
an applicant's eligibility for benefits based on medical criteria without consideration of the person's ability to perform work or hold a job. According to Judge Larson's decision, the new process is illegal, and "arbitrary, capricious, irrational and an abuse of discretion. "
The decision has far-reaching implications.It affects all six states in the SSA'S Region 5 (Minnesota, Wisconsin, Illinois, Michigan, Ohio and Indiana) and means restoration of monthly benefits ranging from $289 to $439 to over 15,000 people with mental illness in these states. Because of terminations and denials of benefits, many people have been forced to subsist on general assistance funds or have been faced with return to state hospitals.
ACTION ALERT TEAMS: AN OPPORTUNITY FOR CITIZEN INVOLVEMENT
The Minnesota Comnittee for the Handicapped (MCH) is establishing action alert teams throughout the state. MCH is seeking individuals who will write or call their state and national legislators before key votes. No attendance at meetings is required.As stated bv
Molly Woehrlin, MCH coordinator, "Our ability to influence legislators is in direct proportion to the number of conmmications from constituents. We must mobilize the large number of people who support handicapped citizens so their voices may be heard."Please send the following information to Molly Woehrlin, Minnesota Committee for the Handicapped, Action Alert Team, 302 Maple St., Northfit?ld, hiinn. 55057: Name, address, phone, legislative district number, whether professional or parent, and interest area (e.g., special education, rehabilitation, residential, etc.).
EARLY INTERVENTION RESEARCH INSTITUTE
STABLISHED AT UTAH STATE UNIVERSITY
The Exceptional Child Center at Utah State University was recently awarded a $1.8 million, five-year contract to establish the Early Childhood Research Institute (ECRI). The grant was awarded by the Special Education Rehabilitation Services Office of the U.S. Department of Education. ECRI will focus its research on efficacy and cost-effectiveness.
The research staff is requesting information about other similar research efforts and also desires information on populations of children that could possibly be utilized in their research. To share information, please contact: Glenda Caste, Ph.D., project Director, ECRI, Exceptional Child Center, Utah State University, Logan, Utah 84322. Tel. (801) 759-2029.
WINTER WOODS NOW ACCESSIBLE
Wilderness Inquiry 11 is offering a series of four-day winter trips and one three-day workshop near the Boundary Waters Canoe Area for people with physical disabilities and nondisabled persons. No experience is necessary and most gear is provided. The cost is $100 for trips and $35 for the workshop. Financial assistance is available for those who need it and no one is turned away for lack of funds. Trip dates are Feb. 23-27 and March 2-6. The workshop will be held March 11-13 at the Environmental Learning Center near Isabella, Minn. For further information and application forms, contact: Wilderness Inquiry II, 2929 4th Av. S., Suite O, Minneapolis, Minn. 55408. Tel. (612) 827-4001.
SLIDE/TAPE PROGRAM FOR TEENAGERS' AVAILABLE
The Association for Retarded Citizens (ARC) of St. Paul has produced a slide/tape presentation entitled 'I Never Thought About It.U This is a straighforward, nontechnical look at how careful choices made by teenagers can help to reduce the incidence of mental retardation and other handicapping conditions.
Why a teenage audience? Because they are tomorrow's parents--and too often today's. Children born to young teenage parents run a much higher risk of physical and mental defects than the general population.
Ahmad Rashad, former Minnesota Viking, narrates the program.Interviews with
teenagers reveal what it is like to be with a retarded child.
Purchase price of the tape is $59.50. To preview, or for more information, contact:ARC St. Paul, 65 E. Kellogg, Suite 437, St. Paul, Minn. 55101.
(612) 224-3301.
AUTISM LIBRARY PRESENTED TO GILLETTE CHILDREN'S HOSPITAL
The Twin Cities Society for Autistic ' Children has selected Gillette Children"s
Hospital, St. Paul to receive a f~e;;al research collection on autism.
part of the National Football League Charities' $15,000 grant awarded to the National Association for Children and Adults with Autism.The library
replicates the reference collection at the University of Pittsburgh Graduate School of Public Health, covering the fields of medicine, education, nutrition and psychology. Parents, teachers, students and professionals may use the library located at University Av. and Jackson St. in St. Paul Tel. (612) 291-2848, ext. 105.
PUBLICATIONS
Citizens in Action is a booklet published by the League of Women Voters of Minnesota that serves as a guide to citizen participation in government at all levels.It is full of specific
information, from how to find parking, to how to prepare testimony or register as a lobbyist. The price is S4 plus $1.50 for postage. Contact:Leaque of Women Voters
of Minnesota, 555 Wabasha St., St. Paul, Minn. 55102. Tel. (612) 224-5445
A Guidebook for Managing Speech and SwallowingProblems by Douglas E. Fox.
This newly published and informative 61 page guide is intended to help understand and manage speech and swallowing changes experienced by persons with hereditary ataxia or related disorders. The price is $6.50 for members of the National Ataxia Foundation and $14.50 for nonmembers. Mail request with check to: National Ataxia Foundation, 6681 Country Club Drive, Minneapolis, Minn. 55427.
EVENTS
Feb. 7-8
"Sexuality and the Mentally Handicappedti is a workshop for professionals to be held at Planned Parenthood of Minnesota in St. Paul. Registration fee: $50, not
including lunch. For more information, contact: Department of Education and
Training, Planned Parenthood of Minnesota, 1965 Ford Pkwy., St. Paul, Minn.Tel. (612) 698-2401.
March 4
'The Perfect Fit" workshop will address postinstitutional planning for patients and families. It is designed for social workers, nurses and discharge coordinators in rehabilitation, home care and acute and long-term care.The fee is $50.Contact: Registrar, Sister Kenny Insitute. 800 E. 28th St., Minneapolis, Minn. 55407.Tel. (612) 874-4300.
March 28-29
"Student-Use Media For Severely Handicapped Learners: Microcomputers and You" is the theme of the Sixth Annual Symposium to be held at the Opryland Hotel, Nashville, Tenn. Emphasis is on how teachers can use new media and methods. Registration is $70. Contact: Instructional Media Production Project, Box 318, George Peabody College for Teachers, Nashville, Tenn. 37203.
.
YEARNING FOR LEARNING
The state Developmental Disabilities Program Office has acquired several education, training and resource materials. They may be borrowed from each of the regional Developmental Disabilities offices and from the state program office in St. Paul. Each month, this section of DD Information Exchange highlights selections from these resources to provide information to potential buyers.The following selections are available from the state DD program office only.
Behavior Modification Skills: A Complete Training Program,
P. L. Brown and R.J.Presble, Research Media, Inc., 1974. This is a-self-contained, multimedia program about the basics in behavior modification. The materials (including slide/tapes) are not Instructor-dependent, and no special background or training is required either to administer or take the program. The training package consists of five independent but interrelated units: Unit 1, Observing Behavior; Unit 2, Increasing 13ehavior; Unit .3, Decreasing Behavior; Unit 4, Crsatlng !Iew 3ehavior; and Unit 5, Implementing the System.
Communicatinq with the handicapped:
The Bottom Line, National Media Materials Center for Severely Handicapped persons, Vanderbilt University, 1981. This is an in-service training package for those who work with nonverbal handicapped children. The program addresses three questions: How can I get the children's attention? What are they saying? How can I tell? Sound/slide presentations reinforce the idea that all children, even the most profoundly retarded, do have some nonverbal communication. The more receptive teachers and caregivers are to this communication, the easier the daily tasks of care and education can become.
INFORMATION EXCHANGE
Published monthly by the Developmental Disabilities Program of the Metropolitan Health Planning Board
Metropolitan Council
300 Metro Square Building
St. Paul, Minnesota 55101
Toni Lippert: 291-6364
Tom Chapel: 291-6357
METRO DD PROGRAM NOTES
The Developmental Disabilities Task Force announces the following informational forums as part of its CAPACITY-BUILDING SERIES:
May 20 The Relationship of Evaluation and the Individual Prociram Plan (IPP)
1-3 p.m.
June 14 Medical Issues
2-3:30 p.m.
Aug. 9 Communication Disorders
2-3:30 p.m.
Sept. 9 Issues and Options Related to Elderly Mentally Retarded People
1-3 p.m.
The forums will focus on people with developmental disabilities,--those who have severe, chronic handicaps and are in need of specialized or adapted services. A special notice giving information on the speakers will be sent to readers prior to each event,
The forums are open to the public. They will be held at the Metropolitan Council, 300 Metro Square Building, 7th and Robert Sts.,St. Paul, Minn. Admission is free
and no registration is necessary. For more information, call Toni Lippert at (612) 291-6364.
Vol. 8. NO. 4.
April 1983
SERVICES
Hearing Aid Loan Program
Metropolitan Area residents with hearing impairments may be eligible to participate
in Courage Center's hearing aid loan program. The program lends reconditioned hearing aids to people who can't afford to buy them.
To be eligible for the program, a person must be reconrnended for a hearing aid by a Courage Center audiologist, financially unable to purchase a hearing aid and ineligible to receive funds for this purpose from public assistance programs or insurance companies.
For more information, contact the audiology department at Courage Center. Tel (612) 588-0811.
Speech Therapy Sessions
St. Paul Rehabilitation Center offers clinical speech and language therapy
services on Tuesday and Thursday evenings, 4 to 8 p.m. Services offered include speech and language screenings, evaluations, consultations, therapy and inservice training for people with communication disorders.
For information, call the center at (612) 227-8471 or 227-3779 (TTY).
Janitorial Service Available
community Employment, a county subsidized janitorial service, employs mentally retarded adults graduating from residential facilities who are living independently in the community. Construction firms or building managers in need of janitorial services are urged to contact this employment program, which is operated by AID Homes.
Current service area includes southern Ramsey and Hennepin Counties and northern Dakota County.
For further information, or for free service estimates, contact Karl Forsberg, AID Homes, Inc. at (612) 452-4264.
Vocational Skill Training Expands Program
Rise, Inc., a vocational skill training service, is offering a specialized program for assistants in auto body repair work. The program is conducted at two training sites: Blaine Auto Body and Spring Lake Bus Company. To be accepted in the auto body repair assistant program, an individual must complete a cocational evaluation at Rice, Inc., and demonstrate good work behavior.
For information on admission, or to use this service, call Barb Byars at (612) 786-8334.
Consulting Firms Offers Services
Life Resources, Inc. is a consulting firm that offers services to developmentally delayed or multi-handicapped people as well as to parents and staff who work with them. Services include individual assessment with follow-up, inservice training and workshops, and program consultation by qualified mental retardation professionals.
For more information, contact Linda Motoyoshi, OTR, Life Resources Inc., 17950 Jacquard Path, Lakeville, Minn. 55044. Tel. (612) 435-7551. Speech Therapy Sessions.
Travel Information Available
There are approximately 20 agencies and organizations ?n the United States that serve disabled travelers.. The central source for information about these groups is Mobility International USA (MIUSA). MIUSA is a nonprofit association offering information about travel opportunities, international conferences, a travel attendant network and student internships.Emphasis is placed on low-cost opportunities.
For further details, contact Mobility International, P.O. Box 3551, Eugene, Ore. 97407.
FOR YOUR INFORMATION
United Nations Proclaims Decade of Disabled
On Dec. 3, 1982, the United Nations proclaimed the period 1983-92 as the "Decade of Disabled Persons."
The General Assembly unanimously approved a resolution adopting a World Program of Action for Disabled Persons and companion resolutions on the Decade of Disabled Persons. Both urge the world conmwnity to intensify effort on behalf of the world's one-half billion people with disabilities.
In support of this program, the National Office on Disability, successor to the United States Council for the International Year of Disabled Persons, will inaugurate the Decade of Disabled Persons in the United States with a national disability awareness campaign. The campaign will include a national poster program sponsored by Eastman Kodak co*,a national Advertising Council television campaign sponsored by Westinghouse Corp. and a $25,000 comnunity awards program sponsored by the MacArthur Foundation.
For further details, contact Linda Schultz, National Office on Disability, 1575 NW. Eye St., Washington, D.C. 20005. Tel. (612) 435-7551.Speech Therapy Sessions
"Handicapped Parking" Bill Passed by Legislature
Because of a bill passed by the State Legislature recently, people who park illegally in parking spaces for the handicapped will have to pay a minimum fine of $25, an increase of $10 from the previous fine levied. Stricter enforcement of the law is also incorporated into the bill. The law also adds protection for disabled and nondisabled drivers by requiring that 'handicapped parking' signs be permanently fixed.Previously, cases have been cited
where an able-bodied driver parked in a'handicapped parking' spot after moving the pedestal-style sign to another space, whereupon the driver in that space received a ticket.
Governor Perpich is expected to sign the newly-passed bill shortly.
News from Value Village
People making a donation of used furniture in good condition to Value Village thrift stores in Minneapolis by May 15, are eligible to participate in a drawing for a weekend for two at the Sheraton Inn Northwest in Brooklyn Park. Value Village is operated by the Minneapolis Association for Retarded Citizens (MARC).Its proceeds support
their programs for the benefit of retarded people and their families.
The winning name will be drawn on May 26 during the association's annual meeting at Mount Olivet Lutheran Church. Donors don't have to be present to win.
For more information, call Mary Forberg at (612) 866-3633.
RECREATIONAL ACTIVITIES
Metropolitan Opera Performance
The Metropolitan Opera Co. of New York is offering a free benefit performance on May 17, 11 a.m. to noon, for children and adults who are mentally retarded.
Opera Performance (Continued)
The performance will be in the O'Shaughnessy Auditorium at the College of St. Catherine in St. Paul. It is an informal presentation of instrumental and vocal music by several members of the opera and has been well-received in past years. Reservations are required because of limited seating capacity; chaperone and transportation must be provided.
For more information, or for a sign-up sheet, contact Pat Schenk, Association for Retarded Citizens St. Paul, 65 E. Kellogg Blvd.. St. Paul, Minn. 55101. Tel. (612)
224-3301.
Benefit Performance
A benefit Performance of the play. "Of Feathers, Bells and Seashells;" will be presented by members of the Exceptional Theater April 22, 7:30 p.m. at the Hallie Q. Brown Community Center, 270 Kent St., St. Paul. Proceeds from the performance will be used for Camp New Hope's camper scholarship program.
Exceptional Theater gives mentally retarded people an opportunity to apply
their creative skills and talents in a theatrical setting.Performing with the
group will be the Flying Carpet Theater Company of Minneapolis and Adam Granger, formerly with the Powdermilk Biscuit Band.
Tickets cost $5 ($2.50 for low-income people). They will be sold at the door, but may be obtained in. advance by calling Greg Lais at (612) 827-4001. Parking is available and the building is accessible.
CAMPING INFORMATION
Campinq Program at Camp Courage
Children and adults with physical disabilities or speech, hearing and vision impairments are encouraged to register for sumner sessions at Camp Courage, which is near Maple Lake, and Courage North, which is on Lake George in northern Minnesota.
Camping Continued
In an accessible setting and under medical supervision, campers can enjoy traditional summer activities such as fishing, swimming, boating and horseback riding.
More information about the camping program is available from Capm Courage, 3915 Golden Valley Rd., Golden Valley, Minn. 55422. Tel. (612) 588-0811.
Camp Schedule Available
The summer schedule of Indi8an Chief Camp, a program of the Minneapolis Association for Retarded Cititzens (MARC), has been prepared. To obtain a copy, contact MARC, 2344 Nicollet Av. S., Minneapolis, Minn. 55404. Tel. (612) 5650.
New Camp for Children
The YMCA Camp Ihduhapi at Lake Independence west of Minneapolis is the site of Minnesota's first camp for children with epilepsy. The camp is for girls and boys, age 7 to 12.
The YMCA counselors will receive special training in the care and treatment of seizures. A pediatiric neurologist, nurses and other trained professionals will assist the camp staff.
This new camp is the result of the combined efforts of the Minnesota Epilepsy League, Gillette children's Hospital and the Comprehensive Epilepsy Program.
For more information, call toll-free (800) 292-7932 or, in the Metropolitan Area, 340-7630.
WORKSHOPS, CONFERENCES
April 22
"Cognitive-Behavioral Procedures for Working with Individuals Who are Mentally Retarded" is a conference that will focus on developing expertise needed to teach mentally retarded clients the more complex problem solving skills.
Conference (Continued)
The conference will be held at the Earle Brown Continuing Education Center on the St. Paul campus of the Universit of Minnesota.Registration fee is 52 which includes tuition, materials, lunch and refreshment breaks.
For more information, contact Mary Kay Wood, Continuing Education in Social Work, 197 Armory, 15 SE. Church St., M&eapolis, Minn. 55455. Tel. (612) 373
.
April 30
The Minnesota chapter of the American Association on Mental Deficiency
will sponsor a workshop on the use and monitoring of psychotropic drug use with people who are mentally retarded. The workshop will be held at the Plynouth Radisson from 9 a.m. to 3:30 p.m. Speakers and their topics include: Dr. Marilyn Jensen, St. Cloud State University, psychotropic drug action, side effects and research from experimental applied settings; Dr. Eric Errickson, St. Cloud State University, psychotropic drug use in state hospitals and comnunity facilities, and requirements for monitoring applied to the Welsch vs. Noot case; Dr. Ron Landblom, Ramsey County Mental Health Center, clinical uses of pyschotropic drugs; and John Kalachik, Cambridge State Hospital, monitoring of drug side effects and documentation of drug efficacy.
Cost of the workshop will be $35, which includes lunch. For registration materials contact Mary Tjosvold at Camilia Rose Group Home, 11800 Xeon Blvd., Coon Rapids, Minn. Tel. (612) 755-8489. Another workshop on this subject will be held in Willmar on May 14. For information on that workshop, contact Bev Hegleson, Presbyterian Family Foundation, 901 Memorial Pkwy., Willmar, Minn. 56201. Tel. (612) 235-5898.
May 13
See the state supplement for details on the conference, "Preventing Sexual
Abuse of Adolescents with Disabilities."
INFORMATION EXCHANGEDevelopmental Disability Program201 Capitol Square Building550 Cedar StreetSt. Paul, Minnesota 55101Minneaota Department of Energy,Planning and Development
Roger Strand612/296-4018
Editor
STUDY CONFIRMS EFFECTIVENESS OF FAMILY SUBSIDY
The Mental Retardation Family Subsidy progrm greatly enables families to care
For their mentally handicapped child at home. This is a major conclusion of a study scheduled for publication this month. The survey will be a part of the Policy Analysis Series: Issues Related to Welsch vs. Levine. It is cooperative effort between the Department of Family social Science at the University of Minnesota, the Department of Public Welfare and the Minnesota Developmental Disabilities Program Office.
Launched in 1976, the mental retardation family subsidy program has been an experimental attempt to provide financial incentives and home-based services to families with handicapped children in their own homes. The intent has been to prevent or forestall out-of-home placement in foster care homes or institutions.
Currently, 187 Minnesota families receive subsidies averaging $245 a month to cover the additional expenses incurred because of their child's disability. For example, a family can purchase respite care, special equipment, clothing, family counseling, camping, medical and dental care. The program is designed to complement and not duplicate other human services.
Telephone interviews were conducted with 37 families who have participated in the family subsidy program. The families were asked how the program enables them to cope with everyday life. Family functioning on which the subsidy has had the greatest effect include: purchase of special items needed by the child, purchase of respite care and an enhanced ability to attend to the child's needs.
April 1983
Family Subsidy Study(Continued)
. .
The study will be sent to those on the Series mailing list.Others may request copies by contacting: Developmental Disabilities Program Office, 201 Capitol Square Bldg.,
St. Paul, Minn. 55101., Tel. (612) 296-4018
NATIONAL CONFERENCE ON COMPUTERS FOR . PERSONS WITH DISABILITIES SET
The first interdisciplinary national conference addressing microcomputer;
technology for disabled persons will be held at the Leamington Hotel in ' Minneapolis, Sept. 12-14, 1983. It will be cosponsored by the University of WisconsinStout and the publishers of Closing" the Gap - (GTG), a special newspaper about computer% . for people with handicaps. Budd and = " Delores Haqen of Henderson. Minnesota. are
the publishers of CTG. "
According to Delores Hagen, "This conference is designed to encourage crosspollination of microcomputer technology information from several disciplines. So many of the hardware modifications are coming from the vocational rehabilitation side and so much of the control-software is coming from education, it's necessary to bring the two disciplines together to share information and learn what is new in both fields."
The conference will feature over 75 onehour sessions and 6 three-hour workshops. For more information, contact: Office of Continuing Education, University of Wisconsin-Stout, Menomonie, Wis. 54751, or Closing the Gap, P.O. Box 68, Henderson, Minn. 56044. Tel. (612) 665-6573
TRAINING OPPORTUNITIES
Continuing Education in Social Work offers inner Seminars at University of Minnesota.
A number of seminars are scheduled between me 6 and June 28, 1983 at the Nolte Center on the Minneapolis campus of the University of Minnesota.Some of the
topics that may be of interest to persons t the field of developmental disabilities are:
Marital and Family Counseling: Systems
Approach;
Overcoming Anger and Resistance in
Clients;
Supervision:The Interplay of Clinical
and Administrative Roles;
Financial Distress as a Counseling
Issue; and
Appearing in Court: Strategies and
Techniques.
For more information, contact: "Joyce Portner, Program Coordinator, Continuing Iucation in Social Work, University of nnesota, 107 Armory, 15 SE. Church St., nneapolis, Minn. 55455. Tel. (612) 373-5831.
Management Continuing Education Courses Offered at Rochester Center
The following courses will be offered in Rochester, Minnesota, for people in Business and human services:
April 12, Long-Range Planning;
May 5, Effective Decision Making; and
May 18, Time Management.
Dr. Nelson Otto, president of Anticipatory Sciences, Inc. will serve as instructor. Ir further information, contact:Beryl
man, University of Minnesota, Rochester !nter, 1200 S. Broadway, Rochester, Minn. i901.Tel. (507) 288-4584 or (612) 224
06.
PUBLICATIONS
Materials List 1982-83. compiled by the' United Cerebral Palsy Association. Provides
a number of resource; available through' this national organization, such as: publications,audio-visuals, reprints and displays.For a free copy of the list, contact:United Cerebral Palsy Associations, Inc., 666 E. 34th St.; New York, NY 10016
New Catalog:937 Bestsellers.The Government Printing Office in Washington D.C. has published-a free catalog of-nearly a thousand of the most popular books published by the U.S. Government. Contact; New Catalog, Superintendent of Documents, Washington, D.C. 20402.,
State Family Support/Cash Subsidy programs, by Marion V. Bates, is a report that summarizes laws, policies and programs in various states that-provide special support to families with a disabled member. It points out that in 1975 Minnesota became the first state to provide direct cash assistance to families;"(See feature article on page one of this statg. supplement.) For copies of this report contact: Wisconsin Council on
Centsitivity: A Self-Help Guide to Presenting Awareness Workshops was developedby the Center for education for Non-Traditional Students (CENTS) to teach postsecondary educators how to present workshops on physical disability. Available for $22 from: Jerry Bergdahl, 731 Minneapolis, Minn.Tel. (612) 330-1139 or (612) 330-1139 (TTY).
Sexual Abuse Pamphlets for Parents and Adolescents Minnesota Program for
Victims Of Sexual Assault (MPVSA) has developed two pamphlets on preventing
sexual abuse of adolescents-with disabilities: Are Children with Disabiiities-Vulnerable-to-Sexial Abuse? for parents, and Say "No Get Away Tell Someone"
MINNESOTA VOLUNTEER HONOREDVolunteer recognition award was recently presented to Gene Deterling of Orono, Minnesota, who founded the National Prader-Willi Syndrome Association (NPWSA).The award yas presented by Jean Elder, commissioner of the Developmental Disabilities Administration in Washington, D.C.Deterling helped to form NPWSA in 1975 while living in Harvard,Massachusetts, prior to moving to Minnesota.Membership of the organization has grown to 900 individuals and families from all 50 states' and eight other countries. The organization has maintained the volunteer spirit of its founder by not relying on outside funding sources and is run completely by volunteers.
Prader-Willi Syndrome is an uncorrmlon condition resulting from a birth defect that occurs Sporadically with no known cause: It is characterized by lack of muscle tone, lack of sexual development, dysfunction of the central nervous system and symptoms such as insatiable appetite, mental retardation and behavior problems.
For more information, contact the National Prader-Willi Syndrome Association, 5515 Malibu Dr. Edina, MN 55436. Tel. (612) 933-0113.
EVENTS
April 9
The Deafness Education and Advocacy Foundation )D.E.A.F) will hold its third annual meeting and banquet at the Fox and Hounds restaurant, Interstate Hwy. 35E and E. Larpenteur St., St. Paul, Minn. The guest speaker will be Dr. Robert G. Sanderson, Utah Department of Vocal Rehabilitation.
The social hour will begin at 5:30 p.m. and the banquet at 7:30 p.m. Cost: $14. For more information contact: D.E.A.F., 47 SE, Bedford St., Minneapolis, Minn, 55414
Events (Continued)
May 13
"Preventing Sexual Abuse of Adolescents with Disabilities,"Holiday Inn, Nicollet Av.,Minneapolis, Minnesota, is a one-day conference to present innovative materials for education of disabled adolescents and their parents about preventing sexual
abuse.The conference is designedfor those who work closely with disabled adolescents.The.$20 registration fee includes conference materials, lunch and coffee.
Contact:Bonnie O'Day, Coordinator, Sexual Abuse Education for Disabled Adolescents Project, Minnesota Program for Victims of Sexual Assault, 430 Metro Square Bldg.,
St. Paul, Minn. 5510"1. Tel. (612) 296-7084.
May 23-27
"PASS Introductory Workshop," Holiday" Inn, Stevens Point, Wis. The methodology of
using Program Analysis of Servicti:Systems (PASS) will be presented at this " intensive workshop.For information contact:Terri Johnson, Wisconsin Coalition for Advocacy, 30 W. Mifflin St., Suite 508, Madison, Wis. '53703: Tel. (608) 251-9600..
July 19
"Workshop on Physical and Medical Complications of Educating the Handicapped" will be held at St. Cloud State University.This workshop is designed to train individuals in an integrative educational treatment approach with a total child focus.Dr. Eva Gadberry will be the instructor.For more information, contact: Department of Special Education, St. Cloud State University, St. Cloud, Minn. 56301.
YEARNING FOR LEARNINGThe state Developmental Disabilities Program Office has acquired several education, training and resource materials.They may be borrowed from each of the regional Developmental Disabilities offices and from the state program office in St. Paul.Each month, this section of DD Information Exchange highlights selections from these resources to provide information to potential buyers.-1Methods of Instruction for Severely handicapped Students, W. Sailor, B. Wilcox, and L. Browrids.), Paul H. Brooks,
Publisher, 1980.Trends "and implications for the 1980s in serving persons with severe handicaps are explored. This book reveals newt echnologies developed during
the east decade. The book is intended to
equip teachers with a new set of tactics for the delivery of educational programs in public schools and the comnunity. The 10 chapters by contributing authors address assessment, instruction, measurement and research.
This selection may be obtained from the regional developmental disabilities offices as well as from the state 00 program office.
Metropolitan Council DD Program 30d 'Metro Square Buildfng
Association,1982. Vol. I., Mental Retardation<1971-1980. Vo~ Learnin
dand Communication Disordersl 1970-19
The significance of theoretical and .
empiri~al research often becomes apparent '. only with" time.An historical perspective
is required to detect trends and developing areas of study.For this reason, a 10-year
retrospective bibliography is an . appropriate method for revealing.
developments in the literature and the ' ,
current understanding in a specific area; F
Each volume contains 3,000 abstracts, arranged in three major areas: 1) ~heories.; research and assessment; 2) treatment arid rehabilitation; and 3) educational issues. Available from the state DD program office only. Tel. (612) 2-18. -:.
Bulk Rate U.S. Postage
PAID Mpls. Minn.
Permit No. 1610
"....-.,
--- -:.
. .
,
Published monthlyMay 1983 Vol. 8. No.** * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * * *5.INFORMATION EXCHANGEMetropolitan Council300 hletro Square Building St. Paul, Minnesota 55101Toni Lippert: 291-6364 Tom Clliipd: 2'31-6357by the Developmental Disabilities Program of the Metropolitan Health Planning Board* ********************************The Metro Region Developmental Disabilities Task Forceof theMetqgpolitan
Health
council
i.nvitai you ZO a Public Fom.un & ti CAPACITY-FMILVING SEUIES. . .
ASSESSMENT AND PLANNING FOR INDIVIDUALS;
DOES NEED = ISP/IW*?
*lSP- Individual Service Plan;IPP Individual Plan
p$~j-s~ :
*
*
*
Gordon Krantz Technical. Consultant, MR Progmm Division Department of Public Welfare
The.Lt Raktiotitipb to A&5udmwt" James Nelson School Psychologist, District #916 and
Administrator of ACR Hcmes, Arden Hills, .Minnescta
"HOW to bhtit cOOh-OtI bdwwn IPP'A:
TRO DD PROGRAM NOTES
ditions to Curriculum Library
e Metropolitan Developmental Disabilities ogram has added two new books to its rriculum library.They are:
Guide to Minnesota Foundations and Corporate Giving Proqrams, University of Minnesota Press; and
The Handicapped Source, A Cataloq of Computer Products and Services, Intelligent Consumerlectronics.
e books may be borrowed by Metropolitan ea residents for three weeks.
IR YOUR INFORMATION
minations Souqht for Award
lurage Center is seeking nominations for e Rose and Jay Phillips awards, granted nually to five men and women who have hieved outstanding success in their cations despite severe disabilities. mination forms may be obtained from urage Center,3915 Golden Valley Rd.,
Iden Valley, Minn. 55422. Tel. (612) 8-0811, Ext. 217.Nominations must be
ceived by June 1.
formation Needed
member of the National Association for Ie Severely Handicapped is looking for terials on child rearing geared toward rents who are mentally handicapped. Ioks, other publications, slide programs I movies to help with training are
!eded.
ease send information to Terri Bennett, larillo State Center for Human !velopment, P.O. Box 3070, Amarillo, Tex. 1116.
*ansit Policy
le Urban Mass Transportation Iministration announces that transit !rvices for handicapped people such as ial-a-ride, shared ride taxi, subscription 1s, van pools and other shared transit
Transit Policy (Continued)
arrangements are eligible for federal financial assistance.
The administration states that this type
of transportation is more cost effective and better suited to specialized needs, especially in rural and low-population areas where mass transit is often not available.Federal funds are available for
nonprofit agencis to plan and operate transit services, if it is decided locally that the agencies'services are best served
by shared transit services.
For more information, contact Kenneth E. Bolton, Office of Budget and Policy, Rm. 9311, 400 SW. 7th St., Washington, D.C. 20590.
State Hospital Advocates Will Report to
Bfl
Public Welfare Commissioner Leonard Levine announced that patient advocates in Minnesotats eight state hospitals and two state nursing homes will report to his office instead of hospital administrators. Internal accountability of advocates in state hospitals has been questioned by consumer groups such as the Mental Health Association of Minnesota and the Association for Retarded Citizens Minnesota.
Advocates have been reporting to hospital
administrators since the positions were established in 1972. According to Mental Health Association's newsletter, advocates were hired and evaluated in job reviews by the same official they often dealt with over treatment issues for a particular patient.Projected benefits of the
reporting change are:increased credibility of the advocates, better supervision and trainihg, and less pressure to succumb to institutional pressures.
Epilepsy Leaque Seeks Research Volunteers The Minnesota Epilepsy League needs
volunteers to participate in an anticonvulsant drug study at the Epilepsy Treatment Center, Veterans Administration Medical Center, in Minneapolis.
nil epsy Study(Continued )
lie study concerns the effects of antionvulsant drugs on human chromosomes and eproduction mechanisms of the blood
ells.
nvestigators are seeking male volunteers, ged 20 to 45, who have been using phenobarbital, Mysoline,Tegretol, Dilantin, or
ny combination for these drugs for at
east two years.
ISO needed are men in this age group who ave had seizures, but have never been on
ny medication to control them.
he study requires an interview and one mall blood sample from the volunteers. esults of the chromosomal analysis will be vailable, free of charge, to each articipant.
or further information, call Karen Moore at 612) 725-6767.
*OUP Home Tours
11 interested people, especially parents
f mentally retarded adolescents and young dults, are invited to tour group homes
nd apartments for mentally retarded
dults.The tour, which will be conducted y the parent support and consumer omnittees of the Dakota County Association or Retarded Citizens (ARC), will begin at
p.m. at the ARC office, 33 E. entworth, Suite 105, W. St. Paul. articipants will car pool to group homes.
he following homes are included in the our:
hompson Avenue Group Home, West St. paul; -serves moderately retarded residents who
learn basic domestic skills;
ummit Residence, South St. Paul;
-15 residents who are mi idly or moderately
retarded live in apartments and learn independent living skills; and
orfzon Apartments, !dest St. Paul;
-15 residents who are mildly or moderately
retarded learn independent living skills.
Group Home Tour (Continued)
After the tour, a representative from AID
Community Living Services will talk to tour participants at the ARC office. Community Living Services is a counseling service for adults living in the comnunity in their own
\
apartments.
To sign up for the tour, call the ARC office at (612) 457-2588. Deadline for registration is May 13.
Civil Rights Bill Introduced
Disabled people would get more state
civil rights protection against discrimination, according to a bill introduced in the Legislature.Evidence
has shown that protection can be provided at little or no cost.The bill was
introduced in the Senate by Sen. Spear and in the House by Rep. Greenfield. Its first hearing was March 16.
The bill, drafted by the Minnesota State Council for the Handicapped, amends the state Human Rights Act to incorporate many concepts from a federal civil rights law, Section 504 of the 1973 Rehabilitation
Act.The major concept to be added to state law, deals with provision of reasonable accommodations.Basically, this means changes that allow a disabled person
to perform equally on the job. In the proposed amendment,employers are required
to talk to the disabled employee to decide what reasonable accommodations are needed. No acconrnodation need be provided if it poses an 'undue hardshipn on the employer.
Specific steps to determine undue hardship are incorporated into the amendments. Examples of reasonable accotnnodations are: --provision of ramps, brained materials,
flexible work hours, restructuring of tasks and job sharing.
A recently published study by the Department of Labor reported that 51 percent of accommodations cost nothing and 30 percent cost between $1 and $500. Most of the employers surveyed said the accormnodations were not burdensome.
.
.
':1 Rights Bill (Continued)
sr amendments in the bill include tectton to ensure nondlscrirrtlnation in
)lic services and public transportation. ?cifically, services must be provided in ;imilar geographic area, with equivalent Jrs, fares, trip restrictions and reponse les as is provided for non-disabled
~ple in the ccmnunity.
l further information, contact Patti
jue, Minnesota State Council for the ~dicapped, 208 Metro Square, 7th and
~ert $ts.,St. Paul, Minn. 55101. Tel. ~2) 297-2029, or toll-free, (800) 652-9747 ice and TDO.
)KS, PUBLICATIONS
Iletins on Home Accessibility Available
? Minnesota Housing Finance Agency (MHFA) ; prepared two publications on making lgle-family homes more accessible for *sons who are physically disabled.
? Home Accessibility Information Series
a set of nine bulletlns explaining how modify an existing single-family ~ome to
:rease accessibility. Each bulletin mtifies the basic design principles tolved, general construction details to 11ow, and estimated costs. Charge for the *ies is $4.50, plus $1 for postage and Idling.
? Cost of Access~bility in New Single nilyHomes is a30-page report that
sluates how a new construction design can
modified to provide accessibility for a rson with a physical disability. The port also discusses costs, and
nstruction elements including unit size, terior features and interior space, rdware and fixtures.The report costs
Yplus $1 for postage and handling.
rther information may obtained from the FA Home Improvement Division, 333 Sibley
St. Paul, Minn. 55101. Tel. (612) 29666.
WORKSHOPS, CONFERENCES
A conference on "Genetics of Developmental
Disabilities--Factors Influencing Child Development,M will be held at the Atwood Center at St. Cloud State University. It
will provide an overview and update of genetics and developmental disabilities
for educators, parents and health professionals.
Key speakers include Dr. Richard King, director of Minnesota Genetic Services program, and Dr. Richard Nelson, director
of the Comprehensive Developmental Disabilities program at Gillette Children's Hospital in St. Paul.
The registration fee, ($10 for educators " and health professionals, $5 for parents
and students), covers all program
materials, refreshments and lunch. Preregistration is required.
For further information, contact Ed
$ootsman, Central Minnesota Health Systems Agency, 113 Division St., Sauk Rapids,
Minn. 56379, tel. (612) 253-2930.
May 21
The Special Education Advisory Council (SPEAC) of the Minneapolis Public Schools will sponsor a conference exploring current and possible future use of computers in the education of students with handicaps. The conference will be held at Michael Dowling School, 3900 W. River Pkwy., Minneapolis, from 9:30 a.m. to 12:30 p.m.
No preregistration is required and there is no charge.For more information, call
Poll Edmunds at (612) 827-2966 (days), or (612~ 823-9482 (evemin s), or Dennis
fAhlburg at (612) 373-422 (days), or (612) 734-3002 (evenings).
May 22-27
A five-day 'PASS Introductory Workshop,U assessicg service quality from a normalization perspective using Program Analysis of Service Systems (PASS), will be held at the Holiday Inn, Stevens Point, Wis.
For more information, contact Barb Billings, Wisconsin Coalition for Advocacy,
30 N. Mifflin St.,
Suite 508. Madison,
Wis.Tel, (608) 249-5747 or (608) 251-9600.
SUMMER CAMPS AND RECREATION OPPORTUNITIESREPRINTED FROM PARENTTALK, COURTESY OF*T?~T-I?XTWITA. ,-A-CST. PAUL ASSOCIATION FOR RETARDED CITZENS-Cilfllp Friclldslii[> - AlllIillldLll Gs W Ages 5 and up, iIl] levels of MRSessions of 5+ days and one 11 day scsslull cost:$170 per stissiun
contact:Bev Robcrcsun
Rt. 3 BOX 162 Annandale, MN 55302 (612) 274-8376
Indian ,Chlef CamR- Eden Prairie, MN Ages 5 and up, all levels of MR Sessions of 6 days
Offerings include Theatre in che Woods,
sports & Health Camp, Boundary Waters
Canoe Lhst:
trips and Diiy"Camp
S160 for residential camp session $85 for 1 week day camp
Kim Keprios
ARC Millncupolls
2344 Nicullcc AVC. S.
MpLs. , MN55404 (612) 874-6650
Camp New Hope- McGregor, MN Ages 6 and UP, all levels of ~
Sessions of 5-6 days
Offerings include regular camp and
Excepclonal Theatre Workshop cast:$165 for regular camp session
Contacc: Greg Lais
2929 4th Ave. S.
(612) 827-4001
(218) 426-3560 (Camp)
camp Winnebago- Caledonia, MN Ages 6 and up,all levels of MR
Sessions of 6 days
cost:$175 per session Contact: Karen Hurray
Rt.1, Box 44 Caledonia, MN 55921 (507) 724-~351
Camo Hmd In Hand - Marine-on-St. Croix Ages 7-21, aUCiSCiC & similar di~tibilities Two one-w~ek sessions
L(3CAL DAY CAMPSRL)stivil Ic Dny CLIIIIPAges 16 and up, ambu I ;IL ,JryLocated at Central Park Stw 1 cur, Rosev 11 lc August 1-26
cost :$35 resident, $75 non-rusldcnt Contact: Cloria Johnson (738-7894)
Dilk~t;l County ARC- Rccrcatiun UIIL Iml ted
Various programs of ferccl during the sunmw r
dnd year-round for muncal ly retarded individuals.
Contact: Gail Colton (457-2588)
Dakota County ARC
Sunsll Inc Cunncct ion D:ty C~un~
Ages 4 and up, autistic and similar
disabilities Located at Armatage Neighborhood Center, Mp Is. One month (August)
Transportation provided
Contact: Mary Kay Carney (560-5330)
Alternatives for Autistic People
Maplcwood Day Camp
Ages 8-20, moderately rct~rded
Four weeks (during August)
Contact: Pauline Adams (770-4574)
Maplewood Parks & Recreation
St. Paul Adaptive Recreation
Physically and mentally handicapped
children and adults
Variecy of weekly recreation and social
programs Contact: Ev Senty or Marc Toupiil
771-6336
CAMP FIREDAYCAPP- Chisago City Mildly to moderately retarded girls and
boys mainstreamed with other campers Grades 1 through 6
TtJo four-day sessions: June 21-25 and 26-30 cost:$75 per session
Contact: Camp Fire (771-0313)
Wilder Forest- Marine-Ou-St. Croix, NN Outdoor program rcsourccs for group cilmping
and cnvironmuntal education.Includes a working farm, hiking truils, group campground, cabins and a central meeting and food building.
Families and groups welcome for day visits,
weekend trips or weekly programs. Fees are minimal
Contact: Wilder Forest
14189 Osclund Trail N. Marine-On-St. Croix, MN 55047 433-5198
C:uup du Nerd Ely, MN
YMCA camp open to all families md groups.
Contact: YMCA (292-4120)
Camp Northlnnd Ely, MN >"MCA camp serv~ng families and gruups.
Pusslbly some programs designed fur people and families with special
needs. Contact: YMCA (292-4100)
Tours Exceptionable
"Travel tours in a motor home for mentally
retarded people. Destinations include Grand Ole Opry,
Wisconsin Dells, Michigan and more. From 3 days to 8 days.
cost:variable Contact: Mel and Fluy Christianson
P.O. Box 1
Chaska, NN 55318
448-5503
448-5538
Search Beyond Adventures
Wilderness crlps for gKoupa.Special programs for mentally retarded people including BWCA canoeing, Lake Superior Sailing, backpacking and winter trips.
cost:variable Contact: Steve Anderson
1934 Haves St. NE
Mpls. , MN55418 778-7634
vINFORMATION EXCHANGE %%=
eA
Developmental Disabilities ProgramMinnesota Department of Energy,MfM,Ieor
201 Capitol Square BuildingPlanning and DevelopmentT,".,,O*N 550 Cedar StreetIllk " %::!.
St. Paul, Minnesota 55101Roger Strand612/296-40181A :'%%!:
Editor
SPECIAL EDUCATION FINDINGS SUGGEST
SHIFT TOWARD MORE RESTRICTIVE PLACEMENTS
A shift toward more restrictive educational placements of handicapped children by Minnesota public schools appears to have occurred in the past year.The special education section of
the Department of Education has obtained this information from preliminary data received from the annual unduplicated child count.This shift reverses a trend
begun about six years ago when Public Law 94-142 ( the Education for All Handicapped Children Act) required that handicapped children be educated in the least restrictive environment.
In 1982 there were 62,189 special education students placed in regular classes.That figure dropped one year
later to 60,512, a decrease of 1,677 students.At the same time, the number
of children placed in schools for handicapped children only increased from 2,011 in 1981 to 4,129 in 1982, an increase of 2,118 students.
For more more information, contact: Special Education Section, Minnesota Department of Education, Capitol Square Bldg., 550 Cedar St., St. Paul, Minn. 55101.Tel. (612) 296-4163.
ADDITIONAL COPIES OF 'REVIEW FOR POLICYMAKERS' AVAILABLE
The executive director of the
Developmental Disabilities, Colleen Wieck, recently announced that another 2,000 copies of the following publication will be available this month:
Developmental Disabilities and Public Policy: A Review for Policymakers. 'I
would stronql.y encouraqe parents to
obtain and ;x~mine thi~ publication," Wieck said.Free copies may be obtained
by writinq to:Developmental Disabilities Program, 201 Capitol Square Bldg., 550 Cedar St.,St. Paul, Minn. 55101.
May 1983
STUDY DOCUMENTS PERCEIVED TRAINING
NEEDS OF PERSONNEL IN RESIDENTIAL AND DAY PROGRAMS
Preventing behavior problems topped a recent survey of needs listed by Minnesota residential and day program administrators and staff.
From a statewide random sample of 312 direct care staff members, the following topics were selected by the highest number of respondents, indicating areas of greatest need for in-service training:
--Preventing behavior problems (79
percent); --Designing and developing behavior
management programs (64 percent); --Current information on variety of
percent); and --Handling aggression, (59 percent).
The survey results of Minnesota comnunity residential facilities and development achievement centers (DACS) will soon be published as number 14 in the Policy Analysis Series: Issues Related to Welsch vs. Levine.The report is entitled
"Training Needs as Perceived by
Residential and Day Program Administrators and Staff."
The study will be sent to those on the Series mailing list. Others may request copies by contacting:Developmental
Disabilities Program Office, 201 Capitol Square Bldg.,St. Paul, Minn. 55101.
Tel. (612) 296-4018.
,
.
.
ECONOMY CONSTRAINS DAY AND SHELTERED EMPLOYMENTPROGRAMS
"Day and work programs for developmentally disabled people are among comnunity services that have felt the impact of poor economic conditions and budgetary cuts during the last two years. Lack of movement to less restrictive settings and insufficient amounts of appropriate work for developmentally disabled adults are system-wide problems that appear to have been exacerbated recently by budgetary constraints and difficult economic conditions.ti
These findings come from two recent studies conducted by the Developmental Disabilities Program Office. The studies
are:Policy Anaiysis Papers No. 16, regarding sheltered workshops; and No.
&.an updated study of development~
achievement centers (DACS).
Nearly one-third of the DACS reported operating deficits for 1982. Total statewide enrollment of 5,399 individuals in DACS indicated an increase of 245, or 4.7 percent over the 1981 figure. Despite the increased enrollment,
the number of individuals on waiting lists to receive DAC services did not decrease appreciably from 1981. A total of 402 persons (82 children and 320 adults) were on waiting lists at 28 DACS. (Metropolitan Area DACS accounted for 89 percent of people on waiting lists.) Among those currently served, 528 adults in OACS are ready for placement in either sheltered or competitive employment.
The 25 sheltered workshops surveyed indicated similar operational deficits, projecting an overall loss of over $200,000 in 1983.Several agencies cited
a lack of work as a primary reason for staffing and program changes.Individual
work program hours declined but the total number of clients served increased. A total of 637 clients currently participating in 25 sheltered work programs" are ready to move to another work setting.At the same time, 87
clients are awaiting entry into sheltered work settings.
Day and Sheltered Emplowent Programs IContinued)
These findings also point out the
interconnections between components of the comnunity service system.
The studies will be sent to those on the Series mailing list. Others may request X by writin :
NEW AGENCY TO SERVE PEOPLE WITH DUAL DISABILITY ES
In Touch, Inc., is a private, nonprofit agency that will address the needs, problems, issues and concerns of people who are both deaf and blind.The goal of
In Touch is reduce the extreme isolation that this segment of the population experiences.Besides providing
information and referral services, In Touch plans to help develop services that will increase opportunities for people with both disabilities to become more independent.
The agency will also offer specialized
instruction and counseling in the areas of:
--Adjustment to deaf-blindness; --Communication skills;
--Use of adaptive equipment and aids; --Leisure and activities of daily living;
and --Orientation and mobility.
For more information, contact: In Touch, Inc.,310 4th Av. S., Suite 310,
Last December, Federal District Judge Earl Larson ordered the Social Security Administration to restore supplemental security and disability insurance benefits to people with mental disabilities whose benefits had been wrongfully denied or terminated. The order affects all mentally disabled persons under social security programs in Illinois, Indiana, Michigan, Minnesota, Ohio and Wisconsin. (Persons with mental retardation are probably not included in this action suit.
The Mental Health Law Project in Washington, D.C. is publishing a series of memoranda designed to inform people about this class action.
In order to receive this memorandum series, contact: Mental Health Law Project, 2021 NW. L. St., Suite 800, Washington, D.C. 20036. Tel. (202) 467-5730.
TRAINING OPPORTUNITIES
Volunteer for Minnesota Project Schedules Reqional Workshops
"Solving Corrrnunity Problems by Building Community Partnerships" is the theme of nine regional workshops to be sponsored by the Minnesota Office of Volunteer Services and the Volunteer for Minnesota Project.These one-day workshops will
provide conmwnity leaders with tools
and skills to build community coalitions, to cooperatively identify needs and resources and to plan for organized connunity change.Dates and locations
For more information, contact: Minnesota Office of Volunteer Services, 200 Administration Bldg., St. Paul, Minn. 55155. Tel. (612) 296-4731 or, tollfree, (800) 652-9747.
University of Minnesota Management Seminars Set for May and June
A total of 16 seminars will be offered by the continuing management education division at the University of Minnesota in Minneapolis.A sample of the one- and
two-day seminars of interest to people in the field of developmental disabilities include:
--May 4, "Effective Delegation: The Art
of Holding on While You Let GoU; --May 6, "Time Management for Managers"; --May 11," Females, Management, Middle
Agen; --May 24, "How Computers Work";
--June 8,"Assertiveness Training for Managersn; and
--June 28,"The Manager as Coach: Correcting Performance Problems."
For additional information, contact: Terry J. Henry, Program Director, Continuing Management Education, 338 Nolte Center, 315 SE. Pillsbury Dr., University of Minnesota, Minneapolis, Minn. 55455.Tel. (612) 373-3680.
CONFERENCES
May 12-13
A workshop entitled "Serving the Handicapped in the Community," sponsored by the Arrowhead Regional Development
Commission (ARDC) and Duluth Regional Care Center, will be held at the Holiday Inn-Duluth.
It will focus on the importance of community-based service development for persons with special needs.
For registration or program information, contact: ARDC Developmental Disabilities Program at (218) 722-5545 or, toll-free, (800) 232-0707.
,YEARNING FOR LEARNING.I;The state Developmental Disabilities Program Office has acquired several~ education, training and resource materials. They may be borrowed from each ~
~ of the regional Developmental Disabilities offices and from the state program !
~ office in St. Paul.Each month, this section of DD Information Exchange !highllghts selections from these resources to provide information to
; potential buyers.
I
Manaqing and Employing the Handicapped: The Untapped Potential, G. Pati, J. Adkins, Jr.,and G. Morrison. Brace-Park Press,
1981. This book offers a good business sense approach to the employment of qualified handicapped persons. It is directed toward employers, rehabilitation professionals, and other interested persons. A basic premise is that handicapped people constitute an underutilized human resource of great potential to an employer and to society. For every dollar spent on rehabilitation, employed handicapped people return between eight and ten dollars in the form of taxes. Once they are an integral part of a productive labor force, working handicapped people bring about savings in welfare and social security payments. Available from
the state DD p~ogr~m office only. Tel, ( 612)~-4018.
Metropolitan Council DD Program "
300 7th St.
Metro Square Building and Robert Sts.
Paul, MN 55101
Succesful Management by Objectives: An Action Manual, K.brecht,Prentice Hall,
lThe reader who is looking for
another cookbook on 'how to install an MBO system" will not find it in this book. However, the reader who wants to know how to manaqe by objectives will indeed find a thorough treatment of that subject. The author stongly encourages focus on people~ not on systems:"If we can develop a
fundamental approach to organizational life that promotes payoff-oriented thinking, rewarding human environments in our organizations,and honest respect for the
needs and potentials of American workers, then we will be free to use our systems and methods, rather than be ~d by them."
Available from the regional DD offices as well as from the state DD program office.
.
.
1Bulk Rate
U.S. Postage
PAID Mpls. Minn.
Permit No. 1610
D,-"--f..q ~NFoRNIAT1oN::... d EXCHANGE+..s...TiPublished monthly by the Developmental Disabilities Program of the N1etropolitan Health Planning BoardN1etropolitan Council300 Metro Square Building St. Paul, Nlinnesota 55101 Toni Lippert: 291-6364 Tom ChapeI: 291-6357ETR() DD PROGRAM NOTESrivate Sector Assistance W&kshop Set or Marchhe Metropolitan Developmentalisabi 1 i ties Program is sponsoring "The rt of Getting Resources --A Workshop on rivate Sector Assistance JO on Friday, arch 25, 1983, from 9 a.m. to 2 p.m. at river Hi 11s Cornnunity College. egistration forms have been mailed to 11 Metropolitan Area recipients of this
sletter.Participation is limited to u people in the DD field. Deadline
or registration is March 17.
he workshop title was changed to reflect ne addition of information about other ongrant resources available from the rivate sector. Workshop speakers are: artha Butt, Northwest Area Foundation; ohn Kostishac~, Otto Bremer Foundation; an Schwarz, Medtronic Foundation and olleen Naughton, Management Assistance
reject.The workshop schedule wi 11 rovide time for questions and discussion ith the speakers.For more information,
all 291-6363.
Copies of DD Regional Problem-Solving Proposals from the Seven-County Metropolitan Area must be submitted to the Metro DD Regional Program, Metropolitan Council for an A-95 review by April 15, 1983. Send to: Metro DD
rogram, 7th and Robert Sts., St. Paul? Minn. 55101.
Vol. 8 No. 3.
March 1983"
Panel to Discuss Extension of Medicaid Services
The Metropolitan Region Developmental Disabilities (DD) Task Force invites the public to attend a panel discussion on "Extendin the Use of Title XIX
7(Medicaid for Additional Comnunity-based DD Services."Speakers include Sue
, Abderholden, Association for.Retarded
Citizens Minnesota; Bev Driscoll, Association of Minnesota Counties and Frank Giberson, deputy commissioner of the Department of Public Welfare.
Panel members will address the issues of whether to extend the use of Title X1X funds, or whether the funds should cover a broad array or only a few services. The panel will begin at 2 p.m. on April 12 in the Council Chambers of the Metropolitan Council, 300 Metro Square Bldg., 7th and Roberts Sts., St. Paul, Minn.For more information, cal 1 291
6363.
NEW RESOURCES
Lending Library Established
The Conununity Health Education Network (CHEN), a program of the Association for Retarded Citizens Minnesota, has established a resource lending library. Materials may be used by staff working with residents in Semi-Independent Living
.endinq Library(Cent inued )
services (SILS) or in Intermediate Care 'acilities for the Mentally Retarded (ICFfRs) that provide supervised apartment:raining programs. Other materials for lse by residents of these programs include workbooks and easy-to-read ~iction.
ropics include living skills, socialization, sexuality, health care, :ooking, nutrition and employment. iesource materials may be borrowed for :hree weeks from the CtiEN office. Write r call Sally Swallen or Judy Crawford at 1225 Lyndale Av. S., Minneapolis, Minn. j5408.Tel. (612) 827-5641 or, toll
'ree, (800) 582-5256.
;onsortium Institute to Provide Two ~orkshops
~he U.S. Department of Education has movided funds for the University of !innesota Consortium Institute for the [ducation of the Severely Handicapped. ~he funds are for a five-year period to :onduct research on educational interventions for severely handicapped ;tudents. The institute will identify tays that provide opportunities for jptimal integration with nonhandicapped ~eers in school activities and in
l ecreation and employment situations.
)r. Luanne Voeltz, director of the ]roject, plans to work with parents and ;ervice providers.Among the institute's
'irst act+'ties will be a program on 'Component. ~f Vocational Education
)rogrms~ presented by Dr. LOU Brown> ?
lational authority in vocational training
'or severely handicapped people. This ;ession will be held on Friday, March 18, 'rem 7 to 9 p.m. at the Earle Brown ;enter, University of Minnesota St. Paul :ampus.Staff from developmental
~chievement centers, work activity :enters, sheltered workshops. residential 'acilities and parents of retarded ]ersons are welcome to attend. Admission is free.
Consortium Institute (Continued)
The second event on Saturday, March 19, 8:30 a.m. to 5 p.m. at the Earle Brown Center, is open onl to. parents, foster
+parents, or guar ians of severely handicapped persons. Dr. Ann Turnbull, University of Kansas, will discuss flexible models of parental involvement in the education process.Dr. Lou Brown,
University of Wisconsin-Madison, will discuss integration in domestic, leisure, comnunity and vocational settings. Participants will receive information on how to evaluate the quality of educational programs. The parent workshop is cosponsored by the Association for Retarded Citizens Minneapolis.Admission is free.
To register,or for more information,
call (612) 373-5608 or 373-5609.
NEW SERVICES
Minnesota Epilepsy Leaque Offers New 3ervice
The Minnesota Epilepsy League now provides a coat check service for visitors to the Minnesota State Capitol. The coat check area is located on the ground floor, one floor directly below the main entrance at the carriage entrance on the south side of the building.The service is available
Monday through Thursday from 7:45 a.m. to 6:15 p.m. during the legislative session. Charge for the service is 50 cents.
The League also offers two items printed in braille.One is a pamphlet,
'Questions and Answers about Epilepsy" and the other, a wallet-sized first aid card. To obtain either of the above items, call the Minnesota Epilepsy League.Tel. (612) 340-7630, or toll
free, (800) 292-7932.
Housing for Handicapped People Now Under Construction
* Nati_onal Ataxia Foundation has hired Do~inium Management Service to market and manage 20 units of housing for people who are handicapped. The two housing complexes, now under construction in
St. Paul and Bloomington, are scheduled for occupancy in early spring.
The units are designed for handicapped
)ersons who are capable of independent living, or who have personal aides.
'or more information, call oominium
~anagement Service Inc. at (612) 5591495.
'OR YOUR INFORMATION
\utism Library Donated
"he Twin Cities Society for Autistic
;hildren, Inc.,recently presented a ;pecial research collection on autism to
' lette Children Hospital. The autism ,~rary duplicates a reference collection
,t the University of Pittsburgh graduate chool of public health. Publications nclude the fields of medicine, ducation, nutrition and psychology. arents, teachers, students and rofessionals may use the collection at illette Children's Hospital, University v. and Jackson St. in St. Paul.
rts Festival for Mentally Retarded
eople Set
he Minnesota Alliance for Arts has warded the Association for Retarded
itizens (ARC) in Anoka County a grant to ponsor an arts festival for mentally starded people.Titled "Arts Alive,"
he project will consist of a series of Our classes in aerobic dancing, mime and :rylic painting.The classes will start
~ April and will culminate in a one-day ~stival in mid-June.During the
xtival, class participants will display
ir achievement and demonstrate their .~ly acquired skills.
Arts Festival (Continued)
Registration is limited to teenagers and
adults.For information on fees, contact ;~~ N&in Anoka County office at (612)
.
Program for Parents of Retarded Children Set
"A Family Approach to Child ManagementU is the title of a course starting this month for parents of retarded children. Joann Sorem, family counselor with the Association for Retarded Citizens Minneapolis, will be the group leader. The course will assist parents to develop new skills for teaching appropriate behavior, or to change inappropriate behavior using positive management techniques.
All programs will be held on Friday
evenings, 7-9 p.m., at Arlington Hills Presbyterian Church, 1275 E. Magnolia St.,St. Paul.
The program schedule is as follows:
- March 18--What is problem behavior?; - March 25--Identify the ABC pattern;
- April I--(Good Friday, no program);
- April 8--Mhat is reinforcement,
punishment, ignoring?; - April 15--Effective use of time out;
and - April 22-When is discipline
necessary?
A manual entitled Behavior Problems will be used in the course. The course is free but there is a charge for the manual for those who wish to purchase it.
Preregistration is requested by calling
the ARC office at (612) 224-3301.
911 Emerqency System Accessible to
TDO/TTY Users
The new 911 telephone emergency system
is accessible to persons who use telecommunication devices for the deaf (TDO/lTY). TOO/llY users who have a medical, police or fire emergency can
. .
dial 911, or an alternative number (4221212), and receive assistance.
.
wncil for Exceptional Children to
resider Starting New Division
le Minnesota chapter of the Council for :ceptional Children (CEC) will hold a !eting for persons interested in :arting a special division for children IO are mentally retarded. The council
; a professional organization for people rking with handicapped-persons. The
w division would be specifically rgeted to those who work with mentally !tarded individuals.
~e meeting will take place on Friday, lrch 18, 4:30 p.m. at the Sheraton Ritz kel in downtown Minneapolis.
!mbership is open to all CEC members. ;her interested persons may join CEC at le meeting.For more information, call
UICy Hall at (612) 429-5391, ext. 292,
h (612) 777-9224.
!sidential Project for Mentally !tardedPeople Explored
ltholic Ministry to Persons with mdicaps is exploring the need for !sidential services for people who are :ntally retarded.The first step will
! to develop a mailing list of families tat would need a residential program for ]eir children. Families that respond ill be asked to complete a more detailed testionnaire., The information wil 1 be ;ed to document the need and desire, of itholics to develop residential
.ograms.To be included in this 'eject, call or write Mary Hinze, $sociation for Retarded Citizens, 65 E, !11O g Blvd.,
?)St. Paul, Minn. 55101.
}1 . 612 224-3301.
leater Workshop Offered to Physically isabledAdults
wer Hills Ccmmmnity College and COMPAS,
local arts organization, will offer a wee-credit theater workshop for lysically disabled adults spring Jarter. The class wil 1 be held at the ittle Sisters of the Poor, 330 S. (change St., St. Paul, Minn. Classes ~gin March 30.
Theater Workshop(Cent inued )
For more information, call: Gini Spurr, (612) 455-9621, ext. 211 or Oneida/St. Paul Learning Center at (612) 227-8704. Transportation will be available.
Shrine Circus Tickets Available
Service providers for persons who are mentally retarded are invited to contact Russell Colberg, chairman of the 60th Annual Shrine Circus, for free tickets.
Circus times are as follows:
March 17, two shows, 1:30 p.m. and
7:30 p.m. March 18, three shows, 10 a.m., 1:30 p.m.
and 7:30 p.m. March 19, three shows, 9 a.m., 1:30 p.m.
and 7:30 p.m. March 20, two shows, 1:30 p.m. and
7:30 p.m.
Please indicate the number of tickets needed and date of attendance.Send the
information to Russell Colberg, 5035 217th St. N.,Forest Lake, Minn. 55025.
WORKSHOPS, CONFERENCES
April 14-16
'Perspectives in Communication Disorders" will be the theme of the Minnesota Speech, Language and Hearing Association convention at the Radisson Hotel in St. Paul.Keynote speaker will be Or. Fred
f'4inifie, president of the American Speech, Language and Hearing Association. Other nationally known featured speakers wil 1 include Dr. Mabel Rice, who will speak on language and cognition, Dr. Norma Rees, on auditory processing, Dr. David Buekelman, on dysarthria and Dr. Alan Rubens, on neurology of aphasia.
Registration fee for members is $40 and $55 for nonmembers, with a late registration fee for nonmembers of an additional $5.
INFORIMATION EXCHANGE %%ENIEFJTDevelopmental Disabilities ProgramMinnesota Department of Energy,IMM1190f 201 Capitol Square BuildingPlanning and Development1P-k I;. :;~~:m, 5S0 Cedar street:,St. Paul, Minnesota 55101:1.1,0-MIMRoger Strand612/296-4018Q& %$2X Editor.AUDIT COMMISSION EVALUATES COMMUNITY "RESIDENI IAL PROGRAMS
- DPW aid-the
"Although the population of statedevelopment hospitals continues to decline, the totaldevelo~ment
March 1983
Legislature should limit
of new facilities. New should be allowed only to
number of mentally retarded persons in long term care settings--state hospital and community.-has increased steadily in
recent years."This is according to a
new study, Evaluation of Comnunity Residential Programs for Mentally Retarded Persons
February by th[
;. 1twas released in F_l%oqram Evaluation
Divisio~ o? the Office of t~ Legislative Auditor~,The study concludes that "the
meet very specific targeted priorities
and where those needs cannot be served within .existing facilities or through alternative services.
The study discussed several findings and recommendations relating to DPW Rule 52, which establishes and' administers reimbursement rates.Some of the
recommendations include:
state relies too-+eavily on Intermediate Care Facilities for the Mentally Retarded (ICF-MR) for residential care. "Iternatives less expensive and less ~≡
estrictive have been largely neglected."
The study examined these questions:
Has the Department of Public klelfar'6
(D~w) effectively planned an&
encouraged a mix of resi~ential services for retarded persons? Do recently opened facilities meet identified needs?
Are the mechanisms used to set
reimbursement rates for cormnunity
residential facilities effective in
containing costs?
In light of the report's findings, several policy changes were recotnnended to the Legislature:
- Increase the availability and use of
alternatives to ICF+YR care, including Semi-Independent Living Services (S11S), professional foster care, and family assistance programs.
- The Legislature and DPW should
encourage existing facilities to serve more dependent clients.
OPW should revise Rule 52 to establish effective limits on reimbursable interest rates.
DPhl should revise Rule 52 to pay an
earnings allowance that is based on actual capital investment, and that encourages and rewards investment.
me Legislature and DPW should impose
a cap on rate increases of no more than 10 percent, based on anticipated inflation rates.
The Legislature and DPW should
consider the use of caps on
reimbursement for specific cost
categories, such as administration.
The report also stated, "The DP'A has not effectively limited new admissions to state hospitals."It said 'the process
by which state agencies plan and regulate new facilities is not effective in meeting state needs."
To obtain a copy of this report, contact: Program Evaluation Division, Office of the Legislative Auditor at (612) 2964721.
&
~OLICY ANALYSIS PAPERS ADDRESS STATE
'RAINING t4Em
tie State Developmental Disabilities (DD) 'rogram Office recently published the 'irst two of three studies on personnel :raining. The papers are numbers 12 and 3 in the Policy Analysis Series: Issues elated to Welsch vs. Levine.
olicy Analysis Paper No. 12 is
ntitled"Analysis of Nonformal Training
or Personnel Working in the Field of evelopmental Disabilities in Minnesota: 981-82." Nonformal training refers to dult education outside of formal ducation.Nonformal training includes
onferences, workshops, seminars, inervice training or courses.The DD
rogram interviewed 19 agencies and rganizations in the fall of 1981 to ocument the scope of nonformal training ctivities, identify problem areas and elicit ideas for improving interagency ordination.
he study said,"People are generally
otivated to continue their education hroughout their adult lives. Literally housands of people reguarly, participate n hundreds of training events taking lace throughout the state each year,
ust in the specialized area of evelopmental disabilities alone."
he study said that, historically, Nonformal training efforts have been ragmented, tincoord-inated, piecemeal and eactive to crises and events as opposed o being pr;active,thoughtfully planned,
rganized ~1~ sequenced in scale with urrent de lopmental and behavioral ethnology."
11 19 agencies and organizations ontacted agreed on the need for improved ~ordination and collaboration.Some
~lutions they suggested were:establish n information clearinghouse; encourage ult!disciplinary interaction and earning opportunities; and provide a entral office that would conduct raining needs assessments, staff valuations and provide technical ssistance.
Policy Analysis Papers (Continued)
Policy Analysis Paper No. 13 is
entitled 'A Survey of Formal Training Programs in Developmental Disabilities in Postsecondary Schools in Minnesota and Adjacent States."This study documents
availability of training in colleges, universities and vocational-technical schools. These schools traditionally have provided preservice training for professionals and paraprofessionals working with people with developmental disabilities.The study examines course
bulletins for 1981 and 1982 from 89 postsecondary schools in Minnesota and eight selected schools in Wisconsin, North Dakota and South Dakota.
The study suggests two areas for improvement:'changes in statewide
distribution of education resources," and 'changes in the course work offered by individual institutions and the system as a whole.~Course work changes appear to
be needed in at least three areas:
- Relatively few courses addressed the
unique needs of adults with developmental di~ties;
- Comparatively few courses addressed
the needs of severely and profoundly handicapped individuals; and
The third paper, Policy Analysis Paper No. 14, will present findings on perceived training needs of administrators and line staff in community residential facilities and developmental achievement centers.
These documents will be sent
to those on the Series mailing list. Others may requefiies by contacting: Developmental DisabilitiesP rogram Office, 201 Capitol Square Bldg., 550 Cedar St.$St. Paul, Minn. 55101. Tel.
(612) 296-4018.
SPECIAL EDUCATION RULES SCHEDULED FOR "IBLIC HEARING
A public hearing on proposed rules governing special education wil 1 be held at the Sheraton Midway St. Paul, Interstate Hwy. 94 and Hamline Av. on Apri 1 13.The hearing will begin at 9
a.m. and continue until all interested persons have had an opportunity to be heard.The proposed rules may be
modified as a result of the hearing process.
Written statements or material may be submitted to Jon Lunde, Hearing Examiner, Office of Administrative Hearings, 400 Summit Bank Bldg., 310 S. 4th Av., Minneapolis, Minn. 55415. Tel. (612) 3417645.
A free copy of the proposed rules may be obtained from:Wayne A. Erickson,
Capitol Square Bldg., 550 Cedar St., St. Paul, Minn. 55101.Questions on content
of the proposed rules should be directed 'o Norena Hale at (612) 296-1793.
MINNESOTA JAYCEE WOMEN SUPPORT BRITTLE BONE SO~~ETY
The Minnesota Jaycee Women have chosen the American Brittle Bone Society (ABBS)
as their two-year priority project for statewide fund raising. The ABBS is planning to generate funds for research, educational materials and counseling
services.
Brittle bone disease, known as
osteogenenis imperfect, is characterized by bones that break easily, often from no apparent cause or trauma.A hereditary,
connective tissue disorder, it affects about 20,000 people in this country. The American Brittle Bone Society and Film in the Cities have recently produced a 20minute film on this disabling condition. For more information, contact: Jean Mandeville, Brittle Bone Society, 1800 nouglas Av. S., Minneapolis, Minn.
403.Tel. (612) 377-0035.
U OF M CONSORTIUM WILL STUDY WAYS TO INTEGRATE SEVERELY HANDICAPPED LEARNERS
The formation of the University of Minnesota Consortium Institute for the Education of Severely Handicapped Learners was recently announced. The consortium will produce 11 research studies focused on the issue of moving severely handicapped children to least restrictive, integrated school and community environments.Consortium
faculty and staff will present programs at the university in special education, communication disorders and therapeutic recreation.Four major school district
cooperatives in the Twin Cities are also involved.Fgr more information, contact:
Luanna M. Vol~tz,Director, or Bonnie B. Wuerch, Assistant Director, 144 Burton Hall, University of Minnesota, 178 SE. Pillsbury Dr., Minneapolis, Minn. 55455. Tel. (612) 373-5608 or 373-5609.
ASSOCIATION FOR RETARDED CITIZENS OF MINNESOTA SEEKS AWARD NOMINATIONS
The Association for Retarded Citizens (ARC) of Minnesota is offering an
opportunity to recognize individuals and organizations that have made significant contributions to citizens who are
mentally retarded. Awards will be presented Aug.22 at an awards and
recognition banquet during the ARC state convention held on the St. Cloud State University campus.Nominations in the
following categories must be submitted to the ARC Minnesota office by May 1:
Outstanding Service by a Professional, Franklin C. Smith Award for
Outstanding Volunteer Service, Andrew R. Richardson Advocacy Award, Hubert H. Humphrey Consumer Award,
- Media Award,
Best Mental Retardation Month Project
(to local ARC unit), and Outstanding Achievement by an ARC
Local Chapter.
Nomination forms may be obtained from the ARC Minnesota office by calling (612) 8275641, or tol l-free, 1 (800) 582-5256.
YEARNING FOR LEARNINGb.tThe state Developmental Disabilities (DD) Program Office has acquired severaleducation, training and resource materials.They may be borrowed from eachof the regional DD offices and from the state program office in St. Paul.Each month, this section of DD Information Exchanqehighlights selections
from these resources to provide information to potential buyers. The
following selections are available from the state DD program office only.
low to Improve Performance throuqh
~pralsal andCoaching,DL
Kirkpatrick, AMACOM, 19821 iis book
Irovides a manager with tools to conduct Performance appraisals.The goal is to
reprove subordinates' performance through
lroper coaching and guidance.The book
;ontains sample forms, case studies and 'esearch from three multinational corporations.The author maintains that
if proposed guidelines are followed,
)either the manager nor subordinates ihould have to consider the performance lppraisal as an annual ritual to be ireaded.Rather, it should be welcomed
is an opportunity to improve performance 'or the good of the individual, the department and the organization.
Me$ro Square Building and Robert Sts.
Paul, MN 55101
Metropolitan Council DD Program ' 300
7th
St.
Teacher Supervision through Behavioral Objectives:An Operationaly Described
Systemx T. J. Piper and D. B. Elgart, ?aul H. Brookes Publishing Co.. 1979.
The authors believe that ~he p~ocess of teacher supervision can be the greatest contributing factor in improving the quality of education. This text defines the qualities that good teachers display and then provides the forms and means for measuring those qualities. Accurate, meaningful supervision, when conducted in a systematic, quantifiable manner, offers the best indicator of whether skills being used are successful and appropriate.This document shows
teachers how to do their own classroom research. It also shows teachers how
to develop new ideas about educational programming, curriculum and a successf~ arrangement of the learning environment.
.
EBulk Rate.
U.S. Postage
PAID
Mpls. Minn. Permit No. 1610
mrINFORMATION'~ EXCHANGEPublished monthly by the Developmental !Xsabilities Program of the Metropolitan Health Planning BoardMetropolitan Council300 Metro Square BuildingSt. Paul, Minneaota 55101Vol . 8. No. 6.Toni Lippert: 2914364June 1983 Tom Chapel: 291-6357
TOP I c :"MEVICAL CARE OF DEVELOPMENTALLY V1SA8LEV PERSONS"
Dr. Dennis Matthews wi 11 discuss:
* The Importance of Early Diagnosis and Intervention, * The' Role of the Physician in Monitoring Development
and Implementing a Program, * Long-Term Medical Needs for all Age Groups,
* Suggestions for Improving the Medical Encounter with
Persons who are Developmentally Disabled.
Dr. Matthews is an assistant professor and currently serves as director
of the Children's Rehabilitation program and co-director of the Muscular Dystrophy Clinic,University of Minnesota; co-director of Muscular
Rehabilitation, Courage Center; and consultant, Rosemount Developmental
Achievement Center.He is Developmental Disabilities
Date: Time: Place:
No Admission Charge
also a member of the Metropolitan Council IS Task Force.
Tuesday, June 14, 1983
2 to 3:30 p.m.
Metropolitan Council Chambers
300 Metro Square Building
7th and Robert Streets
St. Paul, Minnesota
open to the Public
ANOTHER PROGRAM IN THEVO CAPACITY-13U1LVING SERIES
* *
~RO DD PROGRAM NEWS)plicants Sought for Developmental Liabilities Task Forcele Metropolitan Health Planning Board is >eking nominations to fill three Lcancies on the board's Developmental Liabilities Task Force.~e 25-member group is composed of persons io are substantially handicapped by
were mental or physical disabilities lat started in their developmental years >efore age 22), parents and providers of wvices for such persons~ and the general Iblic.Members serve three-year terms.
$presentation from minority groups and 'ban and rural poverty areas of Anoka, uwer, Dakota, Hennepin, Ramsey, Scott XI Washington Counties is particularly Ylcome.
]e task force advises the health planning ~ard and its parent Metropolitan Council \ needs of developmentally disabled ~ople and helps coordinate planning to :et those needs. Nominees must be able ) attend meetings on the second Tuesday !' every other month from 1-4 p.m. and srve on at least one committee. ]pointments will be made in September ?83.
:rsons interested in applying should send resume by June 24 to Toni Lippert on the >alth plaming board staff, 300 Metro ~uare Bldg., 7th and Robert Sts., St. ml, Minn. 55101.For more information,
kase call 291-6364.
;udy Says Personnel Turnover in Group >mes No Problem
:rsonnel turnover is not currently a 'oblem in Metropolitan Area group homes? Lthough the depressed economy can take >st of the credit.This comes from a
!cent study,nPersonnel Turnover in xmnunity Group Homes for Mentally ?tarded People in the Twin Cities >tropolitan Area.w It was conducted by lomas Chapel, staff member of the ?trcpolitan Region Developmental Liabilities Program. The report includes both full- and part-time
Personnel Turnover (Continued)
turnover of direct-care staff has declined substantially in the last few years. Overall, average turnover in group homes in group homes decreased from 52.3 percent in 1980 to 27.2 percent in 1982.
The study, which examined one-third of Metropolitan Area intermediate care facilities for mentally retarded people, also explored factors that led to turnover and strategies used by administrators to retain good staff.
The study has been mailed to Metropolitan Area recipients of the Information Exchange.To obtain a copy, please call
the Metropolitan Council at 291-6464.
Grantmanship Kits Available
The Metropolitan Region Developmental Disabilities staff has prepared a resource kit to help developmental disabilities organizations that seek funding from the world of foundations and corporations.
The kit, prepared for a March 1983 workshop on private sector assistance, includes: a list of Minnesota foundations and corporate giving programs that make grants to human service organizations, tips on researching foundations, advice on putting together a grant proposal and several other items related to
grantmanship.
People interested in seeking foundation
grants may also be interested in two recent additions to the DD resource library.The Guide to Minnesota
Foundations and Corporate Giving Programs includes profiles of over 500 organizations.The Grantsmanship Center
News Reprint Series is a collection of indepth articles on grant research, grant writing and fundraising.Both documents
are available for use only in the Metro DD library.
EMPLOYMENT OPPORTUNITIES
~rdinator Needed
The Minnesota Foundation for Better Hearing and Speech is seeking a coordinator who will be responsible for the comprehensive information system network on communication (speech, language and hearing) impairments.The position
involves the collection, maintenance, compilation and dissemination of information through formal information and referral services, specialized topical information, public awareness materials and the agency newsletter.
Qualifications required: knowledge of information services, successful work experience in program coordimtion and effective written and verbal communication skills. Bachelor's degree inhuman services, library science or information services, or equivalent experience is also required. The salary range is $14,976
$19,296.
Intact Gerald Nelson, executive director, ..nnesota Foundation for Better Hearing and Speech, 508 Bremer Bldg., St. Paul, Minn. 55101.Deadline for applications is
June 3, 1983.
Targeted Jobs Tax Credit Program Extended
Congress has extended the Targeted Jobs Tax Credit (TJTC) program until Dee. 31, 1984.TJTC will give direct tax credits
to private employers who hire handicapped people from approved vocational rehabilitation agencies, recipients of supplemental security income benefits, and economically disadvantaged Vietnam veterans.
Companies q ay take credits of 50 percent of the first $6,OOO in wages paid to a qualified employee in the first year of work and 25 percent of the first $6,OOO paid in the second year.
Tax Guide Published
The Michigan Association for Retarded Citizens has published a 1983 Tax Guide for Parents of Mentally Retarded Citizens. The guide is helpful for
parents concerned with tax deductions stemming from the care of a disabled
planning and financial/accounting. 3xperience with q entally retarded people leeded.Minimum of bachelor's degree.
Send resume to:Wm. J. Steele, chairmen,
?ice Co. Activity Center, 203 Nevada St., ~orthfield, Minn. 55057.
The Association for Advancement of Behavior Therapy has issued a task force report: The Treatment of Self-Injurious Behavior.The report, developed by a
panel of experts, summarizes and evaluates research on treatment for self-injurious behavior in developmentally disabled persons.An extensive bibliography is
include.
For copies, contact: Mary Ellen Brown,
Publications Director, AABT, 42o Lexington
Av.,New York, N.Y. 10170
~OR YOUR INFORMATION
Old Time Family Day Set
)egree in Independent Living Available
i Master of Science degree in the study of independent living is now available from 'he University of Delaware. Admission equirements include an undergraduate Iegree in consumer economics, business Administration or other social sciences. fore information is available by writing:
University of Delaware, College of Human
Iesources, Newark, Del. 19711.
The Metropolitan Area foster care licensing agencies will sponsor ~Old Time Family Dayn on June 18, 10 a.m. - 4 p.m. at Gibb's Farm Museum (corner of Larpenteur and Cleveland Avs., near the state fairgrounds).
The event will feature activities typical of the late 1800s.Exhibitors will
reflect this historic theme and will help
unily Day (Continued)Respite Care (Continued)tildren make cornhusk dolls, churn homeLde ice cream and dip candles. Quilters, !avers and a blacksmith will demonstrate leir crafts, and clowns and a magician 21 perform throughout the day.
>od will be available, but visitors are lcouraged to bring picnic lunches; no .coholic beverages will be allowed.
le purpose of Old Time Family Day is to lcourage family activities and fosterrenting as a family activity. Everyone ! invited and admission is free.
)r more information, contact: Patrick 'Leery, Foster Care Program, Ramsey
mnty Human Services. Tel. (612) 298$97 or (home) 721-2272.
?spite Care Information
]e South Carolina Department of Mental ?tardation (DMR) and the York County
mtal Retardation/Developmental liabilities Board have developed a new
l eject.The project seeks to identify %ople interested in providing respite
me for families with handicapped members.
Ie project includes a training program lat allows a civic group or cormmnity 'ganization to provide training in any xmnunity. Furthermore, a comprehensive umal has been developed to support the
l aining effort. The manual is designed
3 a self-teaching mechanism for
>tential respite care providers!
~eparing them for the formal training >ssion. A unique feature of the manual
3 the inclusion of a self-administered !st. Each applicant is instructed to :udy the manual and complete the test ?ior to the training session.
>r further information, write:J. Calvin lylor, S.C. Department of Mental ~tardation~ P.O. Box 47o6, Columbiar
.C. 29240.
t Nebraska, the Parent/Family and Respite ?aining Projects provide individualized ~pport to families who are caring for ~eir developmentally disabled members. >th projects concentrate on developing stworks of service in Nebraska.
For more information on the two projects, write: Patricia McGill Smith, Meyer Children's Rehabilitation Institute, 444
S. 44th St. Omaha, Neb. 68131.
WORKSHOPS, CONFERENCES
June 11-August 10
The Peabody College for Teachers in Nashville, Term. announces seven courses for special education teachers. The courses will be open for noncredit or credit enrollment Title and dates of the courses are:
--Using Microcomputers in Special
Education, June 13-14; --Teaching Functional Language to
Handicapped Children, June 1s-24 --Working with Families of Young
Handicapped Children, June 13-24;
H-- uman Resource Planning in Special
Education: Changing Environments, June 27-July 8;
--Teaching Visually Impaired Children:
Nemeth Braille Code for Mathematics and Science, July 11-15; and
--Model Vision Project, July 25-29; --Optacon and Communications Technology,
A~. 1-10.
A descriptive brochure is available from Summer Institutes, Box 164, Peabody College, Vanderbilt University, Nashville, Term. 37203.
Aug. 26-28
ll~e Mportance of Being There... Together" is the theme of the 1983 Association for Retarded Citizens (ARC) convention, which will be held at St. Cloud University, St. Cloud. The theme reflects the need for parents, professionals and consumers to unfte on behalf of people who are mentally retarded. More than 30 workshops are planned for parents and consumers.A fund
has been established to provide grants of $10-$50 to help consumers with the costs
of attending the convention.
For more information, or for registration forms, contact the ARC Minnesota office at
(612) 827-5641.
IiiiiirINFORMATION EXCHANGE %&..
Ed
Developmental Dkabilities ProgramMinnesota Department of Energy,Uluumo,
201 Capitol Square BuildingPlanning and Development
'Fewer Minnesota state hospital residents were placed into the community in 1982 than in 1981, t! said Lyle Wray, court monitor, in his semiannual report to the U.S. District Court, District of Mimesota. The report concerns the Welsch vs. Levine consent decree. However, as of July 1982, ~tthe decree's population reduction specified for 1982 was more than met,W the report said.
In 1982, the number of people with mental retardation in the seven state hospitals dropped from 2,431 at the beginning of the year to 2,334 at year's end, a reduction of 97 people.That figure is
significantly less than the census-based ,eduction of 137 persons observed in ;981.!IThe present rate of net
population reduction, about eight persons per month across the state hospital
system, falls below the net monthly reduction of about 10 persons required for compliance with the depopulation target specified (in the decree) for 1987,11 ,the report. added.
The report also said that state hospital residents with physical handicaps are being placed into the community at q uch slower rate than other residents.out
of the 774 individuals identified as
having physical handicaps in June 1981, only eight have been placed into the community. Other highlights from the report are:
--WChildren continue to be admitted to
state hospitals and make up five to 10 percent of the population of state hospitals.n
--wThere has been a continued decline in
the use of mechanical restraint, separation and seclusion procedures at most state hospitals~.
June 1983 Court Monitor Report (Continued)
--Results from a survey by the plaintiff
A
counsel regarding psychotropic medication use in the seven state hospitals revealed that,m~mbridge has the
greatest number of persons on major
tranquilizers in the system. Willmar has the highest average dosage for persons on psychotropic medications.n
considerable number of compliance
issues have been brought before the court monitor.'To date, 1,042 issues have
been raised with more than 300 issues currently Unresolved,n the report
stated.A major unresolved issue is that financial incentives for state hospital placement of mentally retarded adults remain in place for counties.
A limited number of copies of the report are available from: Lyle D. Wray, Ph.D., Court Monitor, 201 Capitol Square Bldg.,
553 Cedar St+,
St. Paul, Minn. 55101.
Tei. (612) 291-9961.
MENTAL HEALTH ADVOCACY PROJECT ESTABLISHED
Aa part of a three-year funding grant from the Mcknight Foundation, the Mental Health Association of Mimesota has contracted with Legal Aid of Minneapolis to establish a legal advocacy project. The project is to provide legal representation for persons who are mentally ill throughout Minnesota.The
project will also offer legal training and education to professionals, consumers, and other interested persons.
For more information or for legal assistance, contact: Susan Lenz, managing attorney, (612) 332-1441, or, toll-free, (8oo) 292-4150.
SOCIAL SERVICE ASSOCIATION HONORS ERIC JANUSit the 90th Annual Minnesota Social Service Association Spring Training ;onference, Eric Janus received the distinguished Service Award for Individual Service. Janus is managing attorney for .egal Aid of Mineapolis. The award 'ecognized his role in drafting the tl,nnesota Vulnerable Adult Act, which went ~nto effect in 1981. The law provides ~or the reporting of suspected abuse or le~:act of adults, who, due to impairment, :ari ?t seek assistance for themselves.
'ACER CENTER AWARDED RESEARCH GRANT
'aula Goldberg, codirector of the Parent
Ldvocacy Coalition for Educational Rights ;enter (PACER), announced that the U.S. )epartment of education has awarded them ~ grant to measure results of its parent maining program.In connection with the
)roject, many parents who have received lervices from PACER will be contacted. 'We will really appreciate everyone's moperation,n said Goldberg.
IOW TO OBTAIN IDENTIFICATION CARDS FOR ?ONDRIVERS
[f a person cannot drive due to a physical
Disability, or chooses not to for whatever 'eason, having appropriate identification ?or activities such as cashing checks can ~e difficult.This problem can be
-medied by having a Minnesota identification Card.The card is clearly
larked 'nondriver' and includes an Lssigned number, a color photograph, full me, date of birth, address, a Inscription of the card holder and a place
'or signature.
!irmesota identification cards may be h%ined by going in person to the clerk ~f district court in the county office, md, in some instances, to drivers' .icense examimtion stations. It is wise ;O call first to verify the location, tours, days of operation, and whether the x.ailding is accessible to people with special mobility needs. When application k? made, acceptable forms of identification must be presented, such as >irth or baptismal certificates, birth 'ecords from a family bible or a passport.
Identification Cards (Continued)
Fees for the cards vary. Generally, cards are valid for four years and cost $6. Persons who are mentally retarded should present an acceptable form of identification, plus a letter from an agency that provides services to them (such as a group home) stating that they are mentally retarded.The cost to people
with mental retardation is 50 cents.For persons over age 65, the fee is $5 and the card is valid for life.
Applicants receive a receipt with a batch number on one side and their signature on the other. The receipt may be used for identification until the actual card arrives in the mail (about three to five weeks.)
ARCHITECTURAL AND TRANSPORTATION
BARRIERS COMPLIANCE BOARD ADOPTS VOTING POLICY
The federal Architectural and Transportation Barriers Compliance Board has recently adopted the following voting policy: disabled people are entitled to effective access to voter registration and polling places.With the establishment of
this policy, the board can focus on how to assist in the development of legislation ensuring effective access to voting places for physically handicapped people.
Announcement of this policy, effective March 8, 1983, appeared in the April 12 issue of the Federal Register.Further
information can be obtained by contacting? Laurinda Steele, Office of Policy, Planning and Program Development, Architectural and Transportation Barriers Compliance Board, 330 SW C. St., Room 1O1O, Washington, D.C. 20202.Tel. (202)
245-1801, voice or TDD.
VIDEO TAPES ON ABUSE AND NEGLECT AVAILABLE
Video recordings from a conference,
~presenting Harm to Children with
Disabilities: Dimensions in Recognizing and Responding to Abuse and Neglect?n held in May 1982, may now be borrowed. The three tapes feature keynote addresses
~y Drs. Eli Newberger and Lynn Wikler and a panel presentation.
Video Tapes (Continued)Publications (Continued)To borrow the tapes, contact: Sue Aggar,partment of Public Welfare Library, c/o uak Terrace Nursing Home, 14500 Co. Rd. 67, Minnetonka, Minn. 55343. Tel. (612) 934-41OO, ext. 252.ILLINOIS FILM CENTER OFFERS SERVICESThe University of Illinois Film Center provides a nationwide service by sharing its collection of over 15,000 films and video recordings.Besides rentals and
sales, it provides a number of other services, such as computerized reference searches and a free newsletter.
For more information, contact: University of Illinois Film Center, 1325 S. Oak St., Champaign, Ill. 61820. Tel. (8oo) 3673456 (toll-free).
COURSES
June 17
nLeg~glative wrap-upt' h a course 'or
attorneys and other interested
'ofessionals that will summarize the major outcomes from the 1983 Minnesota Legislature.It will specifically cover
significant changes affecting nearly
all activities in state government. The course will be held from 8:30 a.m. - 4:30 p.m. at the St. Paul Athletic Club. Tuition is $95, which includes course naterials. Also, 5.75 hours of continuing education credits are available.
?or registration and information, contact: \dvanced Legal Education, Hamline University School of Law, 1536 Hewitt Av.,
St. Paul, Minn. 55104. Tel. (612) 6412336.
'PUBLICATIONS
rhe St. Paul Pioneer Press (hlay 5, 1983) *eprinted an article by Julie Hatfield of ;he Boston Globe regarding a number of
l esources available on clothing and 'ashions for people with special needs. 1s an example, the following may be ~urchased from PRIDE Foundationz 1159 ~quonnock Rd., Groton, Corm. 06340:
--Dressing With Pride, a 116-page book
on modifying and and making adaptive clothing ($11 postage paid).
--Clothing Lesson Plan, an educational
program on clothing as a special need for therapists, home health aides, and educators working with older or disabled people ($25 prepaid postage).
EVENTS
June 7
I?New perspectives on Charitable Giving:
Bequest Fundraising for Your Charitable
Cause" is a half-day workshop designed to demystify the nature of bequest fundraising.It is a nontechnical
briefing for administrators and volunteers in organizations seeking private
donations. The fee is $35.
For registration and a descriptive brochure~ contact: -Continuing Management Education, Continuing Education and Extension, University of Minnesota, 338 Nolte Center, Minneapolis, Minn. 55455. Tel. (612) 373-368o.
June 16
The Minnesota Chapter of American Association on Mental Deficiency will sponsor a workshop on 'Establishing Cooperative Groups to Manage Conflict and Anger That Occur in Residential Settings,n to be held at the Plymouth Radisson. Presentations will be given by Drs. Dean and Mary Tjosvold, authors of Working with Mentally Handicapped Persons in Their Residences.Fee: $40.Contact: Mary
Tjosvold at (6I2) 755-8489 or Bev Helzeson
at (612) 235-5897.
July 12-16
The National Society for Children and Adults with Autism (NSAC) will hold its 15th annual meeting and conference at Hotel Utah in Salt Lake City.The theme
will be 'Opportunity to Learn, Freedom to
Choose." For further information, contact: NSAC, Suite 1017, 1234 Nw. Massachusetts Av.,Washington, D.C. 20005.
Tel. (202) 783-0125.
.YEARNING FOR LEARNING1The state Developmental Disabilities Program Office has acquired severaleducations training end resource materials.They may be borrowed from each ofthe regional Developmental Disabilities offices and from the state program
office in St. Paul. Each month, this section of DD Information Exchange
highlights selections from these resources to provide information to potential buyers.
developmental TrainingHomes: AA Review and Catalog of EarlY Childhood
?esource Book, L. Wray, Office of CourtSpecial Education Resources, C. Robinson 4onitor, 1983.This is a compilation ofand K. Davey (editors), University of
nateria~s on special needs foster oare~ nostly originating from the state of 4iohigan*The intent Is to assist
individuals and organizations in looklag at options other than group homes for neetlng the residential needs of children with mental retardation or other developmental disabilities, who, for whatever reason, are not able to remain with their families. Content includes ideology, recruitment, training, end
Nebraska Medical Center, 1982. fiis resource was developed to help people with an interest in early childhood special education to be more selective in ordering materials for preview purchase. There are materials for program planning, preservice and in-service training, assessment, parent and professional relationships and more. Although not an exhaustive coverage, the materials included represent what the authors
monitoring as related to the provision of
foster care services.consider major Available from office only.
Available from the state DD program
affice only.
. Metropolitan Council DD Program " .
300 Metro Square Building
7th and Robert Sts.
St. Paul, MN 55101
works since 1977. the state DD program
Bulk Rate U.S. Postage
PAID Mpls. Minn.
Permit No. 1610
~q,%MR. f?CIGEi? STf?ANO
STATE PLAN OEV ilISAB PRO
201 CAPiTtIL SWARE 3L
ST PhUL HN 55101
Published monthly by the Developmental Disabilities Program of the Metropolitan Health Planning BoardMetropolitan Council300 Metro Square Building St. Paul, Minnesota 55101 Toni Lippert: 291-6364 Tom Chapel: 291-6357METRO DD PROGRAM NEWSTitle XIX Public ForumThe Metropolitan Region Disabilities Task Force
Developmental will sponsor an
information forum presented by- the !linnesota Department of Public Welfare (DPW) on Tuesday, July 26, from 10 a.m. to 3 p.m. on the Title XIX waiver legislation. rhe forum will be held in the Metropolitan Oouncil Chambers~ 300 Metro Square Bldg.~
7kh and Robert stS.9St. Paul, Minn.
JPW is presenting a series of regional aeetings to inform interested parties on ;he content of the legislation and its implication for changes in servicds for tersons who are mentally retarded.At the
'orum, the department will also be seeking 'commendations from the public on the ,ypes of services that should be offered \nder the waiver plan.
'he forum is open to all Metropolitan Area 'esidents.
ommunication Disorders is Next Capacityuilding Presentation
he Metropolitan Council will present an nformation forum on communication isorders of persons with developmental inabilities, Aug. 9, 2 to 3:30 p-m? mncil Chambers, 300 Metro Square Bldg., t. Paul, Minn.
vol. 8. No. 7
July 1983
Forum (Continued)
The presentation will include a brief
overview of the most common disorders and the most current technologies for initiating and improving communications, especially for non-verbal and non-reading individuals. Joe Riechle, Ph.D., of the
Department of Communication Disorders, University of Minnesota, will be the
primary speaker.
This program is another in the CAPACITY
BUILDING SERIES presented by the Metro Region Developmental Disabilities Task Force of the Metropolitan Health Planning Board/Metropolitan Council. Consumers, parents and service providers are invited to attend.There is no admission charge.
Fiscal Disincentives Paper Available Soon In cooperation with the State Developmental
Disabilities Program office, the staff of the Metropolitan DD program will soon release a new policy analysis paper, Fiscal Disincentives in the Service System for Developmentally Disabled People.
The paper examines how methods of funding and administering DD programs often prevent placement in the least restrictive setting.
A second section examines three potential
solutions to the problem and traces the cost impact of each solution on a hypothetical county and the state and federal government.A final section
reviews recent state legislation a?fecting financing of DD services and its impact on reducing fiscal disincentives.For copies
of the report, contact Marjorie Segell at (612) 291-6363.
.
UHUllarY of Fund iru? ,Service Delivery
hanges Available
ecent state legislation alters several spects of funding and delivery of services or people who are developmentally Isabled. The legislation, (S.F.1234)
hanges the method of funding Developmental chievement Centers (DACS), sets rates for ACS and Intermediate Care Facilities for eople who are mentally retarded, and xpands the number of services potentially ligible for Medicaid financing.
summary of S.F.1234 is available from the
etropolitan DD program. Call Marjorie egell at (612) 291-6363.
OR YOUR INFORMATION
rant Awarded to American Bar Association he American Bar Association (ABA) has been
warded a $287,'732 grant by the Department f Health and Human Services' Administration on Developmental Disabilities. The rant is to prepare and disseminate model tate guidelines to improve the quality of oard and care facilities for developmentally disabled, elderly and mentally ill ersons.
uring the 15-month grant period, the reject staff will develop a model state tatute, study and report on applicable emulations in each state and draft methods Iat can be used by state officials to nprove surveillance of such facilities.
n addition, ABA will provide technical ssistance to states wishing to revise
Ieir current legislation or develop new aws in this area.
m initial draft of guidelines for a model bate statute was soheduled to be completed y May 31, 1983, with revisions to be made n August and September. The draft will len be circulated to organizations and individuals for comment.It is scheduled
m completion by Sept. 30, 1983.
~r further information, write:Jane
~yer, American Bar Association, Commission t Legal Problems of the Elderly, 1800 NW.
St.,Washington, D.C. 20036.
PreventingEpileptic Seizures
A key priority of a comprehensive epilepsy center is to prevent seizures from being unresponsive to treatment, aoaording to
Dr. Fritz Dreifuss in a recent address to the Western Institute on Epilepsy in New Orleans.
Dr. Dreifuss is the head of such a center at the University of Virginia in.[:
Charlottesville, Va.He said that seizures
may resist treatment because of faulty diagnosis, use of the wrong medication, patient response, or a combination of all three.. . . . . .
Faulty diagnosis may result from incorrect identification of the seizure type, failure to distinguish between true epilepsy and pseudo-epileptic episodes, failure to recognize that an underlying disease is producing the seizures, or failure to recognize other special factors that are producing seizures. Use of the wrong drug, the wrong dose or use of medication for longer than needed can also contribute to treatment failure. Dr. Dreifuss said that on the patient's side, failure to take medication as prescribed, failure to stay away from things that may trigger seizures! other illnesses and use of' competing medications may all add to the difficulty of achieving seizure control.
Posters Celebrating'Decade of Disabled Persons' Available
The Eastman Kodak Co. has developed a series of' posters for the National Organization on Disability The posters depict handicapped people achieving full participation in their own areas of interest. They Were developed in response to a declaration by the United Nations designating the period of 1983-1992 as the 'Decade of Disabled Persons.n
The ss~ies Is comprised of six posters and a different one will be released every other month throughout 1983. Single posters will be available free of charge to individuals and organizations. Contact: National Organization on Disability, 2100 Pennsylvania Av. NW., Suite 232, Washington, D.C. 20037. Tel. (202) 293
5690.
STATESUPPLEMENTi,,EcdDevelopmental Disabilities ProgramMinnesota-State Planning AgencywMM@ 0+ 201 Capitol Square Building
550 Cedar StreetRoger Strand612/2964018~q"R%%:&
St. Paul, Minneaota 55101EditorI},v~ p~:;$
INFORMATION EXCHANGE
- -.. .
.
ZGISLATURE ALLOWS CHANGES IN
3RVICES FOR RETARDED PERSONS
le Minnesota Legislature recently
zthorized the Department of Public 91fare (DPW) to apply for a waiver, lich would allow home- and community~sed services to be funded by medical ~sistance (Title XIX of the Social
>curity Act).Persons would be eligible
r these services if they would ;herwise need care in a state hospital * in a community Intermediate Care ~cility for mentally retarded persons [CF-MR ) .Payments under an acceptable
Liver plan must not exceed the cost of ;F-MR services that would have been ?cvided without the waivered services.
a minimum, the waivered services would
lclude case management, family training Id support, developmental training ~mes, supervised living arrangeme~ts, nni-independent living servicesf respite ret and training and habilitation !rvices~ Regarding the latter, training Ld habilitation services were defined as ;hose health and social services needed ) ensure optional functioning of persons 10 are mentally retarded or have related mdftions.~
lere were many other features in this
!W legislation that will have far!aching tipact upon future state and unty operations.
l A moratorium was placed on the number
of beds in ICF-MRS. It was set for no more than 7~500 beds as of July 1, 1983, and 7,000 beds as of July 1, 1986.
.The Commissioner DPW must establish
wission criteria for state hospitals
county utilization targets to limit Id reduce the number of ICF-MR b-eds.
h@ 1983
Legislature (Continued)
--DPW will develop a client-tracking and
evaluation system.
--Prior to serving mentally retarded .
persons, the county must make a
determination of retardation, provide a
needs assessment, develop an individual plan and authorize specific services.
--County agencies must establish a
screening team to evaluate a client's needs (any client entitled to ICF care or a client expected to need ICF care in the future).The screening team
will also identify the level of service needed to maintain the most normal and least restrictive setting consistent with treatment needs.
--DPW must establish procedures and
rules for determining rates for ICF facilities, waivered services, and for training and habilitation services provided to residents of an ICF.
- --Up to 15 positions are authorized for
DPW to implement the program.
--Applicable sections would be repealed
if the waiver is not approved by
June 30, 1984.
Rep. Ann Wynia, St. Paul, a chief
advocate behind the bill? commented on what she hoped would be accomplished through this enabling legislation: 'I hope that this is going to give us a more rational system of services, a system that will reflect individual needs as well as sensitivity to the cost of services."
'IEW OF SOCIAL SECURITY BENEFITS IERED FOR MENTALLY ILLrnesotans between the ages of 18 and 49 Al a mental illness who have been tied Social Seourity or Supplemental
:urity Disability benefits? or whose lefits were terminated on or before
@ 1, 1981, should have their
.gibility for benefits reviewed by the )Ial Secxartty Administration (SSA) as
m as possible.
} SSA was ordered to review these
Mns due to a reeent court decision in \uit brought against the SSA by the ltal Health Association of Minnesota. l~st 800 individuals were terminated xn these programs, while others were
lied benefits prior to the court's sision.
?sons who meet these requirements xxld call the SSA office at (612) )-1151.
JPROFIT AGENCIES MUST PARTICIPATE IN 31AL SECURITY
3 to recent amendments to the ~cial curity Act, employees of all nonprofit ganizations must participate in Social curity. In the past, nonprofit
ganizations were given the option of
rticipating either in the system or in
Ivate retirement plans. As of Jan. 1, 84, an employer and employee will
intly have to pay a social security
x not to exceed seven percent of' an ployee's wages.
NDS AVAILABLE FOR BARRIER R~OVAL IN HOOLS
e Emergency Jobs Bill recently passed
Congress included $40 million for the
moval of architectural barriers in hools. For more information, contact: rty Kaufbmn, Director of Educational rvices, Department of Education, Room 53 Donahoe Bldg., 400 Maryland Av.
rl ?Washington, D.C. 20202.
: LOAN FUND
CRITERIA EXPANDED
. ' "/:?.<...
'k+
The Minnesota Nonprofit Assistan&e Rmd (MNAF) recently expanded its criteria for loans to nonprofit organizations. "
,...
. . . . .
Until April 1983, the loan fund was open only to nonprofit organizations in,the seven-county Metropolitan Area.,Now it
has been expanded to include any";,?<:.
. .+
organization in Minnesota that holds a "
501(c)(3) tax status and is experiencing cash flow problems. Such problems may be caused by delay in payment of a c~tract
or grant from government or foundations.
.::, ~>=:..:-,:::., ,-. .
MNAF makes loans up to $20,000 at a ": ~,,..
reduced interest rate of six percent for
the first 45 days, and eight percent from 46 to 90 &yS.MMAF is sponsored by the
Minneapolis Foundation and St. Anthony
Park State Bank.
To apply, or for more information
contact: Susan ICenny-Stevens, MNAF$ St. Anthony Park State Bank, 2250 Como Av.,
St. patil, wnn. 55108D:Tel. (612) 6470131.,--
HUMAN SERVICE WORKER CERTIFICATION AVAILABLE
The National Commission for Human % Service Workers (NCHSW)t recently announced that certification is now available. Applications are being
accepted for the first national examination scheduled for October.
"The certification proces~'involves three
steps and fees:application ($15); assembly of portfolio documenting competent work performance ($25); and written examination ($35). Test locations will be named later this summer after applications have been distributed.
For more infonuation~ contact: Dr. Angela Holweger, 1710 Gervals St., Suite 205, Columbia, S.C. 29201. (NOTE: This is the new address of NCHSW; fcrmer headquarters were in Atlanta, Ga.) :
Communication Skills Model Available
~ommunication strategy, published as a
manual called the IiBridge Modelw is now available.It is an approach to
strengthening communication skills and fostering positive working relationships among parents and educators of handicapped children. It was developed by the Parents' Campaign for Handicapped Children and Youth and the Council for Exceptional Children. The model consists of a sequence of planning activities that culminate in a oneday workshop.It has been tested
successfully in both urban and rural settings and has been found to foster cooperation and collaboration between parents and professionals.
In addition to distributing the manual,
>roject staff are available to provide :echnical assistance to groups who want to Ise the model. Single copies of the manual we available free of charge, but there is
i postage and handling fee of $2. To order ~ copy, or for more information, contact: ~arent'9 Campaign for Handicapped Children
'~d Youth, 1201 NW. 16th St., Washington,
' 20036.,.Tel. (202) 822-79oo.
tall for Papers for Quality of Life
~onference
'he Minnesota chapter of the American
ssociation on Mental Deficiency wT1l ponsor a conference Oct. 27 and 28 at the adisson Inn, Plymouth.The theme will be
Quality of Life--What is it and How Do We evelop Quality of Life?ft
roposals should be submitted by Aug. 1 for
ossible conference presentation, papers, esters, panels and seminars.Suggested
reas related to quality of life Include:
- Environment-- physical aspects, medica
l.ens, bio-ethnical factors, equipment,
~ysical therapy, occupational therapy, ~reditary vs. environmental factors;
- Interpersonal Area -- communication :ills, conflict resolution, cooperative
l oUps;
. Self-Identity-- hierachy of needs, !llness, sexuality, arts, music therapy,
ay therapy, survival/development needs.
1 submit proposals or suggestions for
Pies, contact: Mary Tjosvold at Camilia Ise Group Home, 11800 Xeon Blvd., Coon
pids, Mire. 55344.Tel. (612) 755-8400.
Summer Course for Recreation Leaders
Offered
The University of Minnesota is offering a
summer session from July 18 to Aug. 19 on
!~Assessment and Evaluation in Leisure
Services for Special Populations.v This
will be an in-depth study and application of approaches to therapeutic recreation service assessment and evaluation.
Emphasis will be on individual and group assessment techniques, data collection strategies for independent living, leisure, social and motor skill development, objective program evaluation in various settings, and its application to research. The course is appropriate for therapeutic recreation specialists and service providers working in group homes, institutions, day achievement centers and community programs.
The course will be held on Tuesdays and Thursdays from 2:30 - 4:45 p.m. at 206 Cooke Hall on the University campus. The instructor will be Stuart J. Schleien, Ph.D.
For registration information, contact: Education Career Development Office at (612) 373-2257.
PUBLICATIONS
-- UnlockingDoors,a new booklet on
communication skills is now available from Parent Advocacy Coalition for Education Rights (PACER). It describes a communication style that can help parents work more comfortably with teachers, including activities and exercises.
Individual copies are free to Minnesota parents of handicapped children.The cost
to other people is $2,50 for a single copy or $2 a copy when ordering more than one. Orders must be prepaid. Write to: PACER
Center, Inc., 4701 Chicago Av.,
Minneapolis, Minn. 55407.
blications (Continued)
The 1983 edition of Standards for rvices for Developmentally Disabled
dividuals is available from the creditation Council for Services for ntally Retarded and Other Developmentally sabled Persons (AHRDD)O This new
ition costs $25 and incorporates all ,anges made since the 1981 edition was blished.
r further information, contact:Kenneth
Crosby, Executive Director, ACMRDD, 5101 ,sconsin Av. NW., Suite 405, Washington?
C. 20016.
.A new publication, The Economic and
mietal Benefits of Independent LivinA rvices provides an overview of services mmished by Centers for Independent Living ~ Illinois! Michigan? Minnesota, Indiana? tio and Wisconsin. The report includes Lse histories and background information 1 23 independent living centers in the six ~tes. For copies, contact: Helen ]ppert RSA-15th Floor, 300 S. Wackerj licago, Ill. 60606.
-Prof. Julian Wolpert of Princeton liversity has updated his 1978 study on ~e impact of group homes on local property %lues. The updated study analyzes market rices and turnover rates for properties ?ar 32 group homes located in eight
xmnunities in New York State. Generally,
rofessor Wolpert found no long-term egative effects upon property values or eighborhood turnover rates.
o obtain a copy of this report? contact: att Janicki, Ph.D., Office of Mental etardation and Developmental Disabilities, 4 Holland /iv. Albany, New York, NY 12229.
UTURE EVENTS
ept. 12-14
he Office of Continuing Education, 'niversity of Wisconson-Stout will sponsor conference, 'Discovery '83: Computers for he Disabled,n at the Leamington Hotel in [Minneapolis.
Conference (Continued)
The purpose of this conference is to
provide an overview of the many areas in which computers can serve the needs of people who are disabled, and some spectfic applications of the new medium of microcomputers.
'Discovery 83w is an annual conference
designed to highlight frontier areas in serving disabled people.This year's topic
is a blending of two disciplines,
vocational rehabilitation and special education. The conference will provide teachers, administrators, counselors, government personnel, researchers, purveyors of computer technology and disabled people with an opportunity to learn about the advances made in computer technology that are changing special education and vocational rehabilitation.
The registration fee before Aug. 15 is
$150; after that date it will be $175.
For more information, or for a registration
form, contact: Office of Continuing
Education, University of Wisconsin-Stout.
Menomonie, Wis. 5475j.
Oct. 19-21
A conference sponsored by the 4H youth
organization and the University of Minnesota will be held at Camp Courage people Involved in youth development.
The conference is open to teachers, 4H
leaders and other youth deVelODnWnt
.
for
leaders, volunteers and handicapped persons.
For more information, contact Sandy Becker,
office of special programs at the University of Minnesota. Tel. (612) 3730725.
Oct. 27-28
The fall conference of the Mimesota
chapter of the American Association on Mental Deficiency will be held at the Radisson Inn, Plymouth.
For more information on this conference,
see article on page 3.
,.PUBLIcJITIONSstudy recently conducted by the Lsabled Rights Education and Defense md, Inc., shows widespread fscrimination against women and girlsLth disabilities in educational andther programs.The pattern of unequal]portunity was especially apparent for lose persons with learning disabilities td mental retardation.le 1981 study, funded by the federal ~partment of Education's Women's locational Equity Act, revealed:.Although the ratio of males to females in schools was about even, twice as many services were given to boys as to girls;
Jfomen with physical disabilities were found more likely to be isolated in special institutions than men; and .Sex bias was apparent in educational programs that teach boys job-related gkills (e.g. assembly work, janitorial ~kills) but that teach girls to make
beds and do dishes.
rt of the reason girls with learning stabilities weren't being placed-in propriate programs was that their havior did not draw attention to their ecial needs. On the other hand, the udy found that behavior problems were ten what led to placement of boys in ecial programs.
pies of the report may be obtained from sability Rights Education and Defense Id Inc., 1349 Connecticut Av. NW., I.te 1124, Washington, D.C. 20036.
L. (202) 659-4684 (voice or TDD).
\INING RESOURCE
lining and staff development in the
*Y Another Wayn approach to the !paration of people with handicaps for )loyment is being offered by Marc Gold 1 Associates (MG & A). Flexible ]eduling for small groups can be banged by COntaCUng: a & A, 1538 E. lerson Lane, Suite 8, Austin, Tex. '57.Tel. (512) 836-3763.
Programing for Adolescents with Cerebral Palsy and Related Disabilities, United Cerebral Palsy Associations, Inc. This publication is a result of a
national conference that empha9i&d helping adolescents with disabilities. Contents cover: family life skills, communication, medical needs, movement, psychosocial needs, education, sexuality and recreation. Price: $4.5o, pN.IS
shipping costs.Contact: Professional
Services Prog,ram Dept., United Cerebral
Palsy Associations, Inc., 66 E. 34th St.t New York, N.Y. 10016. Tel. (212) 4816300.
A Guide to Job Analysisl published "by U.S. Department of Labor. ~ig 488-page book analyzes the content of jobs and helps to describe those jobs in a standardized and easily understood manner. It is intended for vocational
evaluators, job placement specialists,
vocational rehabilitation counselors and physical and occupational therapists.
The cost is $10 per copy.
A major portion of the writing of this book was accomplished through the U.S. Department of Labor and is being disseminated through: Materials Development Center, Stout Vocational Rehabilitation Institute, University of Wisconsin-Stout, Menomonie, Wis. 54751.
EVENTS
'August 8-11
The International Conference on Pyschological Abuse of Children and Youth will be held at Purdue University in Indianapolis, Ind.Several major areas
of pyschologioal abuse will be addressed by speakers and conference participants including:mental cruelty? sexual abuses
institutional abuse, drug and substance abuse, and emotional neglect and stimulation deprivation.For further
details, contact:Office for the Study of the Pyschological Rights of the Child, Indiana University-Purdue, ES 2129 D, 902 W. New York St.,Indianapolis, Ind. 46223.
.',.The state Developmental Disabilities Program Office has acquired several educations training and resource materials.They may be borrowed from each.
of the regional Developmental Disabilities offices and from the state program office in St. Paul. Ed% month, this section of DD Information =ohanRe -. highlights selections from these resources to provide information to ; , potential buyers..:.,.~.,, .,,..,, "
:,, ,*.'
munity Housing Options for Handicapped%
BecomingIndependent: ALiving Skills '
pie, National Institute on MentalSystemLA. Westaway and T. Apollonl$ :P".,g.::
iardatlony CanadaS 1978.This is aEdmarko 1978, ThiS isanindivldualized
ual about developing community-based d.dential services. It Is designed to .p planners, yogranuners, proprietors, pnizations, agencies and staff cope ~h problems they face. The text 'hots complexities involved in mnlng and developing a range of lidential alternatives. It strongly ps that, ~the key to the sUCCeSS of mmnity services is the degree of mlination whereby one area of service :ks up and reinforces the othersoW
kent includes sections regarding inning principles~ physical settings? tsing alternatives? management issues 1 economic issues.
progra~fig system that provides 6< ~~.:.. ,', '..
framework to ensure adolescents or~adults"
with developmental disabilities ~~: a<, ~v coordinated plan covering work?.--7. !.
~.,:::.,:~;>~,,:.,.,~
recreat@nal and residential sottingso+ ""'%.. It conti~ns methods for planning, "'?::.~~':~'
~sessi~, recording, reportiu and,. ':
learning 704 different skills* ~"ls L&a
useful resource for schools? developmental achievement centers, group homes, sheltered workshops and f~ ,,.
persons involved with integrating
developmentally disabled persons into the Coumlunity.
:e., ; \ .:., . .
Available from the state D.D. progr6m '"" office only. Tel. ~ 296-4018. -'~
lilable.. ~,. $~ state DoD* P?ogram
?ice only. Tel. ~ 2?6=4018.
.
Metropolit@Council DD Program " .
300 Metro 'Square Building
7th and Robert Sts. ~
St. Paul, MN 55101
L
Bulk Rate U.S. Postage
PAID Mpls. Minn.
Permit No. 1610
, ,.
. . .
,.. ,.
. .
.
.,
..'
,. ,
,,
. -.
'
,,
"'s
urINFC)RMATION# EXCHANGEPublished monthly by the Developmental Disabilities Program of the Metropoli~n Hea]th Planning Board
Metropolitan Council
300 Metro Square Building
St. Paul, Minnesota 55101vole 8. No. 8 .
Toni Lippert: 291-6364August 1983 Tom Chapel: 291*357
l *s** *o** **a* **** **** *g @******g*********
l
l .
l
YOU ARE INVITED TO ATTENDl THE DEVELOPMENTAL DISABILITIES TASK FORCEl
INFORMATION FORUMl
l
l
l TOPIC:'COMMUNICATION DISORDERS OF PERSONS
l
UN() ARE DEVELOPMENTALLY DISABLEDn
l
l
SPEAKERS :l
JOE REICNLE, Ph.D.- Asaistant Professor,
l
Department of Communication Disorders,
4
University of Mirmesota
*
l DIANA GOLDNAGEN- Speech Pathologist,
l
courage Center
l
l
l
This presentation will include a review of the most prevalentl
comwnicaticm disorders found in both severely mentally retarded andl non-retarded persons, the latest treatment technology and current4
techniques in comnmicaticn for non-verbal and non-reading individuals. ll
l
Date: Tuesday, August 9, 1983l
Time:#
2 to 3:30 p.m.
l
Place: Metropolitan Council Chambers
300 Metro Square Buildingl
&
7th and Robert Streets
4
St. Paul, Minnesota
l
l
l
Admission is free. Please register at the door.
l
ANOTNER PROGRAM IN THE DD
l ***M+** l ****at++ S*
t CAPACITY-BUILDING SERIES
l
,
Ro DD PROGRAM NEW
rd Annual MNASH Conference
Mlxmesota Association for the
erely Handicapped (lINASH) will hold
third annual fall conference on Oct. and 22 at the Ramada Inn, Hwy. I-494
France Av., Bloomington, ~. The me this year is 'Severely Handicapped sons in the Ccnmnmit y:Educational,
idential and Vocational Integration. n the next page, readers will find a
m, wczu for presentations ~ n which
be sent to Dr. Haney Fenrick at
address listed.
the past decade, the principle of
realization has made dramatic changes the service systems for handicapped ividuals. The impact on people who
severely disabled has been less LOUS. Mere placements or access to munit y-based services has not resulted true integration for the severely ,dicapped. The 1983 MNASH Conference 1 identify key problems that Impede munit y integrations explain new ~oriea and present practical models
,t can resolve some problems.
I targeted areas -- residential S
Icaticnal and vocational servicea -
re been aelected since they are the key )grama needed by peraons who are rerely handicapped. Keynote apeakera :Ude: Dr. LuannaVceltz, Consortium
~titute ? University of Minnesota locational); and Dr. Paul Wehman S
mol of Education, Virginia nzonwealth University (vocational). ler nationally known specialists in mnmit y integratim have been invited make presentations, as well as nerous Minneaota professionals and Writs.
9 conference haa been planned for all >vlders- teachers, social workers,
alth care professionals and staff of sidential ~ vocational and day programs
and especially for parents. rticipants should gain knowledge and ~erstanding of newly evolving " rbllaries to the normalization
inciple, become more sensitive to stacles to true integration and learn out some successful ways similar oblems have been solved.
l
l l l l l 4 l l 9 # l l l
MUSH Conference (Continued )
lhe September isaue of this newsletter
will carry registration information.
MNASH membera and non-members who are willing to volunteer for a variety of tasks should write or call conference ehairperaon Dr. Nancy Fenricks Department of Special Education, BOX 52, Mankato State University, Mankato, Minn. 56OOI. Tel. (507) 389-1122.
l ******** l O******** l **
"The MNASH Board of Directors approved a l
motion to support the election of Dr. l Colleen tlieck, executive director,l
Minnesota Developmental Disabilitiesl Planning Office of the State Planning l Agency, to the natiaal board ofl
directors of The Aasoelation of thel Severely Handicapped (TASH). Locall
TASH members are urged to supportl
-eaoti "s candidate. lhdline fcrl
receipt of ballots Is Sept. 5.l l
l ***+**********+******
~R YOUR INFORMATION
Ptands Provided for Interpreters
Funds have been made available for
providing interpreter or note-taking service for hearing-tipaired persons enrolled in adult education programs. The state legislature appropriated $43,000 for the fiscal year beginning July 1, 1983, and $44,000 for the following year for this purpose.
The program is designed to provide
support aervices for hearing-impaired adults so that they may obtain better reaults from avocational or educational programs for their continued growth and development, 'l'he funds may be uaed to pay the cost of interpreters or notetakers, provided the program meets the criteria of the Minnesota State Department of Education.
For a detailed explanation of the
criteria and application form? educational progmns ahould contact: Larry Crcuse at the Minnesota Department cf Educations Capitol Square, 550 Cedar St., St. Paul, Minn. 55101. Tel. (612) 296-4177 or TTY (612) 297-2094.
\
THIRDANNUAL MNASH CONFERENCEOctober 20 and 21Ramada Hotel 1494 and FranceMinneapolisSEVERELY HANDICAPPED PERSONS IN THE COMMUNITY:EDUCATIONAL, RESIDENTIAL, AND VOCATIONAL INTEGRATIONCall for Presentations: --on educational, residential, and vocational programs
for severely handicapped persons.-
--with emphasis on, "but not limited to, successes in and
difficulties of integrating severely handicapped persons
into the comaunity
---....-.----------------.
-.
Please pail by Auguss 30th to Nancy J. Fenrick, Depar+aent of Special Education,
Box 52, Mankato State University, Mankato, Minnesoza, 56001 (507-389-1122)
Name of Presentor(or Panel Chair)
Address
Names
Phone
of Other Presenters or Panel Members
of Presen$aEion
tiscription of Presentation (50-100 words)
Approximate length:% hour;1 hour;l%hours;2 hours
Please check any time YOU canmo~ make the presentation:
* editor of New Directions, a blication of the National Association
State Mental Retardation Program rectors, Inc. (NASMRPD) is seeking formation on innovative programs or -vice delivery techniques for mentally Larded persons.Information on such
~grams~ including background materlals~ Lck and white pictures or new articles?
~uldbe sent to: Deborah Jennings,
t4RPDt 113 Oronoco St. $ Alexandria,
22314.
unteers Needed by Two OrEanizations
Minnesota State Fair begins Thursday, . 25 and continues through Monday,
t. 5. Volunteers are needed by the nesota Epilepsy League and the
Lcmal Multiple Sclerosis Society to ff their information booths.
mteers should call Jim McMullen, ?esota Epilepsy League at (612) 340. J or Sandy Johnson, National Multiple wosis Society at (612) 870-1500.
I admission ticketa to the fair are rided by the organizations.
tlathon Scheduled
'ssible Space Inc. (ASI) is conducting third annual wheelathon on Aug. 20 at I Nokomis in Minneapolis from 9 a.m.
p.m. This year "s theme is Wheelin s Uaiting. UASI residents are
ling over a 30 kilometer course in
s annual fundraising event.
tiom raised from its first two lathons enabled ASI to purchase a van pped witha power Uft. Funds ributed this year will go toward taining the van and hopefully will lt ASI to expand the van's operating s. All contributions will be
gnated for transportation activities, Icted and directed by ASI'S Tenant's :il l
WORKSHOPS, cONFERENCES
Aug. 22-23
Wse=ltty and Mentally
Handicapped
Peoplen is a workshop sponsored by Planned Parenthood of Minnesota. Speakers Include Phyllis Cookseys director, Department of Education and Training, Ruth Markowitz, program coordinator and an advocate from Legal Advocacy for Developmental Disabilities.
For registration information, call
Deparment of Education and Trainings Planned Parenthood of Minnesota, 1965 Ford Pkwy., St. Paul, Minn. 5sI16. Tel. (612) 698-2401.
Sept. 13
The American Association on Mental
Deficiency (AAMD) will present a workshop cm Tse of Behavioral Techniques with Staff and With the Health Care System: Ors Staff Likes Reinforcements Too. H Workshop presenters include Dr. Erick Errtokson, Dr. Bill M. Wooten and Dr. Lyle Wray. Theworkshop will beheld at. the Sunwood Fbtel in St. Cloud from 8:30 a.m. to 3:30 p.m.cost is $30$ which
includes lunch.
For further information, contact: Mary Tjosvold, Camilia Rose Group Home, 11800 Xeon Blvd., Coon Rapids, Minn. 55343. Tel. (612) 755-8400.
Sept. 23
A fall workshop, 'Auditory Training in
the 80S, W has been scheduled for
professionals and parents of hearingimpaired children.Further information
will be printed in next months's newsletter.
FUTURE EVENTS
Nov. 4, 5
;e forms can be obtained from ASI, chic-o Av. S. &illeaPolis, Minn.
'. Tel. (612) 827-3663.
WPrimary Care of the Child with a Developmental Disorder- is a workshop that till be presented by Gillette Hospital's Developmental Disabilities Program Staff, in conjunction with Continuing Medical Education, University of Minnesota. Details will follow later.
RINFORMATION EXCHANGE :%;:....,
Rd
Developmental Disabilities ProgramMinnesota State Planning Agency
201 Capitol Square BuildingW"*IU ,,
550 Ced= Street
II. . . . . . . . .
Roger Strand612/2964018~L "'k" ""m
St. Paul, Minnesota 55101
Editor,,&:<-'"
ATIONAL DD ORGANIZATION EXPANDS EMBERSHIP
o become a stronger national coordinating orce and voice in Washington, D. C., the ational Assoc Iation of Developmental inabilities CounCilS (NADDC) is expanding ts membership to include other groups, rganizations and individuals.
he purposes of NADDC are to:
-Uork toward improving lives of persons
with developmental disabilities; (DD) -Assist in the cooperation and
communication between the National Council on the Handicapped, federal, state and voluntary agencies and other DD organizations concerned with DD and individual state and territorial DD councils and staff;
-Exchange information regarding DD
ationwide; .trengthen effectiveness of individual state and territorial DD councils; and
-Educate and infoxm the public of the needs and rights of persons with DD.
long benefits to members are a free lbscription to FORUM, eligibility for umnittee and task force participation and mchase of reports and studies at cost. ~ual membership fees are: P $35 for
ldivlduals, $20 for students and $100 for
'S~izatiOnt!. Membership fees are tax
ductible.For more information, intact:NADDC, 1234 Massachusetts Av.
r., Suite 203, Washington, D.C. 20005.
1. (202) 347-1234.
LES PROPOSED ON THE PROTECTION OF NDICAPPED INFANTS
July 5, 1983, in the Federal Register,
oposed regulations were issued by the deral Department of Health and Human rvices designed to protect newborn, ndicapped infants from discrimination.
lic comment is requested within a 60y period.
rther informati~ and copies of the oposed rules Cm be obtained from the ate developmental disabilities program flee. Tel. (612) 296-4018.
August 1983
MCKNIGHT GRANT AWARDS ANNOUNCED
Under a grant from"the McKnight
Foundation, the Developmental Disabilities Program of the State Planning Agency recently awarded a total of almost $100,000 to nine agencies for the coming year. The grant program seeks to solve regional problems through coordination, cooperation and modeling to improve ~ service delivery to persons with developmental disabilities.
The program approved the following grants:
--Greater Minneapolis Day Care
Association, for creating a network of care-givers to provide child care to developmentally disabled children;
-Lakeland Mental Health Center (Fergus
Falls), for developing a case management system for preschoolers;
--Northeast Learning Center and Minnesota
Diversified Industries (St. Paul), for developing a specialized work training program;
--Pine River Area Developmental
Achievement Center and Group Home, for providing work for developmentally disabled persons by cleaning and preparing used cars for resale;
-Reuben Llndh Learning Center
(Minneapolis), for delivering developmental services to Hmong children and their families;
-Twin Cities Society for Autistic
Children, for developing training materials for educating residential providers in the behavior management of autistic children and adults;
--United Cerebral Palsy of Minnesota, for
establishing a clearinghouse for used rehabilitation equipment;
-West Central Industries and Glacial
Ridge Training Center (Willmar), for developing a cooperative, specialized work training program; and
--Winona County Developmental
Achievement Center, for providing educational training in infant and
early childhood stimulatim.
.. .KC. 9F EXPERIENCE SPEAXS OUT ON ~G*) Virginians- four professionals and wson with a handicap -- were featured \kers at a statewide panel presentation jhe misuse of diagnostic labels in 'Iottesvllle, Virginia? on November 5,). .Of the five speakers, sponsored byCcsmunity Living Association for the=llY Retarded (CLAMR)S it was Marvin 1ís carefully outlined and well:tlced speech that moved the audience * standing ovation. The following is a tlal transcript of his words.
~ morning. I am Marvin Pope and I live 1 duplex apartment in a neighborhood Led Plymouth Park In the City of sapeake...I am a client of the ~apeake Supervised Apartment Program
have had my own apartment sinoe tember of 1981.
topic for this presentation is
bels.~ There are documented cases of ple who have been labeled 'genius- as ldren, who, as young adults, have mitted suicide because living up to the ectaticn of being a geniua -s ~ust too
h for them to cope with. There are umented cases of people who have been eled 'mentally retarded.wWhat do
se cases have in coammn? Labels. tause of the label ~genius~~ miracles
'e expected. Because of the label mtally retarded,w nothing was
lected. In both cases, labeling was the ~dicap.
mI mentally retarded.That"swhatIOve
m told all my life.
the supervised apartment program, I
re my P.O.R. (problem-oriented record).
Wneedsn list isn't too long because I
re my basic living skills, social skills none too perfect, but who here is
'feet? On the first line are the words, mtally retarded.nWhat does it mean?
means don't expect too much.
work. In fact, I have several $obs. metimes I get fired.Sometimes I quit
en the going gets rough.I can quit th just a slight twinge of guilty nschnce because 1 can hide under the
g safe umbrella that's labeled 'mentally tarded.m
\
.
At this point; I am learning to
avoid. ..helplessness that was created by the label ~mentally retarded," through various placements of my life.Maybe I
know- just maybe -1 would be further ahead today if my label didn't give
society an excuse not to try harder with
me during my school years.MaybeIknow-just maybe-- I would be further ahead
today if my label hadn't given me that excuse not to try harder.Maybe- just
maybe the only things that are labeled are clothes -- not people.Thank YOU.
l Reproduced with permission f~m
Institutions, Etc.% National Center on Institutions and Alternatives, Alexandria,
Va.
CHANGES IN MEDICAID STANDARDS PROPOSED
The federal Health Care Financing Administration, which oversees the Medicaid program, is currently developing new proposed standards for Intermediate Care Facilities for the Mentally Retarded. Publication of the proposed standards In the Federal Register will take place in the fall of 1983 at the earliest. Persons interested in expressing concerns or asking questions about the standards may contact: Dr. Wayne Smith, First Floor DO@OOd East, 1849 Gwynn Oak Av., Baltimore, Md. 21207. Tel. (301) 597-5913.
CONTINENTAL TELEPHONE OFFERS LOAN "
PROGRAM
Continental Telephone Co. now has a loan program for the purchase of teleconmnanications devices for the deaf (TDD) and other adaptive phone equipmentCustomers
of Continental may apply for loans up to $1,000 at six percent interest if they have a certified hearing loss severe enough that they cannot use the telephone without a TDD. To obtain an application form and further information, contact your nearest Continental Telephone Co. office.
CORRECTION In last month's article on the Title XIX Waiver, the phrase 'optional functioning should have read
Woptimal functioniu.w
f ZALESKI WINS NATIONAL AWARD
Zaleski, outreach coordinator
for the
St Central Epilepsy League, received
International Community Program Award competition sponsored by the
jional Organization on Disabilities.
l wiming entry was a slide-tape !sentation 'Follow the Yellow Brick Ld,n which Zaleski wrote and produced as 't of the International Year of Disabled *sons in St. Cloud. The production lfronts people's attitudes towards
)ers who have a disability.The !sentation? with a discussion leaderf
1 be scheduled by contacting:Kathy Men, Tri-County Action Programs, Inc., I So. Benton Dr., P.O. Box 165, Sauk lids, hfi.nn. 56379.Tel. (612) 251-1612.
INESOTA TO HOST NATIONAL EPILEPSY
'FERENCE
nesota has been chosen as the host .te for the 1984 Epilepsy Foundation rica National Conference to be held IY autumn. Dates and hotel
of in
mmodations are being negotiated.For e information, contact: Carol Johnson, nesota Epilepsy League, 404 S. 8th
ure Reflections is a magazine for ents of blind or visually handicapped Idren. Recent issues have contained
icles on educational toys, textbooks
myths about blindness. Subscriptions
free, but contributions to the
ional Federaion of the Blind are ouraged.Contact: Barbara Cheadle,
tor, Future Reflections, P.O. Box 1947,
se, Idaho 93701.
,,.
Home Accessibility Information Series,
Minnesota Housing Finance Agency. A set
of nine brochures highlight-how-to modifi an existing single-family home in order to increase accessibility for people with physical handicaps.The series contains:
1) general issues in remodeling; 2) movement and circulation space, doors and floors; 3) ramps; 4) safe stairways; 5) lifting devices; 6) bathrooms; 7) kitchens; 8) transfer and balance aids (grab bars, handrails and guardrails); 9) controls and equipment. Price: $4.50 plus $1 for postage and handling,
prepaid.Contact: Minnesota Documents Center, 117 University Av., St. Paul, Minn. 55155.Tel. (612) 297-3000 or
toll-free (8oo) 652-9747.
Note: A limit of three brochures are available free of charge from the Minnesota State Council for the Handicapped. Tel. (612) 296-6785 or, toll
free, (8oo) 652-9747.
The Cost of Accessibility in New SingleFamily Homesl Minnesota Housing Finance Agency. This report evaluates how new construction design can be modified to provide accessible facilities and the impact on costs and potential areas for cost trade-offs. Price: $4, plus $1 postage and handling, prepaid. Contact: Minnesota Documents Center, as listed in preceding article.
EVENTS
Nov. 3-5
wIntertjependence:The Next Decaden will
be the theme of the IOth Annual Conference
of The Association for the Severely Handicapped (TASH).The conference will
be held at the Cathedral Hill Hotel, San Francisco, Calif.For registration and
information about air fare bargains, contact: TASH, 7010 NE. Roosevelt Way, Seattle, Wash. 98115. Tel. (206) 5238446.
itory Assessment and Programing for erely Handicapped Deaf-Blind StudentsL
Association for the Severely dicapped (TASH), 1983. This IS a
ual that offers strategies for
taring severely handicapped students
do not respond to conventional hearing ts. The program outlined is
xpensive and fhn to use, requiring only hts and extension cords. Price is
75*Contact: TASH, 7010 NE. Roosevelt , Seattle, Wash. 98115.
. ..Il IYEARNING POR LEARNINGI8The state ~velo~mtal Disabilities Program Office has acquired several education? tmlnine and reaouroe materials.They may be borrowed from each
of the regi=al Welo-tal D@abiliti~ officos and f~m the atate p~~ offico in St. Paul. Eaah month, thla seotlua of DD reformation BXChanRe
1highlights selections fxum these reacurcea.
and Cook ~ St. Paul Public Schools, aota Instructional Haterials
r. This cookbook ia the result of al years of developing teaching '181s and recipes In the St. Paul
,C School "s vocational and adult ,tion programs for people ulth mental dation. The recipes are econcmlcal, to prepare and emphasize nutrients
I tWin6 to lfmit calories.MxOmes
;he adult students include the L~ttOXl Of fOOd ; s-- food )ctively; uorklng safely with kitchen
ment; purchasing and storing food; mlecting food for nutritional value.
mokbook may be borrowed for three
s from the state Developmental >ilittes program office aly.Tel.
) 296-4018.
Metropolitan Ceuncil DD Program
300 7th St.
Metro" Square Building and Robert Sts.
Paul, MN 55101
Planning and ~rattnaGroup Homes for the Eandioapped ~ G. S. Youngblcod and G. J. Bensberg, Texas Tech University, 1983.
Thia 1S a guide for developing Independent living facillt%es for persons with developm=tal dimabtlitiea. The guide addresses:alternative llving
modela, federal progra-, planning and locatlng homes~ health and safetY atandards S policies ? procedures and program. Copies may be borrowed from the atate developmental diaabllitlea prcgam offi- by calms (612) 296-4018 ~ or they may be purchased for $10 from: Re=r*
and Training Center in Mental Retardation, Texaa Tech Univeratty, Box 4510, Lubb~k, Tex. 79409. Tel. (806)
742-3131.
Bulk Rate U.S. Postage
PAID Mpls. Minn.
Permit No. 1610
HR. mGER ST~A~D
s~A~~ PLAN OEV DISAB PRO 201 CAPITOL SQLJA= 8L
ST PAUL MN 551~~
Published monthly by the Developmental Disabilities Program of the Metropolitan Health Planning BoardMetropolitan Council300 Metro Square BuildingSt. Paul, Minnesota 55101Toni Lippert: 291-6364Vol. 8. No- 9Tom Chapel: 291-6357
.lIO DD PROGRAM NENSTraininEprcflect Planned-Developmental Disabilities (DD)!Z%UZ will be implementing axxstraticn Pmj-t ~t~tiw Oct' 1 ?
3. Oneofthe Project activities will
:he placement of developmentally
tbled adults at communitY business
m for job training and employment.
DD program is seeking to contract for
year with two consultants to perform
zlffc services for this Conmnanity Work
~ Project. Each consultant is to
rorm the duties described below.
L'ED: CONSULTANTS
In6u&zti kth cxpu.ience in voca-tiond
tining and pmoven mtikcting/htiti htia .eded to womk &k )2ZOjCti .tO phCe
tiapped and mu.talty w-&u&d aduG2 in
dz 2@Lw'1" g &Lte6 in Communal" g bu4ine44c4. tipOdb& 60JL WOfitig (&?% .tocd btibtihe$
d ag~~~ ,t? fecuze Woti ~g ,~~~;
!v*@tg<-g, and Aupwv.dag
lfiv~cd Olaal.ag pkogm ~oa 15 ok ~Ze twtneti; and &g a.6 a l&i.4on &
@ @?@Ogti, tie ti~~, Othti PfiO~@t
W
g dti~~, and pubtic &wuLing agentiti.
to to *U y(UzM axp#L&zca h VocaZLovla.t
uzlning $o& men?2zWj WtaUied peop~e a.he
L@@. AdWZonaL expwience in vocaZLond -g ~O& phy~ictiy handtUPped peoph
LA&ab'&.MuA-t be abla to agghtih.ivdg nwket zc pco jat to pzohpetive emploYU4. Ptio~ dut.ing/4a&z4 aXp@LiWCe and ~~ ,tih L&@ihti%-tt .taboa and VOUL-tiOd UhUbdL u20n ugutdioti pae~~ed. MuAt ba able to - ideti~y and cRea.t@etY Ao&e ptobt~, d to wmk e~ietivc-ty wi-th btiinu~pcople, XL@ hita~~ and pm.apzo&6&ionat Ouz.hn6.
W COMUL-taMl W.LU Woti Unda Covu%ac-t to
ic IA&opoUtan Uevdopmcti VtiabUti Logzam o~ the M&opoUAzn COUWU. The mtmwt .L5 ~ok one yuw.Con.tn.ati mount
~ $0 $28,000.
m mote .i.ndommz?%n ot Rq.Led dot Pfiopo&LL,
tit OZ d, h. Toti tippti &t a%? Zaopouawl Cow'mw 300 titio sq@~ w=> t. Paul, tin. 55101. Tti. (612] 291-6363. za&ine ~o~ hubm.L6-5Lon o~ p&opo4atX b
@cmba 23, 19g3.
EMPLOYMENT OPPORTUNITIES
GrcuP Home Supervisors Needed
A live-in couple is needed for a small
group home located in Shoreview for eight mentally retarded adults.The salary is
$16,700 annually, plus room and board.
For more information, call Ann Carey at
( 612) 482-9678 before Sept. 15.
FOR YOUR INFORMATION
Foster Homes Needed The treatment foster
home division of
Treatment Program for Male Victims of
Sexual Abuse, Inc. (TFT4VSA) is seeking potential special foster homes in the Metropolitan Area. The homes would provide care for mentally retarded or physically handicapped children who are victims of sexual abuse.Experience and
understanding of developmental disabilities and sexual victimization is desired but not necessary. The agency will provide extensive training in both ar
for interested individuals or families.
Individuals or couples interested in this
special project should contact Bruce Hesse, social work supervisor, TPMVSA, Inc., Treatment Foster Home Division, 1502 Nicollet Av. S. MinneaPolis~ Minn= 55403* Tel. (612) 888-3324.
Community Representatives Needed
The Minnesota Epilepsy League (MEL) is
seeking volunteers to serve as comzunity representatives in their local cozmmnities. Qualifications include a strong Interest in epilepsy education? good verbal skills, willingness to attend 20 hours of training, to distribute literature and posters and the ability to make presentations to cozmmnity organizations.
For an interview, call (800) 292-7932.
SEVERELY HANDICAPPED PERSONS IN THE COMMUNITY: "
EDUCATIONAL, RESIDENTIAL, AND VOCATIONAL INTEGRATION
Minnesota Association for the Severely Handicapped
Handicapped Students wlthln our Public Schools (October
20)
Paul Wehman (Vtiglnia Commonwealth University) ~te~at%
Severely Handicapped Pq~sons within the Working Community (October 21)
ADDITIONAL PRESENTATIONS on issues tivolving severely handicapped persons include:
Foster Home Placements
DACS through Private Industries
Personnel Motivation in Group Homes
Peer'Tutoring Programs for Fostering Integration and Attitude Change Supportive Day programs for Keeping Persons In Gnup Homes
t
Systems Change Project for Low Incidence Populations h Rural Settings
Psychoactive Dregs In Residential Pngrams
Keeping Severely Hsndlcapped Children in Theti Own Homes
Developing Leisure Skills in Commune@ Recreatimal Programs " - " Functional Ianguage Programs In the Home
Medical Asslstaxrce Waiver
Vocational Trahdng in the Community at aHigh School Level
Handicap Awareness Activities for School Programs
The
For
Complete Progrsmwlll. be
contact:
Room Reservation contact
available lnmld+eptember. For further Mo-tion
Nancy J. Fenrick, Special Education Department,
Mad&o State University, Mankato, MN. 56001 (507-389-~122]
the Ramada Hotel directly.Rates are $45yer room (not per person) for up to 4 occupants.Rsmada Hotel 42OO West 78th St.,
Minneawlis MN. 55434 (Phone either 612-831-L200 or Toll Free
800-22~-2828).
For Preregistration please make.the check out to MUSH and mail by October 10 to:
Paul Hagen-MNASH, POBOX 3383~ ~ato ~0 56002
Name
Address\
AreyouamemberofMNASHofTASH
Check one:Thursday, October 20 only ($20)FWiay, October 21 only ($20)
Both Thursday and Frldv ($35)4 Or you may register at the door
.
Lunteers Needed
Retreat (Continued)
) Multiple Sclerosis (MS) Society is
Mcing volunteers to assist in their }pted aquatics program.In St. Paul,
s tr%ining session will be at Gillette lpltal-on Sept. 21$ and at Courage
Iter in Golden Valley on Sept. 27.
volunteer, or to obtain further ~onnation, contact Sandy Johnson at
12) 870-1500.
lplified Admission Form Widely Used
1 Developmental Services Organization
;0) announced that more than 55
nriders of residential care facilities
s people who are developmentally
~abhd have requested copies of the DSO Iission/application form packet.
luests have come from 23 different
. . .-.--., .--,---- _ -.-.-.
Ltes.
t project was initiated originally by
) to simplify admission procedures for 'exts, social workers and residential !ility providers for mentally retarded lple in Minnesota. The standardized
ma eliminate excessive paper work. 10s1, behavioral and other information ma needed for admission to a facility
~ included in the packet.
~ project in Minnesota has been
remely successful with an average of 95 'cent usage. Other states use DSO"S
ket as a m6del, making adjustments to
individual state rules and regulations.
obtain a copy of the packet, contact
e Birks, executive director at elopmental Services Organization, Pelham Blvd., St. Paul, Minn. 55114.
. . (612) 646-2711.
reats for Parents Planned
\ '.asociation for Retarded Citizens
,.,of Hennepin County announced plans go more parent-respite weekends this
1. The retreats wtll take place at
ian Chief Camp in Eden Prairie on
t. 23-25 and Oct. 28-30, from 6:30
,. Friday to 1 p.m. Sunday.
For more information
call ARC/
Hennepin County at (612) 874-6650.
Information Packets About Disabled Students Available
The U. S. Department of Education has funded a Naticnal Information Center for Handicapped Children and Youth. Currently, the center is developing information packets and other information materials concerning disabled individuals, ages o-18 years, or who are still in public schools.
For further information, contact the
center at P.O. Box 1492, Washington, D.C. 22036.Tel. (7o3) 428-848o.
Metro Mobility Users Must Be Recertified The Minnesota Legislature included more
specific eligibility criteria for riders using Metro Mobility.Riders will now
need to be recertified. Certification
requires that each person meet at least one of the following criteria:
--Unable to walk 1/4 mile or more. --Unable to walk up and down mainline
bus steps. --Unable to wait outside for 10 minutes
or more. --Unable to learn to use mainline bus
service due to mental impairment or learning disability.
For more information, call (612) 644-1119.
Special Library Services Offered
The State Services for the Blind
provide free auditory services such as radio talking books, special cassette players or phonographs for reproducing newspaper itemsj books and magazines. These services are available for people who are partially sighted, physically handicapped (unable to hold a book or turn pages), blind, temporarily disabled or terminally ill.
Fcr more information, call (612) 296-7560
cr toll-free, (8oo) 652-9000.
)akota County Association for Retarded ~+tizens Fall Programs.egal Advocacy for Developmentally )isabled Per-sons will present two }rograms on ~Planning for the Futuren on ]ct. 11 and oct. 18, 7-9 p.m.? at the 'armington High School Library, 800 lenmark St., Farmfngton.'barn Sorem, developmental disabilities ounselor, will present two programs at he Farmington Area Senior Citizens enter, 431 Srd. St., Farmington.The Family With a DevelopmentallyIsabled Child: Learning How to Copen ill be presented on Nov. 5. 10 a.m.-l2 .m. and ~Sexuality and Your evelopmentally Disabled Son or Daughtern n Nov. 12, 10 a.m.-l2 p.m.
he fee is $3 per person per session.
ther services include a weekend
streat for mothers of school-aged, mtally retarded children to be held at ~mp Indian Chief on Birch Island Park in ~en Prairie, Sept. 16-18.
List of support groups in St. Paul, ;nneapolis and Dakota County for parents T Down Syndrome children can be obtained r calling the number below.
~r additional information on any of
love programs, call (612) 457-2588.
aring Society Offers SignClasse9
e Hearing Society of Minnesota will
the
'fer Intermediate Signed English
giming Sept. 15. This course is signed for parents and professionals to courage better communication between aring-impaired children and people in eir home and school environment.This
not a course in American Sign Language. m
n sessions will run from Sept. 15 to
v. 17, Thursdays, 6:30-8:30 p.m., at the wing Society, 2100 Stevens Av. S., meapolis.The fee is $36 per person or
3 per couple.Jeanne Sielaff will teach course.
m a copy of the class schedules or for ?ormation on other course offerlngss
D The Hearing Society of Minnesota at 12) 870-0321 (voice or TTY).
Making Shopping Accessible
Shopper Special la a pamphlet with a
checklist alerting store managers to important features that can help make their facilities more accessible.It also
contains tips to help sales personnel respond to the special needs of shoppers who have mobility or other impairments.
Single copies of Shopper Special (publication A-306) may be obtained by sending a self-addressed, business-sized envelope to the National Easter Seal Society, 2023
W. Ogden Av., Chicago, Ill. 60612.
Work for Retarded People
Community Employment, a county-subsidized
janitorial service, employs mentally retarded adults who are living independently in the community and who have graduated from residential facilities. The service area includes southern Ramsey and Hennepin Counties and northern Dakota County.The project is
sponsored by AID Homes, Inc.
For further information, or free estimates, contact Karl Forsberg at (612) 452-4264.
For Help With Siblings of Handicapped Children
The Sibling Information Network shares
information with professionals and families regarding service projects, research and literature involving siblings of children with handicapping conditions. The network publishes a quarterly newsletter and hopes to initiate conferences, special projects and research aimed at helping siblings.Membership
dues are $5 annually. For more information contact: The Sibling Information Network, School of Educational Psychology, Box D-64. University of Connecticut, Storrs, Corm. 06260. Tel. (203) 486-4034.
IRKSHOPS ? CONFERENCES
pt. 16
earning to Play:Playlng to Learn, " a rkshop sponsored by REM Comulting and rvices, Inc., covers principles of adult ncompetitive play.The workshop will be
highly experiential session Zn which alth care, social service and Iabilitaticn professionals will be Introduced to play and discover the
~ic of play-growth. It will be held at graton Park Places 555 Wayzata Blvd.$
t Louis Park, from 9 a.m. to 4:30 p.m.
5 cost is $37 and includes coffee, box lch and handouts.
l more information~ contact Dave Pfriem, 6 Inc., 6921 York Av. S. Edina, Mlnn.
~35e Tel. (6I2) 925-s067.C
~t. 23-24
)arning to ListenW is a workshop Iigned for teachers of hearing-impaired Sdren, parents, speech olinlcians and Mologists.It will be held at
mepin Technical Center, 9200 Flying
ud Drive, Eden Prairie, beginning
day at 7 p.m. and ending Saturday at )0 p.m.
I more information, contact the
,nesota Foundation for Better Hearing
Speech, 508 Bremer Bldg., 7th and ert Sts., St. Paul~ Minn. 55101.
.(612) 222-6866.
t. 29
Minnesota Council on Foundations' th Annual Twin Cities Public Meeting 1 be held at O'Shaughnessy Auditorium the campus of the college of St. herine, St. Paul.It will provide an
ortunity for the public to meet nesota"s grant makers and discuss
'Every Body Grows UpN is a seminar to be held at Gillette Children's Hospital, 200 University Av. E., 9 a.m.-4:45 p.m. For disabled young people 11 years and older and their families. The seminar will provide information on sexuality, relationships and coummnication between family members.
Conference (Continued)
Registration fee is $15 per family. To
register, contact Aileen Baesemann at
(612) 291-2848, ext. 168.
FUTURE EVENTS
Oct. 21-22
The Minnesota Speech-Language
Hearing
Associatlcn (MSHA) will =ponsor a se~nar, 'The Use of Microcomputers and the Conmmnicatively Handicapped Individual at the Holiday Inn St. Paul North, 2450 N.
Cleveland Av., St. Paul, Minn.
For more information and registration
material, call the MSHA office at (612) 935-5057.
Nov. 5
The annual meeting of the Minnesota
Epilepsy League, (MEL) Inc. will be held at the Holiday Inn Airport #2, Bloomington.
For more information, call MEL AT (612)
227-8373. NOV. 11
Nov. 11
'Seating and Mobillty Systemsw is a course
presented by the Orthotic and" Prosthetic Laboratory and Physical and Occupational Therapy Department at Gillette Children's Hospital. It is for physical and occupational therapistap orthotists~ nurses, physicians and special education teachers concerned with young people with disabilities.
EXCHANGE %%kmrrrDevelopmental Disabilities Program201 Capitol Square Building560 Cedar Street hSt. Paul, Minneaota 55101Minnesota State Planning AgencyuIMOIC Ot17~i "$Jff'&Roger Strand612/296-4018Editorpl%%x;'INFORMATIONSeptember 1983CHILD PASSENGER RESTRAINT LAW TIGHTENEDERPICH FILLS STATE DD COUNCIL ACANCIES'en people have been newly appointed and hree were reappointed by Gov. Rudy erpich to serve on the Governor lanning Council on Developmental Disabilities. Members are consumers people with developmental disabilities) p larents and service providers.
Iew appointments are:
,-Robert DeBoer, Minneapolis .-Mary Rae Freeberg, Little Falls ,-Bonnie Hanunel, St. Paul
.-Felipe Ramirez, Apple Valley ,-Sharon Shapiro, Minneapolis .-Larry We fring, St. Paul
Reappointments are:
,-Richard Nelson, Mimeapolis, Chair .-Rick Amado, St. Paul
,-Kathleen Sturre, Staples
[embers continuing their appointments ,re:
,-Douglas Butler, Rochester .-Roger Deneen, Sandstone .-Eric Errickson, Cambridge .-John Groos, St. Paul .-Virginia Hanel, Mankato .-Mary Hinze, St. Paul .-Jan Jenkins, St. Paul --Robert Johnson, Windom .-Virginia Marolt, Gilbert .-Ruth Rafteseth, Crookston .-Elaine Saline, St. Paul
-Glen Samuelson, St. Paul
.0x% Strom, St. Paul Marvin Tritz, Dumont
Due to an amendment passed during the last legislative session, law enforcement officers may ticket Minnesotans traveling with children under age four if the children are not buckled into an approved child passenger restraint.The original
law provided that parents or legal guardians install child restraint systems in their motor vehicles. However, the amendment requires that the system be used and provides penalties.
No penalty is imposed for failure to install the restraint if within 30 days of the offense violators can prove that approved devices have been purchased. However, further offenses within one year impose a $25 fine for each offense. Violations of the law are petty misdemeanors, but cannot be counted as chargeable traffic violations.The law
applies only to Minnesota residents.
Information about where child passenger restraints can be borrowed or rented is available through the Minnesota Safety Council, (612) 291-9150.
GOVERNOR'S OFFICE INSTALLS TDD
Persons using telecommunications devices for the deaf (TDDs) may now call the Governor's office or state legislators. Messages will be relayed to the appropriate person. Call between 9 a.m. and b p.m. Monday through Friday.Tel.
(612) 296-0010 (TDD) or (612) 296-3391 (TDD).
SECOND POLICY ANALYSIS BINDER AVAILABLE
A second volume binder for the Policy Analysis Series: Issues Related to Welsch v. Levine Consent Decree will be mailed in October to those on the series
mailing list. The series examines topics relating to services for people who are developmentally disabled.
.
RANSPORTATION GRANT FUNDS AVAILABLE
der provisions of the Urban Mass ansportation Act, capital assistance ant funds are available to private, nonofit corporations to buy equipment and cilities to tranaport handicapped
d elderly persons.Grants are for the
rchase of lift-equipped buses, placement of vehicles, expansion of rrent services or initiation of new rvices. Applications must be submitted
Oct. 17, 1983.For applications and re information, contact:Nancy A.
ores Special Projects Coordinator, 'fice of Transit, 815 Transportation
@.$ St. Paul, MlM. 55155. Tel. (612) 6-7590.
ACHNETWORKGROWS
IACH is a Family Support Network Project ' the Mental Health Association of nnesota. It has expanded rapidly across e state since it began receiving riding through a McKnight Foundation 'ant in January. Currently 18 groups
wide support and information to mil.ies and friends of persons with mtal illness. For more information, Intact: Julie Dahl, (612) 835-9046
I toll-free, (8oo) 862-1799.
IOJECT SHARE SEEKS HUMAN SERVICE
KUMENTS
'eject SHARE is a clearinghouse ltablished by the federal Department of !alth and Human Services to provide ~formation for improving the management ' human services. Users of the service
w asked to submit complimentary copies ? any published or unpublished documents :levant to practical and theoretical )proaches to the planning, delivery and ltegration of human services.Submit
wVolunteer Program Managementn will be the topic of eight one-day regional workshops scheduled In September and October by the Minnesota Office of Volunteer Services (MOVS). Training Will
be provided in plannlng and implementing effective volunteer programs and citizen participation efforts. The dates and locations of the workshops are:
For a workshop brochure or more information, contact Rita G. Goldhanuner? Volunteer for Minnesota, MOVS, 200 Administration Bldg., St. Paul, Minn. 55155.Tel. (612) 296-4732 or toll-frees
(8oo) 652-9747.
FIRE SAFETY TRAINING AVAILABLE
Audio-visual training materials on fire safety for adults with mental retardation are now available. The Massachusetts Firefighting Academy has developed slidetape programs, a trainer's guide and a
review booklet. For more information, contact: Corinne Broderiok, Manager of Education Projects, National Fire Protection Association, Batterymarch Park, Quincy, Mass. 02269.
FREE SUPPLEMENTARY SECURITY ACCOUNT BOOKS AVAILABLE
People who receive Supplementary Security Income (SS1) benefits on behalf of another personr called 'representative payeesjn may obtain a free account book from any Social Security office. These books can be used to record the payee's handling of SS1 benefits, useful when making periodic reports to the Social Security Administration.
'"EILICATIONS
Look and Cook, a publication listed in last month's DD Information Exchange under 'Yearning for Learning, W may be purchased for $3.25 from the The Minnesota Curriculum Services Center, 3554 White Bear Av., White Bear Lake,
Minn. 55110.
Capsule is a new newsletter published every other week by The Chemical People/Minnesota, a project to prevent chemical abuse among youth.A community
~utreach campaign is currently under way to recruit volunteers to organize and attend town meetings in conjunction with the airing of' a special series, 'The Ohemioal People/Minnesotan over public television stations Nov. 1, 2 and 3. ?or more information, write: The Ohemical People/Minnesota, c/o Minnesota tnstitute, 28I9 Verndale Av., Anoka, 'iinn. 55303.Tel. (612) 427-5310.
.gal Rights of Developmentally
lisabled Persons: An Advocacy Manual for finnesota and Supplement are available :ogether for $5 (plus $1 postage). ;opies of the 41-page Supplement may be mrchased for $2 (plus $.65 postage). ;ontact:Legal Advocacy for
developmentally Disabled Persons in !imesota, 222 Grain Exchange Bldg., 323 lth Av. S., Minneapolis, Minn. 55415. !el. (612) 338-0968 or toll-free, (8oo) !92-4150.
Wing for Your Child with Spire Bifida, ly N. Cloptonj is a guide for parents, teachers and therapists.It includes
rawings and diagrams explaining gait raining, exercises and other activities o help children with spine bifida to row up as ambulatory and independent as ossible. The focus is on the whole hild. Paperback is $5.95; plastic inding $6.50 (prepaid). Order from: terna Press, P.O. Box 1344, Oak Brook, 11. 60521.
EVENTS
Sept. 24 (2 - 11 p.m.)
'Solidarity Dayn will be a day for
celebrating past accomplishments by people with any type of disability. It will be held at the Sheraton Ritz Hotel, 315 Nicollet Mall in Minneapolis. To volunteer your help, or for more information, call United Handicapped
Federation at (612) 645-8922.
Sept. 29 (12:30 - 5 p.m.)
The Wsixth Annual Twin cities
Meetingn will be sponsored by
Public the
Minnesota Council on Foundations (MCF) at O'Shaughnessy Auditorium, College of St. Catherine, St. Paul. This will provide
the opportunity for the public to meet Minnesota's grant makers and discuss issues of mutual concern.The fee is $5.
Convention will be held at the Marriott Inn, Charles at Orms Sts., Providence, Rhode Island. Contact:Down's Syndrome
Congress, 1640 W. Roosevelt Rd., Chicago, Ill. 60608.Tel. (312) 226-0416.
FUTURE EVENTS
Nov. 9-11
The Minnesota Developmental Achievement
Centers Association (MnDACA) Annual Conference will be held at the Radisson Arrowwood Resort in Alexandria. Featured speakers include Minnesota Supreme Court Justice John Stionett and Dr. Lou Brown, University of Wisconsin-Madison. For more information~ contact:MnDACA,
Griggs-Midway Bldg., (S-277)? 1821 University Av., St. Paul, Minn. 55104 Tel. (612) 647-9200.
.
*
IYEARNING FOR LEARNING
I
The state Developmental Disabilities Program Office has acquired several education~ training and resource materials.They may be borrowed from each
of the regional Developmental Disabilities offices and from the state program
office in St. Paul. Each month, this section of DD Information Exchange highlights selections from these resources.
01 (plus) Ways to Squeeze More Out of 'our Local Government Mllm:
'productivity and Cost-Reduction Plan, Wince George's County, Maryland.This
.s a catalogue of more than 150 cost Deduction and productivity projects rnplemented at the county level in laryland. The plan's success helped to aintain and improve essential services, md, at the same time lowered property ax rates by 20.5 percent; provided $20.8 billion in property tax relief; reduced pending growth to an average of four Iercent annually; provided employee pay aises averaging 5.6 percent per year; md reduced bonded debt by $52.2 lillion. Available from the state developmental Disabilities pm= office rely. Tel. (612) 296-4018.
Metropolitan Council DD Promam "
300 7th St.
Metro Square Building and Robert Sts.
Paul, MN 55101
I
The Rights of Handicapped Students, C.
H. Citron, Education Commission of the states, 1982.This book analyzes federal
and state constitutions and laws pertaining to educational rights of handicapped students. The purpose is to serve as a resource to state officials and others who seek relatively comprehensive and detailed information. It should also facilitate Interstate exchange of information concerning different states' approaches to rights of students who are handicapped. Available from the state Developmental Disabilities program office only. Tel. (612) 296-4018.
-
.
.
nBulk Rate
U.S. Postage
PAID Mpls. Minn.
Permit No. 1610
nrINFORMATION'~ EXCHANGEPublished monthly by the Developmental Disabilities Program of the Metropolitan Health Planning BoardMetropolitan Council300 Metro Square Building St. Paul, Minnesota 55101 Toni Lippert: 291-6364ETRO DD PROGRAM NEWSVol . 8. No. 11November 1983ayser Joins DD Staffhe Developmental Disabilities (DD)rogram staff has a new research nalyst/pl anner.Terrence Kayserspl aces Tom Chapel who moved to a ~sition on the Health Planning Board taff in October.
ince 1977, Terry has been with the
]ecial Education Program and Minnesota search and Development Center for 'cational Education at the University of
me sota.He is nearing completion of is Ph.D. in vocational education.Before
~ming to Minnesota,Terry was a special iucation teacher and school vocational ~aluator in phoenix, Arizona.
's interests, experiences and
Ibl ications cover the following DD
'eas:program evaluation, organization Id development, vocational skills .aining, industrial and rehabilitation lgineering, computer-assisted instruction ~d computer data-based management.
!rry is married to Joanne DeBerry, an ex
'ficio member of the Developmental stabilities Task Force.Joanna is a
Irmer assistant professor of special !ucation at Mankato State University. l~a~;;da son who is developmentally
.
e Metro DD Program has been fortunate in
.tracting research analysts with skills oropriate for the work they do. Tom :pel and his predecessor, Joe Banda, ovided technical assistance and analytic ills to the DD constituency in the tropolitan Area.
DD Proaram News (Continued)
In the next few years, as the Metro DD Program emphasizes planning for better co!mnunity integration and undertakes the demonstration of a conmwnity work training project, Terry Kayser-s knowledge and experience indicate he is the right person for this position.He welcome him to our
staff.
Videotape on Residential Programs Available
The Metropolitan Council-s Developmental
Disabilities Program has agreed to act as
the Metropolitan Region distributor of a 20-minute videotape displaying Minnesota alternatives in residential living for
persons who are retarded. The Association of Residences for the Retarded in Minnesota, using funds from the McKnight Foundation (ARRM/McKnight), produced the videotape titled "Alternatives."It shows existing
residential programs that demonstrate innovations developed by counties and care providers.
"Alternatives" was developed as part of the ARRM/McKnight projects dedicated to system change and will serve to stimulate further discussion of residential options allowed by a Title XIX waiver.(Waivered
services are less restrictive alternatives to services such as those in
state hospital: facilities. )
The videotape "
of information
and conmunity residential
s accompanied by a packet about the Title XIX waiver
.
leotaDe (Continued)
I a Tist of possfble discussion !stions. Three-fourths-inch U-Matic, !" VHS or BETA II copies may be 'rowed, without charge, from the :ropolitan Council-s Developmental abilities Program, 300 Metro Square lg., 7th and Robert Sts., St. Paul, In. 55101.Tel. (612) 291-6363.
Ionizations and agencies ape invited to te or call to arrange for use of the Ieotape.
.UNTEERS, EDITOR NEEDED
! Assoc~ation for Retarded Citizens of Inepin County needs a volunteer with !rical and typing skills to work proximately four hours a week. To unteer, call Cheryl at (612) 874-6650.
) volunteers are needed for a few hours !kly to assist with general office
'k in the national office of the Praderli Syndrome Association in Edina.
! Prader-Willi Association is also !king to fill the position of
fsletter editor for their bi-monthly
we at an annual salary of $3,000.
l more information, contact Marge A. tt, executive director, Prader Mil 1 iIdrome Association, 5515 Malibu Drive, Ina, Minn. 55436.Tel. (612) 933-0113.
? YOUI? INFORMATION
;ter Grandparents Needed
T and women age 60 and over who enjoy fldren are asked to consider becoming a ster grandparent to a special-needs ild who lives outside the natural
W.
ster grandparents will take children
r walks, play with them, teach them how
dress themselves, but primarily will
t as a special friend.
Foster Grandparents (Continued)
Benefits include a weekly stipend of $40 for 20 hours involvement, accident insurance, sick pay, tax-free income, transportation allowance, an annual phystcal, a daily hot meal and social contact with others.
The program serves a dual purpose. It allows children with special needs to develop a close relationship with an adult and it gives retired persons another purposeful activity and an extra living allowance.
The Foster Grandparent Program receives state and federal funding. For mope information, call Jim Lieder at (612) 827-25641.
Christmas Cards for Sale
Christmas Cards designed by mentally
retarded chf7dren and adults are available from the Association for Retarded Citfzens/Dakota County (ARC). The cards are avaflable from the ARC office at 33 E. Wentworth Av. Suite 105 in nest St. Paul durfng offjce hours -8:30 a.m.- 4:30 p.m. weekdays.
Volunteers in cominunities throughout Dakota County will also have cards for sale.
To find the location nearest you, call the ARC office at (612) 457-2588.
"Christmas Carol - Program Scheduled
A block of 200 tickets has been purchased
by the Association for Retarded Cftizens of Hennepin County for a performance of "A Christmas Carol" at the Guthrie Theatre at 8 p.m. on Thursday, Dec. 8. There will be a social hour from 7 to 7:45 p.m. at the North American Life and Casualty Bldg. adjacent to the Guthrie Theatre.Jim Klobuchar, Minneapolis Star
and Tribune columnist, will be the guest speaker. Tickets are $15, with $3 going to the "Christmas for People Who are Mentally Retarded" fundraising campaign.
;hrfstmas Program (Continued)
laKe checks payable to: Christmas for
eople.Mail to:A Christmas Carol, ,RC of Hennepin County, 2344 Nicollet
v.,#370, Minneapolis, Minn. 554o4, or all (612) 874-6650 for more information.
EM SERVICES
ehabilitation Engineering Clinic
ourage Center-s new pediatric
ehabilitation engineering clinic in
olden Valley is open for referral of ases where problems from physical isability require the use of technical
ids.The clintc provides a forum where he technological assistance of ~habilitation engineering can be focused I the mobility, independence, functional Id cognitive growth of children. nphasis will be on:
-Functional therapeutic aids;
-Mobility aids;
Iucational aids, including adaptations .0 computers;
Recreational equipment and other adaptations.
ferrals to the clinic can be made by
ntacting the rehabilitation engineer or
. . .
Ie intake coordinator at Courage !nter. Tel. (612) 588-0811.
IBLICATIONS
'ader-klilli and You is a book directed
; the person with Prader-Willi Syndrome IWS) and includes conmlete instructions r a restricted, weli -balanced diet.
e book could also be used by others
th special dietary needs that use a
od group dietary exchange system.
e cost is $5.50, which includes postage
d handling.Order from PMSA, 5515 libu Dr. Edina, Minn. 55436.
ANNUAL CONFERENCES
The Mental Health Advocates Coa.
Minnesota will hold their sixth meeting at 7 p.m. on Nov. 10 at Hall, 286 Marshall Av. in St. Pi
of
The meetinq will include a Droqram. "How
ition annua' Guild U1.
Many Roads-to Recovery?", feat~ring a panel of speakers on community treatment programs, surviving a suicide, views of former patients,biochemical aspects of
mental illness, effects on siblings and spiritual perspectives on recovery.
The meeting is free and open to the public.For more information, cal 1 (612)
222-2741.
WORKSHOPS
Nov. 7
The Association for Retarded Citizens (ARC) of St. Paul is sponsoring a . program, "Wills, Trusts and Guardianship,"designed to help parents
ensure security for a family member who is mentally retarded. The workshop will show how personal guardianship affects the ability to make decisions for a retarded person.It will be held from 7:30-9:30
p.m. at the ARC office fn the YMCA Bldg., 65 E. Kellogg Blvd. in St. Paul. Speakers are John LeMay, an attorney fn prfvate practice and Steve Scott, an attorney with Legal Advocacy for the Developmentally Disabled.
Admfssion is free.To register, call
Mary Hinze at the ARC Office, (612) 2243301 l
Nov. 10, 17, Dec. 8
The Association for Retarded Cftizens (ARC) of Hennepin County is sponsoring a three-session workshop and discussion group to help mothers of handicapped children understand how inappropriate behavior begins and how to deal with it effectively before it gets out of
control.Discussions will focus on implementing techniques to reduce inappropriate behavfor and increase appropriate behavior.
}ference (Continued)
! leader of the workshop and discussion NIp Is Dr. Arlyne Gutmann, a licensed Isulting psychologist,who has worked in ! field of mental retardation for 13 lrs.
I wrkshops will be held at the ARC 'ice at 2344 Nicollet Av. S., meapolis, from 9:30-11 a.m. The fee $9 for the three sessions ($5 for ARC Ibers) or ability to pay. To register, 1 Terri at {612) 874-6650 by Nov. 8.
'. 19
ents Advocacy Coalition for
cational Rights (PACER) will sponsor pecial conwnun:cation skills workshop the Mayflower Church, 106 E. Diamond
e Rd., (intersection of Diamond Lake
and Interstate Hwy. 35W) from 9 a.m.
2 p.m.
workshop is designed for parents who
e learned about laws pertaining to cational programs, but find it
ficult to speak up at school
tings:At the workshop, parents wil 1 taught about assertive behavior with ortunity to practice it.
more information, call PACER at (612)
-2966.
l 19.
ebral palsy Center will sponsor an ormation Fair on Adaptfve Learning ices (ALDs) to be held from noon to .m. at the College of St. Catherine,
4 Randolph Av., St. Paul.
fair will feature equipment and toys t have been specially adapted for use children and young adults who are dicapped.The equipment and toys help
elop motor control and conununication elopment and facilitate independent ipulation.
Nov. 21, NOV. 22
Conmunity Involvement, providers of
residential and day care programs, Nekton group homes and the Association for Retarded Citizens of Hennepin County will cosponsor a two-night workshop, 7:30 to 9:30 p.m. at the Plymouth Congregational Church auditorium, 1900 Nicol let Av. S., Minneapolis.The workshop is intended
for parents and caretakers of persons 17 years and older who are retarded. The retarded persons may currently be living at home or in a group home while considering semi-independent living.
"Information from the Providers" is
scheduled the first night and "Parents Perspectives" on the second. There is no charge for the wrkshops.
For more information, or to regfster, contact Terri at (612) 874-6650.
FUTURE EVENTS
Planned Parenthood will be sponsoring the following workshop for professionals in health, education and social service settings who work with mentally handicapped people.
"Sexuality and Mentally Handicapped
People" will be presented on Dec. 5-6, 1983, March 8-9, 1984 and May 17-18, 1984. The fee for each wrkshop is $50.
"Mental Retardation and Abuse in the
Family" will be presented on Jan. 31, 1984. The fee will be $30.
All wrkshops will be held at the office
of Planned Parenthood of Minnesota, 1965 Ford Pkwy., St. Paul, Minn. For additional information, or to register, call (612) 698-2401.
ission is $2. For further ormation, contact Jackie L,evin at 2) 535-2015 or Cheryl Waite at (612) -5958
INFORMATION EXCHANGE %&mrrDevelopmental Diaabillties ProgramMinnesota State Planning AgencyUIMW1 of201 Capitol Square Building-y, :=,:*550 Cedar StreetRoger Strand612/296-4018~~b * SW,ona.1.
St. Paul, Minnesota 55101Editor~~ :S&ll:y
November 1983
EDERAL ZONING REPORT CRITICIZED
he United States General Accounting Office GAO) has published a report, "An Analysis f Zoning and Other Problems Affecting the stablishrnent of Group Homes for the entally Disabled."The report concludes
hat "zoning and related land-use equirements caused problems but were enerally not the major obstacles to group ome placement of mentally disabled persons n Metropolitan residential areas. nadequate funding, unsuitable locations Id facilities, and certain other factors iused problems more frequently and !ndered the development of group homes
we often than zoning problems."
~or criticisms of the GAO report were !cently st.manarized in Word from Washington )ctober 1983), a newsletter published in Ishington, D.C.by United Cerebral Palsy
sociations, Inc.The newsletter 'imarily questioned GAO-S methodology cause GAO "could not find a reasonable
y to survey facilities that closed and ver opened again or sponsors who tried
open, failed, and never tried again."
is observation was also made by the partment of Housing and Urban Development
UD) that declared:"The general nclusions drawn by the GAO report are
t consistent with HUD experience in riding group homes under Section 202.
ile we (HUD) have not surveyed field fices or sponsor organizations with
gard to zoning problems, we see many quests for extensions of fund
servations for projects that have countered zoning and land use problems."
The report, GAO/HRD-83-14, Aug. 17, 1983
(see title above), is available without
charge from the GAO Document Handling and
Information Services Facility, P.O. Box 6015, Gaithersburg, Md. 20760.
'NO LINK- BETWEEN VIOLENCE AND EPILEPSY
"People with epilepsy do not commit more violent acts than other people and do not have more psychological? problems than others who are chronically ill," said Dr. Steven Whitman, research associate at Northwestern University-s Center for Urban Affairs and Policy Research. However, poverty and epilepsy were highly correlated in the two-year research program-s findings at the Correctional Center in
Joliet, Illinois.
The prison survey revealed that the
prevalence of epilepsy in prisons was four times greater than that established for the general population. About half of the prisoners with epilepsy had suffered head injuries prior to their first epileptic seizure."These prisoners had been victims
of violence or an auto accident, two types
of traumas that occur at high levels in poor neighborhoods," Whitman said. "This finding added another link in the chain of evidence to the assumption that poor people are more likely to have epilepsy. Social problems faced by people with epilepsy are mainly caused by a misinformed public that views them as disturbed people often prone to violence,"Whitman concluded.
For more information, contact Dr. Steven Whitman, Center for Urban Affairs and Policy Research. Northwestern University. 2040 Sheridan Rd.,Evanston, 111. 60201~'
CONOMICS OF DISABILITY SUBJECT OF STUDY
he economics of disability will be the ubject of a new five-year research and emonstration study to be done by the irginia Department of Rehabilitation ervices.This project is funded by the
ational Institute of Handicapped Research, ashington, D.C.The study will be done in
rtncert with Rutgers Univers:$y, the State niversity of New Jersey and Stanley E.
Ytney and Associates, Inc., Alexandria, a.
~pected results:
- Improved methodologies for estimating
the costs of disab~lity; - Updated national estimate on the costs
of disability; - Conceptual models to represent the
relationships among rehabilitation programs, clients and environmental variables; and
- Current trends fn the federal and state
organizational structure of disability programs.
basic part of the study ~s to analyze
le economtc impact of the vocational thabilitation program.
]r more information, contact Dale Hanks, l eject Coordinator, State Department of ?habilitative Services, 4901 Fltzhugh Av., Ichmond, Va. 23230.Tel. (804) 257-0264.
)RLD TRAVEL PROMOTED FOR DISABLED
)bility International USA (MIUSA), located
1 Eugene, Oregon,is an organization that
~cilitates worldwide travel for people Ith disabilities.Besides publishfn~ a
Iarterly newsletter, the agency provides information and referral, advocacy isistance and serves as a clearinghouse on lternatfonal conferences, workcamps and
m frfend exchanges.Future plans are Ider way to provide a travel attendant !twork and student internships. The ~mentum behind this organization-s :tivitfes fs the firm conviction that 'sabled people can participate fn the irTd connwnity.
tr further information, contact MIUSA,
O. Box 3551, Eugene, Oreg. 97403. Tel. ;03) 343-1284.
EMPLOYMENT OPPORTUNITIES
Vocational Education Dfrector
Brainerd State Hospital is seeking a fulltime director for its community vocational education program.The director develops
and dfrects a program that integrates
applfed behavior analysfs and functional
skills training approaches to develop skills facilitat~ng emp~oyment and assimf?atfon.of developmentally disabled adults fnto the conwnunity. Responsibilities fnclude:
--Procuring resources for establishing
non-sheltered, off-campus work and placement of clients fn the Brafnerd area;
--Obtaining production contracts and
equfpment for on-campus vocational training; and
--Supervising staff fn an interdfscfplinary
setting.
For more information, contact Mfchael Engler, Dfrector of Personnel Services, ~;;~~erd State Hospital, Brafnerd, Minn.
.Tel. (218) 828-2218.
Executive Dfrector
The Minnesota Developmental Achievement Centers Assocfatfon (MnDACA) fs seekfng an executfve director.Mfnfmum qualifi
cations fnclude an M.A. plus three years experfence, or a B.A. plus ffve years experience.Send resume and salary
requirements before Nov. 11 to: MnDACA, P.O. Box 21273, Eagan, Mfnn. 55121.
PUBLICATIONS
Information Resources for Child Advocates: Where Do You Look?Whom Do You Ask?How
Do You Know?(1980)lThis is a resource booktor parents and professionals who
advocate on behalf of chfldren wfth many special needs or problems.It serves not
only as a directory of national organizations and programs, but also fnforms readers about human rights and resources for children and their families. Cost: $5.50. Contact: Children-s Defense Fund, 122 NW. C St., Washington, D.C. 20001.Tel . (202) 628-8787.
Intended for those who teach others about epilepsy, this manual contains 18 units with presenter notes and outlines on a variety of topics,including anatomy and
physiology, classification of seizures and communicating with health care specialists.Lists of learning resources,
visual aids, worksheets and other materials are also included.Cost: $25.
Contact:Minnesota Comprehensive Epilepsy
Program, 2701 University Av. SE., Suite 106, University of Minnesota, Minneapolis, '4inn. 55414.Telj (612) 376-5031.
STAFF TRAINING INFORMATION AVAILABLE
The American Association on Mental )eficiency (AAMD) has developed a data base
staff Training Information Collection is categorized by training subject, setting, ;taff role, materials, format, client age ~nd severity of disability. The collection lay be accessed for a nominal fee by :ontacting:AAMD, 5105 Wisconsin Av. NW.,
Washington, D.C. 20016. Tel. (800) 424
1688 (toll free).
'RAINING OPPORTUNITY FOR SUPERVISORS
;ontinuing Management Education at the University of Minnesota has scheduled a :hree-day intensive training workshop for Iov. 17-19, 1983, entitled, "The Effective ;upervisor:Behavioral Skills in the
Workplace."This workshop will be held at ;he Sheraton Inn Northwest in Minneapolis. 'or further information, contact Terry J. Ienry at (612) 376-8578.
EVENTS
NOV. 2-4
"Orienteering for Persons with
Disabilities:Workshop for Instructors," will feature Dr. Bruce Blasch, Waisman Center, University of Wisconsin-Madison. Orienteering involves the use of map and compass when traveling from one specified ' location to another.This workshop will be
cosponsored by the Minnesota Governor-s
Planning Council on Developmental Disabilities and the Hennepin County Park Reserve District.This workshop will be
held at various park sites in Hennepin
County.For more information, contact
Margie Ostlund at (612) 473-4693.
Nov. 9-11
The Minnesota Developmental Achievement
Centers Association (MnDACA) Annual Conference will be held at the Radisson Arrowwood Resort in Alexandria.
of the 1983 Virginia Mental Retardation/ Developmental Disabilities Prevention Conference to be held at the Williamsburg Hilton in Williamsburg, Va. Primary objectives will be to form a statewide coalition and to implement a prevention
.,~'. .YEARNING FOR LEARNINGThe state Developmental Disabilities (DD) Program Office has acquired several education, training and resource materials.They may be borrowed
from each of the regional DD offices and from the state program office in St. Paul.Each month we highlight selections from these resources.
lability Issues in Community-Based "ograms: LegalPrinciples,Problem Areas
ld Reconsnendations. A. VanBlervllet and
Sh ld-Wildgen,-Paul H. Brooks ibli~hi~~, 1981.This book provides a
*actical approach to the legal principles n-rounding negligence and other liability ;sues as they apply to conanunity-based ]encies.Recommendations are made on how
) minfmize injuries, avoid destructive ~wsuits and conduct positive programs that Iable clients to cope with personal and wironmental demands.Available from the
tate office only.
Sexualit ,Law, and the Developmentally D+Verson:Legal andllnlcal
Aspects ofMarriage,Parenthood= ster~lization. Sk. Haavlk and K.A.
Renn~nger II "Paul H. Brooks Publishing, 1981.This Look Drovides broad and
objective informa~ion about sexual expression in developmentally disabled adolescents and adults. Pertinent issues and viable options are presented in developing sexuality training programs and establishing individualized procedures for dealing with sexuality, marriage, procreation and sterilization. Available from the state office only.
Metropolitan Counctl DD Program
300 Metro Square Bldg. ' 7th and Robert Sts.
St. Paul, MN 55101
TIME DATED 144TERIAL
J
Bulk Rate U.S. Postage
PAID Mpls. Mfnn.
Perinft No. 1610
Published monthly by the Developmental Disabilities Progxam of the Metropolitan Health Planning Boaxd
Metropolitan Council
300 Metro Square Building St. Pad, Minnesota 55101 Toni Lippert: 291-6364
Vol. 8. No. 10
October 1983
PETRO DD PROGRAM NEWS
Task Force Members (Continued)
Introducing:OD Task Force Members
This month launches the 12th year of the Metropolitan Council-s Developmental Disabilities (DD) Program. The Developmental Disabilities Task Force (DDTF) advises the Metropolitan Health Planning Board and Metropolitan Council
on matters pertaining to Metropolitan
Area residents who are developmentally disabled.We-d like to introduce you to
our hard-working DD task force members. They are grouped by Council District and represent one of the following groups -general public (GP), provider (P) and consumer (C).See Counctl districts below:
--Kathryn Beebe, Chair, GP, Metropolitan
Council District 14. --Kqy Zwernik, Vice-Chair, P, Dist. 13. --Carolyn Anderson, P, Dist. 4.
--Jay Bischoff, P, Dist. 5.
--Harold Booker, C, Dist. 6.
--Mary Busch, GP, Dist. 4.
--Beth Dhennin, C, Dist. 8.
--Michelle Ellis, P, Dist. 15.
--Diane Fleetham, C, Dist. 2.
--Dennis Johnson, P, Dist. 7.
--Nancy Ledin, C, Dist. 10.
--Dennis Matthews, P, Dist. 12.
--Al Oertwig, P, Dist. 2.
--Nancy Pflager, P, Dist. 11.
--Mary Powell, C, Dist. 7.
--Sharon Sayles, C, Dist. 4.
--Eileen Schmokel, C, Dist. 14.
--Joan Schoepke, C, Dist. 12.
--Katherine Schultz, P, Dist. 3.
--Carol J. Sime, P, Dist. 2.
--Virginia Spurr, C, Dist. 15.
--Sally Swallen, C, Dist. 5.
--Judy Sweeney, C, Dist. 5.
--Robert Teeling, P, Dist. 15
--Maynard Woodbury, C, Dist. 9.
Ex-Officio members are Joanne Deberry, P, Dist. 12; Douglas Easter P, Metro Receiving Area; Jan Langer, P, Metro
Receiving Area; Marijo McBride, P, Dist.
15.
Council districts represented are:
Dist. 2 -southern half of St. Paul. thst.j -- southern Ramsey suburbs.
Dlst.4 -- south central third of Tllnneapolis. Dist. 5 -- southern and western third or MMinneapolis.Dist. 6 -
north and northeast Minneapolis. rest. 7 -- northern Washington and Ramsey Counties, plus Lino Lakes and Centerville in Anoka County. Dist. 8 -- southern Anoka County. Dis~-- northern Anoka County, includi~e city of Anoka, plus Plymouth, Maple Grove, Champlin, Dayton and Medicine Lake in Hennepin County. Dist. 10-- northern Hennepin County.
=11-- western Minneapolis suburbs of ~ouis Park, Golden Valley, Robbinsdale and Edina. Dist. 12 -southern Minneapolis submichfield and Bloomington. Dist. 13 -- western Hennepin County, including Lake Minnetonka area, Eden Prairie and Hopkins. Dist. 14-- Scott and Carver Counties,
plus Burnsville and Lakeville in Dakota County.Dist. 15-- northern Dakota
County pl~ghland Park section of St. Paul.
Next Year-s Work Program
Here are highlights of DD activities for
the next fiscal year, which begins this month.
For the first time, the Council-s DD program will be involved in both planning and demonstration activities.
Anticipated planning products will include capacity-building workshops and information forums; publications:new
DD brochure, the DD Information Exchange and an updated DD Metropolitan Area mapservice directory; an expanded DD library; continuation of information and referral service, and technical assistance and coordination of DD activities in the Metropolitan Area.
Uork Program (Conti~ed)A new effort for the Council 'S DD program will be to demonstrate conmunity worktraining of Madul*. Thisti~l involvethe folldng: provision of on-site job training in comnunity businesses;assistance tocounties to organize case management and funding to ensure jobs or work-oriented outcomes for project
trainees and assistance to selected day program centers to implemnt new
employment strategies for their clients.
A necessary accompaniment of these activities is to assist county social service, vocational rehabilitation and education agencies @ strengthen their
mutual working relationships. An
evaluation of program outcomes, costs
and social validity will be produced at
the end of the fiscal year.
Minnesota has been visited recently by
some of the foremost leaders in the field
of vocational rehabilitation of severely handicapped persons. We have heard the
ideas of Patricia Beebe, Dr. Lou Brown,
Dr. Tom Bella~, Dr. Luanna Voeltz, Dr.
Paul Mehman and others. Their ideas and experiences have created unusual interest
and momentum for change in our state.
The IN) Comnunity Work Training Project ' fs fntended to be a local demonstration
of these ideas.
We Need Information
The prfmary purpose of publishing this newsletter fs to provfde tfmely information to consumers, parents and ~uardians, professionals-and other careJivers about new programs, servfces, mrkshops, conferences and publications. lefore w started the newsletter, we had ]ublished three resource dfrectorfes. ~owever, the fnfonnation was often out of late by publication time.
de currently send 1950 newsletters each nonth, not only to persons fn the tetropolftan Area, but also to persons throughout Minnesota. The yellow section ~f the newsletter focuses on DD resources in the Metropolitan Area. The blue ;ection, or state supplement prepared by
Information Needed (Continued)
the state developmental disabilities offfce, addresses more general topfcs.
Many readers have written to say they use thfs newsletter to get the latest information on resources they need. In the next year we forsee the potentfal for new services and changes fn modes of servfce to be fast-breakfng and dramatfc.There fs a ferment in the
system caused by new federa? fncentfves, such as the Tftle XIX wafvered servfces, new concepts introduced from many other states and innovative plans stimulated by Minnesotans.
He thfnk that in the next few years, new resources in the Metropolitan Area wfll grow at a tremendous pace. In order to report developments as qufckly as possfble to our readers, we need your help.Send us a brief description of
your programs, servfces, job openfngs, workshops etc. for publfcatfon fn thfs newsletter.Preferably, ftems should be
no more than 250 words and should be in our offfce by the 18th of the month for publication the following month.
Send ftems to the DD Infonnatfon Exchange, DD Program, metropo]ltan touncll300 Metro Square Bufldfng, St.
Paul, M~nn. 55101.
3
Additions to Lfbrarfest
The Councfl-s DD program has added a new book to fts curriculum lfbrary. It may be borrowed by Metropolitan Area resfdents for three weeks.
Preventing Sexual Abuse of Persons with Dlsablllties is a curr~culum for nearlng
impalred, physically dfsabled, blind or mentally retarded students.The currfcu
?um was developed for professionals:
special educatfon teachers, staff of group homes and residential facflitfes, rehabflltatfon counselors and social workers.The book was written by Bonnie
O"Day, coordinator, Sexual Abuse Educatfon for Dfsabled Adolescents
Library Additions (Continued)Project.She was assisted byPeqwSpecktor, Sharon Sayles, Connie ~~~man and Peg Exley of the Minnesota Program for Victims of Sexual Assault, a project of the Department of Corrections, St. Paul.Also, five issues of the Journals of the Association of the Severely Handicapped, sumner of 1981throughsutnner otz
have been added to the Resource Libra~y. The journals may be used only in the library.
IWe have had some complaints about
unusually late delivery of the DD
Information Exchange ii the Mettipolitan Area.Ityou consistently receive your
copy after the 12th of the month, call Marjorie Segell,DD secretary, at 291
6363.
ANNUAL CONFERENCES
American Association on Mental Deficiency conference
--On Oct. 25-27 the American Association on Mental Deficiency (AMID) will hold its IOth annual state conference at the Plymouth-Radisson Inn, 2707 Annapolis Lane, Plymouth.Some conference
activities are listed below.
Roger Larson and Lou Speggen will present a "MANDT" workshop demonstrating techiques on how to manage difficult residents with a minimum of external control, while reducing injury.It will be held from
8 a.m.- 5:30 p.m. on Oct. 25.
Drs. Eric Errickson, Lyle Wray and Bill
M. liooten will present a workshop on behavioral techniques with staff and health care systems. They will apply behavioral principles to staff supervision, systems interaction and program evaluation.This program will be
held from 8 a.m.- 4 p.m on Oct. 25.
AAhQ Conference (Continued)
On Oct. 26-27 the "Quality Of Life" conference will present sessions on:art
and nonviolence, music and art therapy, fine arts program, special olympics, consumer decision making, quality of life for families and the "Baby Doe" case.
Register by Oct. 7 to receive a free ticket to "Pump Boys and Dinettes" at the Radisson Pl~house on Oct. 26.
For information on fees and complete program information, contact: Mary Tjosvold, Camilla Rose Group Home, 11800 Xeon Blvd. Coon Rapids, Minn., at (612) 755-8400, or Bev Helgeson, 901 Memorial Pkwy., Willmar, Minn. at (612) 235-5897.
Coalition for Handicapped Sponsors Will ~01 d AnnualConference
The Minnesota Comnittee for the
Handicapped (MCH) will hold its annual fall conference Nov. 5 at the Earle Brown Continuing Education Center on the St. Paul campus of the University of Minnesota (barrier-free facility).
The focus of the conference will be on quality, integration and continuity of services for children .and adults with disabilities.
State Reps. Ann Wynia and Ken Nelson will join Barb Beerhal ter, State Dept. of Economic Security cotmnissioner, Margaret Sandberg, assistant commissioner of the Dept. of Public Welfare, and Wayne Erickson, Dept. of Education, ;n a panel discussion titled "The Shape of the Future-- Putting it Together."
Luncheon speaker Len Levine, Commissioner of the State Dept. of Public Welfare, will address the topic:"A Fresh Look at
Some Old Problems."
MCH is a coalition of parent and professional organizations that advocates on behalf of programs and services to meet the needs of Minnesotans with disabilities.
Registration with lunch is $10; conference registration only is $5.For
more information, contact: John Sherman at (612) 646-7588.
Minnesota Assoc. for Severely Handicapped Conterence
On Oct. 21 and 22, the Minnesota Association for the Severely Handicapped (MNASH) will hold its thfrd annual fall conference. Itwill be held at the Ramada Inn, Interstate Hwy. 494 and France Av., Bloomington. The conference is titled "Severely Handicapped Persons in the Comnunity: Educational, Residential and Vocational Integration." The conference will identify key problems that impede integration, will explain new theories and will present practical models that can resolve some problems.
Speakers include:Dr. Luanna Voeltz,
Consortium Institute, University of Minnesota, speaking on education; Dr. Paul Wehman, School of Education, Virginia Commonwealth University, speaking on employment; and Minnesota professionals and parents concerned about consnunity integration. The conference has been planned for parents and providers including teachers, social workers, health care professionals and staff of residential, vocational and day programs.A call for nominations for
election of new board metiers will be included in the business meeting.
For more information, call Toni Lippert, Developmental Disabilities Program, Metropolitan Council, at (612) 291-6364.
For information on registration, contact: Dr. Nancy Fenrick, Dept. of Special Education, Box 52, Mankato State University, Mankato, Minn. 56001. Tel. (507) 389-1122.
Leaaue of Disabled Voters Convention
The third annual convention of the League of Disabled Voters is scheduled for Oct. 29 at the Holiday Inn in St. Cloud.
The league is a nonpartisan educational organization created to increase the participation of persons with disabilities in the political process. At the convention, members will determine the League-s plan of action for the next year and will elect board members and officers.
Conference (Continued)
Local chapters of the league are being formed in five communities around the state*Membership is open to citizens
who are at least 18 years of age.
For more information, contact: Minnesota League of Dtsabled Voters, 233 South, Griggs Midway Bldg., 1821 University Av., St. Paul, Minn. 55104.
FOR YOUR INFORMATION
University Seeks Applicants for Program on cansnunicationsDisorders
The Division of Education of the Johns Hopkins University invites people to apply for a doctoral program in human consnunication and its disorders with a concentration in the severely or profoundly multihandicapped person. This interdisciplinary program is directed towards special educators and other human service professionals who serve individuals with severe or profound handicaps, multiple handicaps, and sensory impairment. Funds may be available for qualified students. Applications must be received by Nov. 15 for fall 1984 admission.
For further information, contact:
Marion Panyan or Janet Whaley Zimnerman, Division of Education, Johns Hopkins University, 100 Whitehead Hall, Baltimore, Md. 21218. Tel. (301) 3388273.
Parents of Premature and High-Risk Tntants Form Organization
A new advocacy organization, 'Parents of Premature and High Risk-Infants International,"has been formed. The
organization will provide information, referrals and other services to parent support groups, families and professionals concerned with infants who require special care at birth. A quarterly newsletter, Support Lines, will be published by the group.
For more information, write: Maureen Lynch, Case Institute for Research and Development in Occupational Education, Graduate School and University Center, City University of New York, N.Y. 10036.
.Advisory Convnittee Members NeededLake Owasso Residence is seeking persons to.fill two professional and three member-at-large vacancies on its advisory conmittee.
The conwnittee, which meets monthly, -" guides residence operations and reconsnends policies.Lake Owasso
Residence is a Ramsey County-operated facility serving 64 young mentally retarded people.
People interested in applying for membership on the advisory comnittee should contact David Fox, Ramsey County Human Services, at (612) 298-5368.
Toys Adapted for Handicapped Children
A Honeywell research scientist has modified electric toys for children with cerebral palsy.Many of these chfldren
cannot push a button or move a "joy stick."
Lee Hallgren,from Corporate Technology
Center-s suburban Minneapolis location,
shows parents and special education
teachers how to make electrical sp?ices, joints and switch modifications needed to make toys or adapt conwnercial toys.
Hallgren said that it doesn-t take much in the way of electrical knowledge, time or money, and that a few basic tools are all that are needed to give disabled children a new enjoyment that will also improve their muscles.
For more information about these adaptations, contact Lee Hallgren at Honeywell Plaza, Mail Station, MN09-1300, Minneapolis, Minn.
Used Equipment Referral Service
A telephone referral service has been established for used equipment such as wheelchairs, bathroom equipment, lifts, vehicles, walkers, etc.The program is
administered by United Cerebral Palsy of Minnesota and the Metropolitan Center for Independent Living. It is funded in part by the McKnight Foundation in partnership with the state developmental disabilities program.
Used Equipment (Continued)
To buy, sell or donate equipment, contact the Metro Center for Independent Living at (612) 646-8342.For general project
information, contact United Cerebral Palsy of Minnesota at (612) 646-7588.
Loan Interest Charcies Eliminated
The Minnesota Public Utilities Commission ordered Northwestern Bell Telephone Co. to strengthen its program for providing telephone service for hearing-impaired people.The order requires Northwestern
Bell to modify its Special Terminal Equipment Funding Program by increasing the maximum loan for teleconlnunication devices for the deaf (TDD) to $1,600 and to eliminate interest charges on all existing and future loans.
The modification is the result of testimony during the company-s last general rate case on problems faced
by hearing-impaired people on obtaining affordable telephone service.
New Service for People Who Are Deaf and
In Touch, Inc. is a new agency that wil' serve deaf-blind Minnesotans.It plans
to provide services to increase opportunities for self-sufficiency and independence for blind-deaf individuals,
Development of communication skills is a priority for In Touch. The agency will also offer rehabilitation services in braille instruction, activities of daily living, cooking, typing, home care and leisure time activities.
For further information, contact: Sharon
Plett, deaf-blind coordinator, In Touch, Inc. 310 4th Av. S., Suite 718, Minneapolis, Minn. 55415. Tel. (612) 3322S75 (TDD/Voice).
O-Hara Named ChairlWRKSHOPS, CONFERENCESMary O-tiara, Minneapolis, has been appointed by Gov. Perpich as chair of theW+nnesoti sate counc~l for theandicapped.O-Hara has been a councilmember since 1978 and has been involved in many areas of legislation that have provided opportunities for independent living, housing opportunities, bufldfng accessibility and attendant care. She was also director of the Handicap Housing Servfce from 1976-79 and pl~ed a key role fn the "Access Mfnnesota" project that led to successful accessfbilfty legislation.She fs also a member of the
.eague of Dfsabled Voters.
=-The Offfce of Information and Resources For the Handicapped, U.S. Department of [ducation, has publfshed a brief overview }f the federal fundfng process as ft ~lates to the developmental dfsabilfty Ffeld. The publication fs intended to iirect first-time grant seekers to the ~roper fundfng source.Included in the
ifx-page artfcle fs "Resources for 'unding Information," which lfsts a rarfety of organizations and publications :hat provfde more fundfng information. ;tngle copfes ~ be obtained from: ~ffice of-Information and Resources, for tie Handicapped, 400 Maryland Av. S. W., !m. 13106, Washington, D.C. 20202.
-Single copies of the Dfrectory of ,iving Aids for the Dfsabledare
wallable at no charge rrom the Veterans ~dminfstration Marketfng Center, Code I~G, p.o. Box 76, Htnes, Illc 601410
-The Clearinghouse on the Handicapped fs Ipdating the mailfng list for its uarterly newsletter, Programs for the
w 'he 'Ws'et=r 'ports-onaspec s of the federal government s
evolvement with handicapped citizens, 'eviews new publfcatfons and announces he dates and location of various rofessional meetings and conferences hroughout the year. Anyone interested n receiving the publication may write
o:Clearinghouse for the Handicapped, .S. Department of Educatfon, Rm. 3119, ~~tz;;2~~dg., 330 C St. SW., Washington,
..
Oct. 21-22
The Minne.,ata Speech-Language-Hearing Association (htSHA) is sponsoring a oneand-one-half-day semfnar, "The Use of Microcomputers and the Consnunicattvely Handicapped Individual ," at the Holiday Inn-St. Paul North, 2459 N. Cleveland Av. ,St. Paul.
The sessions will present a balanced mtx of information about the sfmpler mechanical aspects of computer operatfon, recent hardware and software applications to conmwnicative dfsorders and the provfsfon ofefficfent servfces to serS of augmentative systems."Hands-on lab
experience wfll also be offered to Im part~cipants.
The fee for MSHA tiers is S35: for non
members, $45. MSHA offfce at
Nov. 5
The fall state
. . . . . For more fnfo~a~ion call
(612) 935-5057.
meetfng of the Spina Bffida Association of Mfnnesota (SBAM) will be held at the Vinland Natfonal Center fn Loretto, Mfnn. from 9 a.m. 3 p.m.For more information, write
SBAM, P.O. Box 29323, Brooklyn Center, Mfnn. 55429-0323.
Nov. 12
Parents and Physicians, a workshop for parentswho wanttobecome better
conmmnicators with their child-s doctor and other health care professionals will be held from 8:30 a.m. - 1 p.m. at Gfllette Chfldren"s Hospital, 200 E. University Av., St. Paul. Registration is $5 and forms are available by calling (612) 291-2848, ext. 146.
lllliiirINFORMATION EXCHANGE ::%!!mmCdDevelopmental Disabilities ProgramMinnesota State Planning AgencyM[MMP Or 201 Capitol Square Building1Pv..., IONAJ550 Cedar StreetRoger Strand61212964018& l ~::,uSt. Paul, Minnesota 55101EditorIll %x::INNESOTA DEVELOPMENTAL DISABILITIESRAM ISSULS RE@kSlOR PR~SAL~e Minnesota Developmental Disabil i ties
l ogram of the State P1 arming Agency mounced that funds wil 1 be made
'ail able again this year through the Knight Foundation.The funds are to be
ed to solve problems in delivery of rvices to persons with developmental sabil ities who are not mentally
tarded.This progr~is not intended to ovide funds for planning or research,
r replacement due to state or federal dgetcuts.Typically, grant applications
uld address problems caused by ~gmentation of service delivery systems, dally solved through coordination and }peration.
mt applications are due no later than 5
1. on Nov. 11, 1983. The request for ~posal and grant application forms may obtained from:Developmental
abilities Program, State Planning
mcy, 201 Capitol Square Bldg., 550
ar St.,St. Paul, Minn. 5101. Tel.
2) 296-4018.
MUNICATIONS LOAN BANK OFFERS EQUIPMENT ted Cerebral Palsy of Minnesota has
ablished a loan bank of communication ipment to assist non-speaking persons
5 cerebral palsy in meeting their nunication needs.Items are available
loan to professionals throughout the Le working with this population.The
] bank will be expanded as funding is
! available and need is shown.
further information, loan bank
'cies and a list of available Iunication devices, contact:United
bral Palsy of Minnesota, 1821
ersity Av., St. .Paul, Minn. 55104.
(612) 646-7588.
October 1983
NORTHWESTERN BELL ANNOUNCES RESOURCE
EN lk~ ~
A new resource center for disabled persons was announced by Northwestern Bell Telephone Co.The new center will
demonstrate many telecommunication
devices, offer repair service and give advice on how to select and operate
special conmnication equipment, according to Vern Heglund, manager of Bell-s Telecommunication Center for Disabled Customers (TCDC).Heglund expects the new
center to be opening by January 1984 in downtown St. Paul.The center will serve
Minnesota, Nebraska, Iowa, North and South Dakota.
For Minnesota customers, the new resource
center will also process interest-free
loans for the purchase of telecommuni- cation equipment.Amounts from $50 to
$1,600 may be borrowed, with up to five years to pay.This interest-free loan
program began in September 1983. Contact the TCDC for more information:
Northwestern Bell, TCDC - Rm. 142, 200 S. 5th St., Minneapolis, Minn. 55402. Tel. (612) 344-5922 or (800) 223-3131 (tollfree).
TOLL-FREE OPERATOR ASSISTANCE AVAILABLE
FuR ~ USERS
Persons using Telecommunication Devices
for the Deaf (TDD) may now dial 1 (800) 855-1155 for free operator assistance.
The TDD operator can help the user in reaching or finding numbers, reporting problems and getting credit for overpayments.The TDD operator can also
assist persons in the use of teJephone credit cards and in making collect calls
or person-to-person calls.
*S ON MANAGING STRESSress is like an ice cream cone.. .youe to learn to lick it!" says an ractive one-page flier recently tributed by the American Red Cross inPaul.Although stress cannot be fded,"we can learn to cope with it inealthy manner,"the flier states. Some s to do this are:ngage in physical exercise like alking, running, tennis, gardening and icycling.Exercise discharges excess
nergy generated during times of stress. at a well-balanced diet. Under stress eople may eat carelessly, or ~mpulsively.
et enough sleep and rest. Lack of leep may cause irritability, which essens the ability to deal with stress. void overconwnitment.Set aside time
~r self-satisfaction.
et go of imnediate pressure.Some ~ys to do this are meditation, ?laxation, deep-breathing exercises, or ~coming involved in other activities or ~bbies.
hareconcerns with someone you trust.
F this is not helpful and reassuring,
t may be beneficial to seek rofessional help.
anage your time.Plan daily tasks and ccomplish the most important. Do not rocrastinate.
ies of the flier are available from the ~esota Developmental Disabilities Jram, State Planning Agency, 201
itol Square Bldg., 550 Cedar St., St.
I , Minn. 55101.Tel . (612) 296-4018.
.EPSY FILM WINS AMARD
ilm produced by the Comprehensive Iepsy Program of the University of lesota has received an award from the tish Medical Association. The film, ilepsy:First Aid for Seizures," was
~ded a certificate of educational nendation by the British Life Assurance st for Health Education.The film may
~ented from the Audio Visual Library lice. University of Minnesota. 3300
COMPUTER USER NETWORK LINKS PEOPLE,
kAS
For the human service professional, a user who is seldom a computer programmer, computer systems are often more full of surprises than help. The Computer Use in Social Services (CUSS) Network was created for the human service user to reduce the surprise and boost the help. The goal of the network is simple -- to connect people with similar interests and needs.This is
done primarily through a quarterly newsletter published by the CUSS Network.
Membership in the CUSS Network costs $10,
$5 for students and $15 for institutions.
For more information, contact: Computer Use in Social Services Network, University of Texas at Arlington, Box 19129, Arlington, Texas 76019. Tel. (817) 273-2707.
PUBLICATIONS
--Whatever You Decide: A Workbook for
1983. this 80-pag~ workbook ~as written with the assistance of people who are mentally retarded and who are quoted throughout the text. To obtain a copy, send payment of $7.50 (Minnesota residents add 6% sales tax), plus $.75 for postage to:Advocating Change Together, 1509
Nicollet Av.,Minneapolis, Minn. 55403.
-- From the 60s into the 80s: An InternationalAssessment of Attltudes and
Xervlces torthe DevelopmentallyDisabled 1s a collection of DaDers from a conference sponsored by the Young Adult Institute and Workshop, Inc., of New York, April 6-10, 1981.The conference was
intended to celebrate two decades of achievements in the field of mental retardation and to credit Niels BankMikkelsen and Bengt Nirje as authors and chief proponents of the normalization principle.The book is available at $15
f rem:Young Adult Institute and Workshop, Inc.,460 W. 34th St.,New York, NY 10001.
iers~ty Av. SE.:Minneapolis, -Minn. 14. Tel. (612) 373-3810.
-t16 OPPORTUNITY
.fiavior Analyst - Staff Trainer
[man Services Specialists, Inc.
Iticipates hiring in October a Ph.D.vel person with skills in behavior nagement and staff training to work with aff and clients from developmental hievement centers in the north central gion of Minnesota.The trainer will be
sed in Brainerd and work with programs
Beltrami, Cass, Crow Ming, Hubbard, rrison, Todd and Wadena Counties.
apply, you must have at least two years
perience in behavior management and the ovision of community services to the velopmentally disabled. You should also ve experience in training colleagues and
willing to travel.Send a letter
~ting interest in the position, a tailed professional vita and a schedule
I theme of a national parent-to-parent Iport group conference in the Red Lion
in Ontario, California.Workshops are nned on how to start a parent group,
I to keep it going, planning for the ure of children with disabilities and the issues of siblings and single
ents.
further information, contact: Joanne Travers, Project COPE, 9160 Monte Vista
Montclair, Calif. 91763. Tel. (714) :2442.
.29
1983 Minnesota League of Disabled ers (MLDV) conference will be held the Holiday Inn in St. Cloud. The anization provides opportunities for ple with disabilities to play a more ive role in political and governmental ivities.
For registration and information, contact: MLDV, 1821 University Av., St. Paul, Minn. 55104.Tel. (days) Scott Rostron (612)
296-5085; and (evenings) Carolyn Emerson (612) 729-7402.
Nov. 2
A one-day conference titled, "Factors Influencing Child Development: An Update on Genetics and Mental Retardation, Epilepsy, Fetal Alcohol Syndrome, and Neuro-Tube Defects (Spina Bifida)" will be held at the Atwood Center on the St. Cloud University campus. Registration is
required: $10 for human service
professionals and $5 for students and parents. Contact: Central Minnesota Health Systems Agency, 113 Division St., Sauk Rapids, Minn.56379. Tel . (612) 253
2930.
Nov. 3-5
"Interdependence:The Next Decade" is the theme of the IOth Annual Conference of The Association for the Severely Handicapped (TASH), which will take place at the Cathedral Hill Hotel in San Francisco, California.
For more information, contact: tfiroko Roe, Conference Coordinator, TASH, 7010 NE. Roosevelt Way, Seattle, Wash. 98115. Tel. (206) 523-8446.
Dec. 1, 2
A conference on "Integrating Behavior Modification with Modern Technology and Adapted Environments" will be held at the Earle Brown Center for Continuing Education on the St. Paul campus of the University of Minnesota. Presentations will address the creative use of technology in the 1980s and the incentives and disincentives for using technology with clients who are mentally retarded. Cost: $80.
For further information, contact: Mary Kay Wood, program director, Continuing Education in Social Work, University of Minnesota, 107 Armory, 15 SE. Church St., Minneapolis, Minn.55455. Tel . (612)
373-5831.
PYEARNING FOR LEARNING,-.The state Developmental Disabilities (DD) Program office has acquired several education, training and resource materials.They may be borrowed from eachof the regfonal DD offices and from the state program office in St. Paul. Each month, we highlfght selections from these resources.Iske,Abi~gdon~. 1980. This book cribes how persons wfth dfsabilfties
capable 'of functioning in the nstream of cormnunity life. It onstrates how their presence in the ghborhood can be a unfque, posftive erfence.The authors conclude that,
s discoveries and skills learned in ghborhood settings, from mutally
lthy relationships with people who
? handfcaps, will lead us to find a lable new principle: the more
~nced civilization becomes, the more will understand, value, and relate Ithily to its members who have severe iicapping conditions." Available from ] state and regional developmental ~bilities offices.
.
Metropolitan Council DD Program 300 Metro Square Bldg.
provfdes teachers, nurses and parents an instructional program that shows how to help developmentally disabled children to function successfully at home, in school and in the community. Programs and exercises are presented step by step in plafn language so instructors learn as they teach.Proceeding from easy to more
complex behaviors, the program lays the groundwork for a continuing plan of development and improvement that proceeds at the child-s own pace.
Available from
the state DD office only. Tel. (612) 296.
4018.
Bulk Rate U.S~ Postage
PAID ~ls. Minn.
Permit No. 1610
TIME DATED MATERIAL
MR. ROGER
STATE PLAN :/!A!%AB PRO 201 CAPITOL SQUARE BL
ST PAUL MN 55101
,
Published monthly by the Developmental Disabilities Program of the Metropolitan Health Planning Board
Metropolitan Council
300 Metro Square Building St. Paul, Minnesota 55101 Toni Lippert: 291-6364
. .
METRO 00 PROGRAM NEMS
Vol. 8. No. 12
December 1983
Employment Workshop Planned
Workshop (Continued)
A workshop on the employment model, Vocational Education Alternatives (VEA), will be held Dec. 9 and 10 at the Metropolitan Council Chambers, 7th and Robert Sts.,St. Paul, Minn. Presenters
are Patricia Dobbe Beebe, executive director of the Madison, Wisconsin agency and Kfm Kessler job retention specialist/ job deve~oper.VEA has been training and
placing severely handicapped persons in part-time and full-time employment for the past three years. The workshop
chedule is 1-8 p.m. Friday, Dec. 9 and 9
a.m. till noon on Saturday, Dec. 10.
The workshop is sponsored by the
~etropolitan Councfl-s Developmental liabilities program. It will provide )ersons interested in employment )Iacement and training techniques for }dults who are developmentally disabled, tith information on a current, successful lodel to raise parent and provider expectations for severely handicapped )ersons.It should also stimulate
:urrent adult day program providers and Iarents to examine other successful 'mployment models and begin to
mplement these strategies in Minnesota ay programs.
he workshop is targeted to consumers,
heir familes, county casemanagersj staff f adult developmental achievement enters, work activity centers, sheltered orkshops, special education on the econdary level, post-secondary ducators, vocational rehabilitation )unselors and other program personnel :~l~rk with severely handicapped
l
Registration is limited to 100 participants.The registration fee is
$35 for both days. Single day registrations will not be available because of the continuity of the presentation.Pre-registration is
required.A registration form is printed on page four and can be duplicated for multiple registrations. Checks must accompany the form(s). Persons who have not pre-registered will be admitted only if space is available. A late fee of $5 will be added to the registration fee.Phone reservations
will not be accepted.
Workshop participants are responsible for
their own meal arrangements and hotel accommodations.The Radisson Plaza and
Econo-Lodge in St. Paul are within close walking distance to the Metro Square Building and have special week-end rates.
Current Status of DD Project
The Metro DD Cotmnunity Work Training Demonstration Project, which is jointly funded by the Metropolitan Council and the state Developmental Disabilities Planning Office of the State Planning Agency is finally underway. The project is administered through the Metro DD Program.The project will place and
train 30 adults who are developmentally disabled in comnunity businesses for onsite job training which can lead to part or full-time employment. The project strategy is adapted from the Vocational Education Alternatives model which is described in this issue.
-1-'
)0 Praject (Continued)rerry Kayser,DD research analyst, will ict as field coordinator and Toni Lippert iill be responsible for project management.
[n addition, two consultants have signed
:ontracts to provide specialist services rhich include job procurement, training ]nd monitoring to assure job retention. me consultants are Vickie Byrne and Don hegory who have had experience in roviding similar services to developmentally disabled adults.
\ project advisory comnittee has been
~ppointed by the Developmental liabilities Task Force (DDTF) and includes representatives of agencies who ~articipated in the development of the wojectoThe consnittee will advise the
task force and serve as resource experts to the project staff. The committee includes:
--Christy Boswell, associate director of
the Association for Retarded Citizens/ Hennepin County;
--Tim E!urkett, project director, McDonell
Development Achievement Center; --Mike Corman, project coordinator
representing Dakota County; --Ed Van Allen, project coordinator
Emerson School, Minneapolis; and --sill Niederloh, Minnesota Division
Vocational Rehabilitation.
(athrw Beebe. OD~ chairperson, wil'
r,
of
chair-the project advisory committee.
The project needs several training
assistants to continue the instructional plar for the project clients since ~xtnded training may be required due to clients" substantial handicapping :onditions.The training assistants will
be paraprofessionals or post-secondary level students who can work 20 to 40 hours per week.Training assistants
should have had some ex erience in direct
!work with developmental y disabled
DD Project (Continued)
(severely handicapped) adults.
Interested readers may call Terry Kayser
at (612) 291-6356.
Status reports of this progject will appear periodically in this newsletter.
Election Victories for Task Force Members
Two members of the Developmental Disabilities Task Force (DDTF) were elected in recent local elections. Sharon Sayles was elected to the Minneapolis City Council from the Eighth Wars.Sharon, as a parent of a
developmentally disabled daughter is a consumer representative on the task force and is serving her second term.
Al Oertwig was elected to the St. Paul School Board.He works for the
Department of Public Welfare and is a provider representative on the force. He is completing his first term on the task force.
Congratulations to Sharon Sayles and Al Oertwig.The connnunities they serve will
be enriched for having people with experience in the field of developmental disabilities making public policy decisions.
FOR YOUR INFORMATION
McKnight Funds New Project
"Operation:Family Care" is a new
project funded by the McKnight Foundation, administered by the Developmental Disabilities Program State Planning Agency and sponsored by the Greater Minneapolis Day Care Association (GMDCA).
The project has two goals: to train people interested 'n caring for significantly handicapped children and to
identify those who may already have
skills in this area.
A 20-hour trafning course will be offere~ starting Jan. 28 and after completing the course, students will then participate in five hours of practicum experience.
-2
'cKnight Project "(Continued)
GMDCA has a computer referral network to link skilled caregtvers and parents.
Persons trained or experienced in caring
for special-needs children may register
with the computer service.There is no
charge for this service.Registration
provides a link between parents and caregivers but arrangements for care are left to the two parties.
For more information on the course, or to
receive a registration form for the computer referral" system, contact Linda Rees, project coordinator at (612) 823
7243; "
.abels Needed
~eople-s Child
Care Residence is
:ollecting labels from Campbell-s Soup ~roducts.This is an ongoing project and
]ver the past several years, labels have ]een redeemed for audiovisual equipment, 'ames and playground toys for the .evelopmentally disabled children living it the child care residence.
;everal churches, organizations, parents ~nd friends assist with this project. ;ave the labels from Campbells, FrancoImerican, Swanson, Prego and V-8 cans. ,abels can be delivered or mailed to 'eople-s Child Care Residence, 1611 Ames iv. St. Paul, Minn. 55106.
'or more information, call Peg Wiechman
t (612) 774-5940.
REINSTITUTIONALIZATION FISCAL INCENTIVE
'he Association for Retarded Citizens/ 'nited States [ARC/US) has developed a reposal for federal legislation that 'ould reconstruct Medicaid funding so hat over a 10-15 year period, funds ould be shifted from long-term nstitutional arrangements to cofmnunityased, integrated, family-scale nvironment.
Fiscal Incentive (Continued)
to reduce institutional populations by increasing the federal Medicaid match for each persons during his or her first five years in community placement. Additional kinds of community living arrangements and services would be funded through Medicaid.
Independent evaluations of both institutional and conxnunity care would be required under the legislation. Individualized written plans would also be required, with participation by the individual and family as well as professionals of various disciplines. Individuals needing structured 24-hour care would have access to such care in small facilities in the community.For
those with less intensive needs, Medicaid would help fund group home, foster care, apartment living, or at-home services.
The Community and Family Living Amendments of 1983 are still in draft form.For a copy of the proposal, write
the ARC Governmental Affairs Office, 1522 NM. "K" St.,Suite 516, liashington, DC
20005.
CAMP INFORMATION
Camp Friendship begins its winter camping schedule on Dec. 27 with nine one-week sessions offering winter activities.
The first two sessions, which begin on Tuesdays and end on Saturdays, cost
$160 each.The other seven sessions
costing $170 each begin on Sundays and end on Fridays.
For more details and registration information, contact Camp Friendship, Rt.
3, Annandale, Minn. 55302. Tel. (612) 274-8376.
hile the proposed legislation does not lose institutions, it encourages states
.-3
. .
'7 "CIAL RELIGIOUS EDUCATION OFFERED
. . . . . ,.
!r!e in:. ~sted in special religious .;ation ~ Jr persons who are
developmentally disabled may contract the ;atholic Education Center of the St. Paul tfnneapolis Archdiocese. The staff is ~illing to help establish new programs,
Y* rade current parish programs, or
: p developmentally disabled persons }ecome part of existing parish programs.
'or more information, contact Brigid )-l)onnell,Catholic Education Center,
128 W. 6th St., St. Paul, Minn. 55102.
"cl. (612) 291-4519. .
;ourage Cards Available
"he 1983 Courage Cards catalog is ~vailable and will be sent free to 'nterested individuals.The catalog
~eatures fine quality, original art Ioliday greeting cards, many of which are !esigned by artists who are disabled. 'he cards are avallabe on a suggested Ionation basis, with 10 percent being tax Deductible.They can be purchased at
~arious locations throughout the Twin ;ities and are available year-round at ;ourage Center.All income from the
:ards is used to support Courage Center-s }rograms for children and adults who are Iisabled.
PUBLICATIONS
Sexual abuse prevention materials for the
disabled comnunity have been developed by the Department of Correction-s Victims of Sexual Assault program. An educational curriculum entitled Preventing Sexual Abuse of Persons with lllsabllltles:ACurriculum tor Hearing
Tmpaired,Physically Disabled,Blind and
Mentally Retardedtudents has been
developed and piloted.Two brochures, "Are Children with Disabilities
Vulnerable to Sexual Abuse?" and "Say No, Get Away and Tell Someone," have also been prepared.
The curriculum was developed for professionals who work with disabled persons and can be used with individuals or groups in a variety of settings. It contains information on the vulnerability of individuals with disabilities to sexual abuse, background information on sexual assault, parent training materials, information on sexuality and disability, and lesson plans for hearingimpaired, physically disabled, blind and mentally retarded adolescents. The materials for students can be presented in eight or nine sessions.
A limited number of copies of the curriculum and brochures are available at no charge to Minnesota residents. To order, contact Minnesota Program for Victims of Sexual Assault, 430 Metro Square Building, St. Paul, Minn. 55101. Tel. (612) 296-7084.
REGISTRATION FORM
VEA WORKSHOP
(No phone reservations will be accepted.
DECEMBER 5 and 10, 1983
Registration with forms and checks only}
NamePhone ( )
Address
StreetcitystateLip
Agency/Organization
Please enclose check for $35.Make checks payable to: Metropolitan Council: DD Program. Detach this form and mail innediately to DD Program, Metropolitan Council, 300 Metro Square Building, St. Paul, MN 55101.Checks must be received by 5 p.m. Dec. 8.
-4- '"
.INFORMATION EXCHANGE :%f:knDevelopmental Diaabilitiea ProgramMinnesota State planning AgencyMomf* of 201 Capitol Square BuildingI 1~v,".,*4550 Cedar StreetRoger Strand612/296-4018k l C::l.
St. pad, Minnesota 65101
Editorb~ :S%'$'
FEASIBILITY OF MERGING HUMAN SERVICE
December 1983
The State Planning Agency is currently studying the feasibility of merging the departments of Health, Public Welfare, and Economic Security.
This study was mandated by the 1983
Legislature and has recently expanded to include the Department of Economic Security.
Several initiatives have been taken to
date with this study:
--Rich Dethmers within the Division of
Human Services has been given lead responsibility for the study.
--A team approach has been utilized
invo]ving teams from Health, Welfare, Economic Security, Finance, Administration, and the State Planning Agency.
--Each agency in the study is carrying
out an analysis of all internal programs and activities in order to determine existing and potential interagency linkages.
--A request for suggestions and input has
gone out to nearly 500 agencies,
organizations and professional groups who are interested in or affiliated with these state agencies.
,-Other state agencies that share program
responsibilities with these three agencies are being asked to identify a lead staff person and to analyze any programs where there is now or should be a relationship between the three agencies.
nformation gathering is almost
ompleted.The next step will be to
dentify "clusters"of similar programs nd activities and examine problems and
Feasibility Study (Continued)
opportunities for linking agencies together to interact more effectively, with these programs.A process will be
established to ident~fy a range of possible solutions to problems in each cluster area.It is anticipated that all
appropriate agencies with responsibility relating to these clusters will be involved in this process.
The next step will be to examine alternative solutions to problems of interagency coordination identified in each cluster."Solutions could range
from informal agreement between program managers to formal memos of agreement, to structure interagency coordinating mechanisms, and finally to transfer or merger of some programs or activities," Rich Dethmers said.
There has been one formal progress report on the study to the Senate Health and Human Services Conwnittee of the State
Legislature.For further information, call Rich Dethmers at (612) 296-3089.
FEDERAL DISCRETIONARY FUNDS ANNOUNCED
As announced in the Federal Register (Oct. 18, 1983) , the of fl ce ofHuman
Development Services (OHDS) will receive preapplications for its Coordinated Discretionary Funds Program by Dec. 6. The Administration on Developmental Disabilities is one of several
constituents participating in this joint
funding process.One of the goal areas addresses the developmentally disabled adult.For further information, contact
OHDS, Division of Research and Demonstration, 200 Independence Av. SW., Room 732E, Washington, DC 20201. Tel. (202) 245-6235.~..
I
I
."IPILEPSY GRANTS AND FELLOWSHIPS ANNOUNCEDrhe Epilepsy Foundation of America bnnounced the availability of a variety ~f grants and fellowships to be awarded [n 1984.The grant programs are designed
:0 support basic and clinical research in :he biological, behavioraland social iciences that will advance the Understanding, treatment and prevention ~f epilepsy.Fellowships provide
;tipends to students in clinical besearch, medfcine, vocational 'rehabilitation and the social sciences.
'or more information, contact Epilepsy 'oundation of America, 4351 Garden City )r.,Suite 406, Landover, Md. 20785.
"cl. (301) 459-3700
'RAINING RESOURCE OFFERS SERVICES
'echnical assistance and trafning ervices are available on a fee basis 'rem the National Resource Center for araprofessionals (NRCP in New York
ity).This center was developed by the ew Careers Training Laboratory at the raduate school of the City University of ew York and has, until recently, been unded through federal funds. Services re aimed at improving quality of care in durational and related programs.
or more information, contact: Anna Lou ickett, director, NRCP, 470 E. West End v., New York, NY 10024. Tel. (212) 840
278 or (212) 873-8697.
ANADIAN ORGANIZATION OFFERS TOY
kit of four booklets and a wall chart ublished by the Canadian Association of oy Libraries (C.A.T.L.) help to organize nd select toys for special centers and
ending libra}'
-Introduction
-Selection Cr -Organization
and -Special Toys
es:
and Bibliography, teria,
and Toy Lending System,
for the Physically
Handicapped Child.
Toy Library (Continued)
"A Chart of Selected Toys and Related Skills" lists about 100 toys readily available.To order, send $7.50 to
C. A.T. L. ,1207-50 Quebec Av., Toronto, Ontario M64 4B4, Canada.
HOW CURRENT IS YOUR LOCAL PUBLIC
~
This was one of the questions asked last year by a group of concerned parents in the Association for Retarded Citizens (ARC) of Dakota County, who decided to find out.Since then, five local
libraries were contacted, and over 60 books about mental disabilities were thoroughly reviewed and evaluated. Over 50 books are yet to be scrutinized. As was anticipated, several documents were found to be outdated and other information was missing altogether.
As a response, packets of materials were assembled on certain topics, such as on Downs Syndrome, and were distributed to each library as well as to medical clinics and hospitals. These volunteer parents hope to make their book reviews available to library users, and plan to explore some fund-raising ideas for future library purchases. "Not only has this project served as an excellent learning experience," said Diane Halverson, ARC staff member. "but it
has been the type of project that has involved volunteers during flexible hours and has great promise of providing a needed service to the general conmtunity."
For more information, contact Diane Halverson, ARC/Dakota County, 33 E. Wentworth Av.,Suite 105, W. St. Paul,
Minn. 55113.Tel. (61.2) 457-2588.
PUBLICATIONS
New Directions and Capftol Capsule are two monthly newsletters published%y the
National Association of State Mental Retardation Program Directors, Inc. (NASMRPD) .These resources provide
current information on congressional legislation, federal administration activities, program techniques, funding
Publications (Continued]Pennhurst Report (Continued)sources, state legislation and litigation.New subscribers will receivea complimentary copy of the NASMRPD "Update on the Medicaid Home and Conununity Care Waiver Authority". Annual subscription rates are $40 for both publications,$30 each if orderedseparately.Contact NASMRPD, 113 Oronoco St., Alexandria, Va. 22314. Tel. (703) 683-4202.
Longitudinal Study of the Court-Ordered ITelnstltutlonal lzatlon of Pennhurst:
part of a larger study, the-report focuses on the key issues affecting the implementation of the court decree in the Pennhurst case in Pennsylvania and comparesthese issues with similar
deinstitutionalization efforts through court actions in Maine, Michigan, Massachusetts and Minnesota.Project
:taff designed a comparative analysis to assess the following four potential effects of the litigation within a state:
continued deinstitutional ization on the part of unions representing institutional employees;
--Alienation between the compliance
monitor or master and state mental retardation authorities; and
--Schisms among parents of retarded
citizens regarding the future of institutional care.
Two cross-cutting themes were observed throughout the discussion "that appear to shape the events in virutally every state."The first major theme is the
effect that scarcity and austerity have on the acceptability of litigation, on the reaction of key groups in the system and to broad scale reform.The second
theme that emerges is the durability of court-ordered reform over time and the fictionalization and polarization that sometimes occurs as implementation of a decree extends over a prolonged period of time.
A limited supply of this report is available at the cost of $10 from: Human Services Research Institute, 120 Milk St.,8th floor, Boston, Mass. 02109.
Behavioral Residential Treatment is a new quarterly journaltocuslng on utilization
of behavioral techniques in residential treatment environments. For subscription information, contact Journals Division, Van Nostrand Reinholt Co. Inc., 135 W. 50th St.,New York, NY 10020.
EVENTS
Dec. 3.
"Positive Touch,"with Alan R. Zinrnerman, Ph.D. presenting, is a workshop on the importance of physical contact (touching) in healthy human relationships. Fee: $35. (.7 continuation education credits available).Location and more
information available through: Registration,University of Minnesota,
Rochester Center, Friedell Bldg., 1200 S. Broadway, Rochester, Minn. 55904. Tel. (507) 288-4584 or (612) 224-3106.
Dec. 3, 4
"Fourth Annual TDD Fair" at Hamline University will feature telecolmnunication devices for the deaf (TDD). It will be held at the A. G. Bush Student Center on Snelling and Hewitt Avs. in St. Paul. Admission is free and there will be door prize drawings.For more information,
contact Robert Cook, 8355 Glenbrook Av., Cottage Grove, Minn. 55016.
Dec. 15, 16
"Creating Well-Rounded Activity Programs" is the theme of this one and one-half day in-service training program sponsored by the Association of Residences for the Retarded in Minnesota (ARRM). It will be held at the Holiday Inn--Capitol in St. Paul.For further information, contact:
,.YEARNING FOR LEARNINGThe state Developmental Disabilities (DD) Program Office has acquiredIseveral education, training and resource materials. They may be borrowedI from each of the regfonal DD offfces and from the state program office fn~ St. Paul.Each month, we highlight selections from these resources.IIA Reader-s Guide for Parents of Children--.wlthMental,Physical or EmotionalDlsabilitles,Maryland Statelanning
touncilon Developmental Disabilities,
1983 Update.The-authors of this comprehensive, annotated bibliography maintafn that,"Rafsfng a child who is
handicapped requfres more knowledge and
understand~ng-~of the chfld, of [ and of others--than fs requfred c
a chfld who is not handicapped. about the experiences of others, about sources of help, and becom" familiar wfth what professionals advfstna "are actfvfties that can
neself, n rafsfng Reading learning ng
are provide a
bewilde~ed parent wfth some of the tools that will make -the job of chfld-rearfng more successful and satisfying."
Victims, Aggressors and the Family
Secret,
Thfs book explores what fs known about violence when ft occurs in the family. It identifies the comnonalities among family aggressors and victims and the factors that facilitate violence. Intervention
strategies are e; recommendations
HOW TO BORROW: These two select
the state office
amfned, and
'or action are made.
ons are available from
only.Call (612) 296
4018, or write Develfipmental Disabflfties Program, 201 Capftol Square Bldg., 550 Cedar St.,St. Paul, Minn. 55101
